The Genesis Foundation for Children

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The Genesis Foundation for Children

The Genesis Foundation for Children

@TheGenFound

The Genesis Foundation for Children funds clinical care and therapy for children born with complex genetic disorders and rare diseases.

Boston, MA 가입일 Nisan 2014
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The Genesis Foundation for Children
Gaining control with gratitude. "You will truly understand what it means to not take a single moment, a single smile, a giggle, one bite of food, or a single step for granted,” and I rolled my eyes in disbelief. Caring for a chronically ill child can... ow.ly/tIYX50I4OEI
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We cannot avoid life’s hardships and pain; nonetheless, compassion unlocks the power to change the way we relate to the moments of suffering. When we approach behavior change with a caring attitude... ow.ly/HcYf50I4MGR
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The Genesis Foundation for Children
After our infant son was diagnosed with a rare brain malformation, I had an identity crisis. The title of Mom had an unbidden qualifier – a ‘rare’ mom. No longer just-a-mom, I enlisted as a family caregiver. The 4 states of the caregiver's identity: ow.ly/77pc50I4Mls
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Is cultivating flexible hope in the face of chronic illness possible? While stretching out my toddler’s stiff hamstrings, his physical therapist looked up at me and gently said... ow.ly/pvkx50I4LZi
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The Genesis Foundation for Children
Is cultivating flexible hope in the face of chronic illness possible? While stretching out my toddler’s stiff hamstrings, his physical therapist looked up at me and gently said... ow.ly/qpNE50I4LZj
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The Genesis Foundation for Children
300 million people worldwide are living with a rare disease. That is almost as many people who live in the U.S. If all 300 million people with a rare disease lived in the U.S., 9 out of 10 people would have a rare disease. ow.ly/kEVe50I4JEj
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The Genesis Foundation for Children
Is "gluten-free" soap a thing? If you have celiac disease and don't eat soap, does it really matter if it's gluten-free? Marketing hype or helpful? Dr. Dascha Weir, associate director of the Celiac Disease Program at Boston Children’s Hospital weighs in. thedailybeast.com/celiac-or-not-…
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The Genesis Foundation for Children
"our genes not only cause many diseases, but also hold potential cures. But that wasn’t always the case. It wasn’t until 1949 that scientists first found the molecular culprit of a disease — its roots in the genetic code." ow.ly/BIJV50HWCO4
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If you're pregnant and need info about the potential risks of exposure before and during pregnancy, contact a confidential, free info service dedicated to providing women with reliable information as recommended by the CDC. youtu.be/sULcy7R8g3A
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7 ways to help young kids cope if a parent has to isolate or quarantine according to Boston Children's Hospital. The good news - when handled with sensitivity, it's very unlikely that it will have a long-term negative impact for most children. ow.ly/cNNe50HPViG
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The Genesis Foundation for Children
7 ways to help young kids cope if a parent has to isolate or quarantine according to Boston Children's Hospital. The good news - when handled with sensitivity, it's very unlikely that it will have a long-term negative impact for most children. ow.ly/cNNe50HPViG
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The Genesis Foundation for Children
Where did Omicron come from? 1. It silently spread in a region of the world that has limited testing. 2. From a person with a chronic infection, giving it time to develop. 3. From from an animal like a mouse, chicken or turkey. More from... ow.ly/QiK050HIse5
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The Genesis Foundation for Children
Where did Omicron come from? 1. It silently spread in a region of the world that has limited testing. 2. From a person with a chronic infection, giving it time to develop. 3. From from an animal like a mouse, chicken or turkey. More from... ow.ly/QiK050HIse5
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The Genesis Foundation for Children
Don’t let frigid temperatures, snow and ice, and fewer hours of sunlight prevent your child from being active says Cara Ebbeling, co-director of the New Balance Foundation Obesity Prevention Center at Boston Children’s Hospital.ow.ly/G2pb50HBzjE
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