Inga Drossart

Patients at the Heart of the ESC Mission At the ESC, Patient Forum Members are involved across the full range of our activities, engaging in one-to-one exchanges with key opinion leaders on topics like cardio-oncology, CVD in women, digital health, and many more! Patients' voices have become an essential part of #ESCGuidelines, congresses, educational initiatives. The number of requests for patient involvement is steadily increasing, meaning our #ESCPatientForum needs to grow! Know a patient who should be involved? Invite them to join the #ESCPatientForum bit.ly/48CYVZ1

NEW: The patient version of the 2025 ESC Clinical Consensus Statement on #MentalHealth and CVD has just been released. ❤️🧠 Heart and mental health are connected – and both need care: - Mental health issues can worsen heart conditions – and vice versa - Integrated care, with the Psycho-Cardio team, offers the best support - Treatment can include medication, therapy, mindfulness, or a mix - The ACTIVE principles guide personalised, stepped care - Families and carers need support too Please share with this document your patients: ow.ly/OnAA50X9yVp #WorldMentalHealthDay

I spoke to David Requena Martínez, first timer at #ACNAP! A member of @escardio patient forum he had been invited to give a talk on his experience of #Cancer & how left him with atrial fibrillation at #ACNAP2025. #SoMe #ACNAPmotions #hearthealth #AF #patientinvolvement #PPIE

We are delighted to have #ESCPatientForum representatives taking part in the #ACNAP2025 programme, each sharing their unique patient perspective on key topics at the congress. We’re also inviting new voices to join the forum. If you know a patient eager to contribute and become part of the ESC community, share this link with them. ow.ly/6xIp50W9pWG @Rhythmisit @LeonieKlompstra @lisneubeck #ACNAP #hearthealth #cardiac #health

#ESCPatientForum members Bart Scheenaerts & Hywel Jones contributed to the recently published #ACNAP statement on the importance of respectful language to enhance care ➡️doi.org/10.1093/eurjcn… 🙏 Watch Hywel explaining why this topic matters to him! @lisneubeck @escardio

Check it out! 🤩 Huge thanks our #ESCPatientForum members @cliolane and Bart Scheenaerts as well as @EvaGerdts, @IzaUchmanowicz, @gerry_molloy, @johnwmcevoy and Rhian Touyz for all their hard work in creating this patient version 🙏 @escardio @lisneubeck

Final day at #EHRA2025 and still two presentations to come in the patient track - don't miss your last chance to hear these unique perspectives from #ESCPatientForum members! 🤩🤟 @escardio @EHRAPresident

So important that during #EHRA2025 patient perspectives are an essential part of the congress! 🔑 aspect of Francoise Steinbach about her ICD journey: „To get support is key for the QoL of the patients pre and post ICD implantation!“ An important aspect we should keep in mind!

Today at #EHRA2025, we continue with presentations from #ESCPatientForum members Francoise Steinbach & @AVerstrael on QoL after ICD implant and living with the threat of SCD ➡️ tinyurl.com/4uksuha6. See you there! 😀🤟 @escardio @EHRAPresident

Thank you very much @Rhythmisit for our #EHRABackstage interview! #EHRA2025

Busy day for #ESCPatientForum at #EHRA2025 🔥 Extremely proud of this troop 🥰 - it takes a lot of courage for patients to go up on stage and address an audience full of #EPeeps! @escardio @EHRAPresident

Day 1 of #EHRA2025 🥳 Don't forget to check out the patient perspective track powered by #ESCPatientForum 💪 ➡️ tinyurl.com/4uksuha6 We start with 3 presentations today by Jeremy Dwight, Benoit Mores and me - see you there 🤟 @EHRAPresident @escardio

One week to go until #EHRA2025 😀 Don't miss the patient perspective track with members of the #ESCPatientForum ➡️ tinyurl.com/4uksuha6 We can't wait to see you in Vienna! 🤟 @EHRAPresident @escardio

Today is #InternationalWomensDay! Women’s hearts matter – it's time for equal representation in cardiac research. As Pisana Ferrari, #ESCPatientForum member, reminds us, closing the gap in research benefits both women patients and the doctors who care for them. Let’s stand together for change. 💜❤️ Happy International Women’s Day! #IWD2025 #AccelerateAction

Are patients comfortable with their physician using #AI? More than 90% say yes! “What patients want from AI is patient-centred solutions based on our data that empowers us.” says #ESCPatientForum member Mattias Van Heetvelde Other key messages from the patient perspective at #ESCSpringSummit: Patients feel more at ease with a combination of physician and AI decision-making rather than either one acting alone. 👩‍⚕️ A majority of patients support the sharing of anonymous data, with some even creating their own platform –  ‘Use MY Data’! 💡 Looking ahead, patients will be directly interacting with AI models, so let’s ensure they’re designed with the patient at the heart. ❤️

How can patients be better involved in the final stages of clinical trials and how can this be translated into clinical practice? Wendy Davis, member of the #ESCPatientForum,  shares her takeouts from from today's #ESCardioCRT in Amsterdam.

Strong #ESCPatientForum delegation at @escardio #ESCardioCRT on unmet needs & PROMs in Amsterdam 💪 @lisneubeck and I couldn't be prouder of our members Wendy, Mariette & Mattias who all delivered 👌👌👌 presentations 🤩 ❤️

What are the challenges we face when it comes to patient surveys?  #ESCPatientForum member Mattias Van Heetvelde, shares his perspectives on Patient Reported Outcomes (PROs) from the #ESCardioCRT meeting.

The roadmap to a trustworthy #AI implementation can be developed only through strong collaboration between the medical industry, regulators, professional societies, policy makers, and patients.   Richard Stephens from the #ESCPatientForum shares how #ArtificialIntelligence tools that are reliable and evidence-based, can contribute to improved #PatientOutcomes and care. #ESCardioCRT #patientsfirst

Excellent patient perspective on AI in medical care by #ESCPatientForum member Richard Stephens at @escardio #ESCardioCRT in Zurich 👌 @rbcasado @fwasselbergs