The Advocate Is In

We all have horror stories from clinicians who practice less than due diligence or may not be the best communicators. We need to do better to avoid negative #rippleeffects. #patientexperience #patientsafety #mypatientlife tinyurl.com/2vmdwuj2

It’s hard to recognize sometimes, but having a #chronicillness can change you in #positive ways, too. #patientexperience #mypatientlife #silverlinings tinyurl.com/ywpcbkzr

Election season is about to go into overdrive. Make sure you know what you are, or aren’t, voting for. #healthpolicy #patientperspective #Vote tinyurl.com/5n7n78xe

Nobody likes to be controlled by their #chronicdisease. But episodes when it happens is a patient reality many of us face, while others, like our #clinicians, may not understand. Here's a glimpse into one of mine. #patientexperience #mypatientlife tinyurl.com/ye2yxxbu

The 2024 Olympics has allowed us a forum to discuss #healthcare. But an ad has been bugging me. It's for a new TV show portrays #empathy for patients as extraordinary. It shouldn’t be. It should be normal, boring, and so common we take it for granted. tinyurl.com/4vtps3sm

A survey fielded by @ChronicRights shows many of us feel and/or fear the bite of #discrimination because of our conditions, even those of us without a #diagnosis. Federal law (and state laws!) offer protection. #ChronicDiseaseMonth #patientexperience tinyurl.com/yvyba8jv

#Clinicians aren’t the only #shortage we have. Even if we can get an appointment with the right clinician and a #regimen we can get behind, and it’s not a #budgetbuster, we still might not be able to actually get that treatment. #mypatientlife tinyurl.com/yc38ddc8

#Clinician #shortages right now are bad and getting worse. Lack of #access to any of the care you need is dangerous, but the lack of #primarycare options is even more so. #patientexperience #mypatientlife tinyurl.com/2j5vbejp

Calmness in a patient’s life is either temporary or an illusion. You may not be able to see it, but there is a lot of work that goes into maintaining even basic life activities. #patientexperience #mypatientlife #dailygrind tinyurl.com/y6dpyunr

My cataracts have weighed on my mind for decades. It was an inevitable result of the treatment for my meningitis, and I think it has ended with the best possible #outcome. I hope. #patientexperience #mypatientlife #cataractsurgery #donefornow tinyurl.com/3jwjb8ww

People with medical conditions can feel #broken and, in a way, we are. But even broken things can be art. #patientexperience #mychroniclife #MentalHealth tinyurl.com/mw6ntp7m

Time to put on my big girl pants and end my procrastination. I am not sure everyone is right that I will love the #outcome of this #surgery, but I can’t wait any longer as my vision #deteriorates. It’s go time. #mypatientlife #patientexperience #cataract tinyurl.com/2w89m8nc

I hate all the administrative crap that comes with managing #chronicconditions, but it is inescapable if you want to get anything done. And it is never smooth sailing. #cataract #surgery #patientexperience #mypatientlife tinyurl.com/y8vvyykm

As my first #cataractsurgery nears, my #anxiety is rising. I have a history of #psyching myself out, so I know it’s going to be a bumpy ride. tinyurl.com/2zbz3fhr

You never stop learning your #chronicconditions. Sometimes it’s the most basic information we miss when trying to grasp the more complicated stuff. #hydrate #mypatientlife #patientexperience tinyurl.com/4ju369ek

My childhood #patientexperiences closed me down emotionally, but that’s no kind of life. I had to consciously pull myself out of that mindset while I could. #mypatientlife #mentalhealth #supportsystem tinyurl.com/22tv2by9

I’m a shameless boundary pusher. But if you’re going to play that game, you have to know when to reel it in. After 30 years, I am finally folding on cataract surgery. #patientexperience #cataractsurgery #shareddecisionmaking #mypatientlife tinyurl.com/5n6bnzf2

I’ve always thought of #healthinsurance as similar to a significant other – can’t live with ‘em, can’t live without ‘em. And sometimes the policies require just as much attention as the neediest partner. #patientexperience #fulltimejob tinyurl.com/w96sxay2

#trust is the issue in #healthcare. A recent conversation illustrated one example in one hospital in one city in the United States. With the prevalence of incidents like this, it’s no wonder. #patientexperience #mypatientlife tinyurl.com/yc4b9ctf

Sometimes, in the midst of the worst things, you have to take a moment to recognize the extraordinary. When my friend died a few months ago, everything went exactly as planned. #patientexperience #endoflife #Empowerment tinyurl.com/t4y8x879