Scottish Huntington's Association

The boilerplate response from @GCHSCP that follows doesn't mention that it failed to consult with service users, the service provider or @NHSGGC #HuntingtonsDisease Clinical Leads prior to recommending scrapping the service. Result: our service was misunderstood & misrepresented.

Today, we’re shining a spotlight on our supporters across Scotland - celebrating the incredible ways they are stepping up for Huntington’s families 💙 🔗 Find out ways to join them and make your move: ow.ly/czxt50YTXrL *Voiceover created using AI to support accessibility*

Today, 1 May, we begin a month dedicated to raising awareness of Huntington's disease and standing alongside the families it impacts💙 🔗 Explore the ways to get involved and Make a Move here: ow.ly/Bzab50YRRXB #MakeAMoveInMay #HuntingtonsDiseaseAwarenessMonth

📆 Something is coming this May… May is Huntington’s Disease Awareness Month - and this year, we’re asking you to Make a Move for Huntington’s families. 👀 Keep an eye on our page to find out how you can get involved this May. #MakeAMove #HuntingtonsAwareness #ComingSoon

🌼 Spring is here - a season full of colour, energy and new possibilities. Make a difference for families facing Huntington’s disease by choosing a fundraiser that feels right for you. ✨ Ready to get started? Click here: bit.ly/4t9cMgv

💙 Want to make a difference - with the chance to win? Play our Lucky Lotto for only £3 per month and you could win £250 or £100 - all while supporting families impacted by Huntington’s disease. 👉🏼Sign up here to have a lotto fun: ow.ly/ETaf50YKqyE #LuckyLotto

Skyhawk Therapeutics is our proud sponsor of Dance 100. A company dedicated to advancing treatments for neurodegenerative diseases, shares our commitment to supporting the Huntington’s community. Thank you for making Dance 100 possible! ow.ly/cCpa50YH0T5

THANK YOU! 💙 From Italy to Spain, Wales to Falkirk - our incredible supporters have been raising awareness and funds across communities, making a real difference for Huntington’s families👏🏼 👉🏼 Want to get involved? Email: fundraising@hdscotland.org. #ThankYou #TeamSHA

100 songs. 1 epic dance challenge. Dance 100 hits Edinburgh’s Ross Bandstand on 13 June! DJ-led, 100 songs back-to-back, raising vital funds for Scottish Huntington’s Association. Find out more → hdscotland.org/dance-100-is-c…

🏴Scotland are heading to the World Cup 2026 ⚽Celebrate with The Tartan Army Kick Off and raise funds for families across Scotland. Host a viewing party, a World Cup 2026 sweepstake, a ‘Cupcakes for the Cup’ bake sale or try our keepy-uppies challenge. ow.ly/31P050Yz24M

Your Tartan Tee-Off fundraising pack has everything you need – whether you’re hosting a golf day, taking on a challenge or adding fun to your next round ⛳️ To view and download your fundraising pack click here: ow.ly/b6t850YkViY

The Tartan Tee Off is here! ⛳️ Dedicate your day on the course to support Scottish Huntington’s Association and help drive change for families across Scotland. Play solo, team up, or host a charity golf day. Register your interest & download your fundraising pack today! 💙

There is one week left to apply to our Impact and Engagement Fund, with applications closing on 28 February 2026. Learn more 👉 ow.ly/tTRz50Y9e50 Apply here 👉 ow.ly/Vez450Y9e52

📝 Closing soon! We are recruiting for a Senior Huntington's Disease Specialist. To find out more visit ow.ly/cceR50Y5hlc #Vacancies #Hiring #Recruitment #HybridWorking #ThirdSectorJobs

February is Payroll Giving Month - and there’s no easier way to make a lasting difference for families living with Huntington’s disease 💙 If you’d like to learn more or get started, we’re here to help. Simply email fundraising@hdscotland.org ✉️

To make our income go further for supporting families, our flagship SHAre magazine is now digital-only. This means we’ll no longer be sending print copies through the post. Our winter edition is coming out soon – so sign up today! ow.ly/YLIp50YefTv

Our Impact and Engagement Fund has re-opened, with the application deadline extended to 28 February 2026. Learn more 👉 ow.ly/UAOC50XuaAt Apply here 👉 ow.ly/qOUl50XuaAr

Fancy getting mucky for something that matters? Now is the time to show your support for the Huntington’s community at the iconic Tough Mudder. 💪 🗓️ Saturday 6 June 2026 📍 Hopetoun Estate, Queensferry

We are looking forward to welcoming family members from across Greater Glasgow and Clyde to our support group this Thursday 5 February from 2pm to 4pm at Pollok Community Centre, 134 Langton Road, Glasgow, G53 5DP.

📝 We are recruiting for a Senior Huntington's Disease Specialist. To find out more visit ow.ly/Ckjk50Y5hhG #Vacancies #Hiring #Recruitment #HybridWorking #ThirdSectorJobs

We have charity places left for the Full Marathon, Half Marathon, 10K, Relay Race and Children’s Races. Contact events@hdscotland.org for more information. #EdinburghMarathonFestival #ThisIsYourSign #RunForHuntingtons #TeamSHA #MilesWithMeaning