UK National Haemoglobinopathy Panel

Our website now includes a page which will contain guidance and information related to the COVID-19 vaccine for patients with haemoglobinopathies. We'll keep it updated in line with new developments. nationalhaempanel-nhs.net/covid19-vaccin… #COVID19Vaccination #COVIDVaccine #teamhaem

Thank you to all our #blood-donors @NHSBT Thank you to @PanelNational Thank you to all our families

Big day tomorrow for all our excellent clinicians and experts in haematology and #SickleCell and of course their patients. Awareness and advocacy are vital. #SickleCellAwarenessDay

...and as the NHP's very own Deputy Chair, Prof. Porter provides invaluable expertise for our monthly complex patient MDTs.

Well done and congratulations @gpadmore1

Important research on #COVIDVaccination in cancer patients from @KingsCollegeLon

Our friends at West London HCC have produced an informative FAQs guidance sheet on the #CovidVaccine. Find it along with other guidance on COVID-19 vaccines in haemoglobinopathy patients on our website. Thanks @docesr and colleagues. nationalhaempanel-nhs.net/covid19-vaccin…

Interested in learning more about 'transfusion challenges in haemoglobinopathy'? You can view the video of this event hosted by @STSTNetwork & the papers given by @redcellsara & Dr Stella T. Chou of the Children's Hospital of Philadelphia via our website: nationalhaempanel-nhs.net/educational-re…

The Sickle Cell Disease Association of America Medical and Research Advisory Committee (MARAC) has issued a statement regarding the temporary suspension of bluebird clinical trials of LentiGlobin Gene Therapy for Sickle Cell Disease. Read via our website: nationalhaempanel-nhs.net/news-and-updat…

We have recently published information on COVID-19 in haemoglobinopathy & rare anaemia patients, dealing with case numbers, hospitalisations & clinical outcomes. It can be found with other resources on COVID-19 on our website nationalhaempanel-nhs.net/covid19

Our NHP clinicians are at the forefront of treating patients with rare anaemias and helping them to live healthy and fulfilling lives. Long may it continue. #RareDiseaseDay2021

Lets continue looking out for each other. #OneTeam #mentalhealth #MentalHealthAwareness

Asking twice can make all the difference. Here are some tips on how to start conversations about mental health with your friends, family or colleagues. #TimeToChange #MentalHealth ⬇️

Thanks to all those who attended yesterday's monthly MDT for February, some excellent and thought-provoking discussions on pregnancy in #sicklecell patients, management of extramedullary haematopoiesis, and other issues. Next MDT is Monday 29th March.

NHP clinicians! One for the calendar. #sicklecelldisease #thalassaemia

Hello NHP clinicians - who's interested? Please pass on to all who may be interested in this opportunity. #haemteam #clinicalscience

Rebecca Sekyere, a Haemoglobinopathy CNS in Leicester, talks about her experience of getting the #COVID19Vaccine

Please circulate among South London-based patients, families, and clinicians, and encourage them to take part in this important initiative. It's a brief survey, will only take 5 minutes to complete. #sicklecell

Another important piece of work from clinicians involved with the NHP. Kudos!

"HCC is looking forward to the new Grafton Way Building, with our fantastic art installation, by Dryden Goodwin, giving us an amazing presence and featuring some of HCC’s heroes." Stephen Rowley HCC Chair Senior Matron Haematology @uclh