Visual Snow Initiative

Sierra Domb, Founder & CEO of the Visual Snow Initiative (VSI), was recently featured by The Mighty. In the article, Sierra shares more about #VisualSnowSyndrome (VSS) 🧠, the mission behind VSI, and her personal medical journey living with

92% reported ongoing issues Some lasted for years The findings suggest these medications may trigger persistent VSS symptoms in some individuals, highlighting the need for further research. 🔗 Read more via the following link: visualsnowinitiative.org/research/serot…

All participants reported visual snow, and about 42% also had additional related visual symptoms. 📊 Symptoms began at different stages: During treatment After reducing the dose Or after stopping the medication In most cases, symptoms did not resolve:

🧠 A recent study explored a possible link between serotonin-based antidepressants (SSRIs and SNRIs) and Visual Snow (VS).Researchers analyzed patient-reported side effects from a global database 🌍 and identified 24 cases linked to these medications.

92% reported ongoing issues Some lasted for years The findings suggest these medications may trigger persistent VSS symptoms in some individuals, highlighting the need for further research. 🔗 Read more via the following link: visualsnowinitiative.org/research/serot…

All participants reported visual snow, and about 42% also had additional related visual symptoms. 📊 Symptoms began at different stages: During treatment After reducing the dose Or after stopping the medication In most cases, symptoms did not resolve:

Some lasted for years The findings suggest these medications may trigger persistent VSS symptoms in some individuals, highlighting the need for further research. 🔗 Read more via the following link: visualsnowinitiative.org/research/serot…

All participants reported visual snow, and about 42% also had additional related visual symptoms. 📊 Symptoms began at different stages: During treatment After reducing the dose Or after stopping the medication In most cases, symptoms did not resolve: 92% reported ongoing issues

📖 Extraordinary Latinas is a book series that highlights powerful stories of Latina women making an impact, sharing experiences of resilience, leadership, and meaningful change. The latest volume features Sierra Domb, Founder of the Visual Snow Initiative.

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5️⃣ Manage medications and treatments more safely 6️⃣ Monitor related conditions like migraines or tinnitus 7️⃣ Request workplace or academic accommodations 8️⃣ Contribute to research and broader awareness visualsnowinitiative.org/research/shari…

Getting an official VSS diagnosis can help patients 1️⃣ Validate and medically recognize their symptoms 2️⃣ Reduce the risk of misdiagnosis 3️⃣ Advocate for their needs with confidence 4️⃣ Access specialized care, resources, and research

Sharing journeys of individuals with Visual Snow Syndrome from around the world 🌏 Spotlight on Her Zindagi 📖, featuring the story of Shafali Chadha, a 28-year-old Communications Manager from Delhi, India 💙 From the article written by Saumya Rastogi. herzindagi.com/society-cultur…

Dr. Sui Wong has created a video sharing helpful insights for anyone wondering whether they might have Visual Snow. @drsuiwong?si=IAUu52FJaEUviaRT" target="_blank" rel="nofollow noopener">youtube.com/@drsuiwong?si=…

the condition in different ways, even with the same genetics. This is also the first documented report of identical twins both diagnosed with #VSS in the medical literature. The case provides insight into possible genetic influences and symptoms associated with the condition. ❄️

medical testing including eye examinations, brain #MRI scans, blood tests, and cerebrospinal fluid analysis found no abnormalities, except for mild nearsightedness. The differences between the twins suggest that Visual Snow Syndrome exists on a spectrum. People can experience

🧠 A recent case report from #Poland documented 24-year-old identical twin sisters who were both diagnosed with #VisualSnowSyndrome (VSS). 🔗 Learn more via the following link: visualsnowinitiative.org/research/twins…

Visual Snow Syndrome is a neurological condition, and its symptoms are not always visible or noticeable. On top of these symptoms, many people are also managing other challenges in life.

Thank you to our supporters, Max and Laura, for raising awareness of Visual Snow Syndrome (VSS) and the Visual Snow Initiative (VSI)! Wearing some of our original hoodie designs from the organization’s early days, they continue to honor their relative living with VSS. 🩵