WAMES

B&W explain some of the pitfalls to avoid when responding to the Timms Review tinyurl.com/bdvh6xpt

OT Abby gives tips abt pacing e.g. "A good day doesn’t mean u suddenly have a new bl, it means yr body is giving u a little extra room 2 breathe. That energy isn’t a bonus 2 spend, it’s a cushion 2 protect......" tinyurl.com/yfppvw24

OMF briefly explains citrate synthase, an enzyme that plays a critical role in energy production within mitochondria. You can listen to an interview with Dr David Systrom on research into post-exertional malaise via muscle biopsy tinyurl.com/258aecsk

The DWP is telling disabled ppl who need support thru Access to Work scheme that it cd take 37 wks to make a decision on their application, civil servants have told MPs. The DWP’s permanent secretary claims many disabled ppl & employers are misusing scheme tinyurl.com/52fzt8p7

Cort explores Dr Ilene Ruhoy’s 2025 book “Invisible No More". Although an integrative neurologist, much of it focuses on basic, mostly do-at-home approaches that she’s found helpful not only with her patients but in her own recovery from a v severe illness tinyurl.com/bdz5t8un

MERUK is fdg a project invest immune exhaustion in ME/CFS. "A better understding of changes to immune sx in ME/CFS & how immune cells produce & use energy, will not only help us understd pathol mech underlying dx, but cd guide new therapies tgt these mech" tinyurl.com/mv56j2p5

Listen to Jason Mohammed's phone in to hear 5 people's ME stories and Dr Shepeherd's explanation of the illness. Starts @11mins 2 more calls at end of programme tinyurl.com/48h44ump

Betsy Keller talks about Using a 2-Day CPET Protocol for evidence of impairment in fatiguing illnesses [26 mins] +Transcript tinyurl.com/5fj22pn2

A tribunal has ordered the Department for Work and Pensions (DWP) to release a report that describes the impact of its errors on disabled benefit claimants, following a three-year fight to keep the document secret. tinyurl.com/25ze72u9

MPs have threatened to launch a fresh inquiry in2 handling of carers allowance scandal after unpaid carers spoke of being “stuck in limbo” by delays in DWP plans to offer redress to tens of thousands of carers who were unfairly issued with o/p bills. tinyurl.com/2jmdv45v

NHS England have released a modified version of their materials aimed at helping HC professionals understand how to support ppl living with Severe or Very Severe ME/CFS. This module is available to view by anyone who registers for a general user acct. tinyurl.com/mt7dszs5

MERUK explores hyp that dysfunction of sodium-potassium pump plays a central role in ME/CFS. This is one of several competing explanations 4 underlying biology of ME/CFS & MERUK explores it in a broader context & discusses future therapeutic possibilities tinyurl.com/mr48e86f

BBC Wales Bkfst today hilited invisible illness of severe ME. Carer Myfanwy talks abt her son Tomos' inability to walk/talk & Sylvia from WAMES discusses caring 4 her daughter Michelle 4 decades & lack of services 4 severe ME in Wales Starts 1h16 [7 mins] tinyurl.com/2w4tukfc

Myfanwy & Charlie Sleep from Swansea watch their once active son, 28, lying in bed every day, unable 2 walk/talk. Tomos is one of thousands w/ condition in Wales who campaigners say r "invis" w/ HC services desc as "a desert" 4 those most severely affected tinyurl.com/yc59ufk2

ME is being discussed now on BBC Radio Wales. It is a Phone In show. 03700 100 110

Student Essay prize winner Ariana Lyman argues that healthcare consultations are difficult for ppl with ME in many ways, leading to communication barriers..... tinyurl.com/bdfvm4t4

Work & pensions secretary Pat McFadden and chancellor Rachel Reeves have this week indicated there will be fresh cuts and “radical” reforms that will increase the pressure on young disabled people to move off out-of-work disability benefits. tinyurl.com/55ntazxt

Dr Rob Wüst presents "Microvascular & Mitochondrial Abnormalities in Skeletal Muscle in ME/CFS and Long COVID". [31 mins] +Transcript tinyurl.com/5n8prbw4

The Timms review’s online consultation on PIP has begun with a closing date of 28 May. The 4 questions are considered to be too complex and do not produce measurable results and will have to be challenged. tinyurl.com/3fzzab3y

The WAMES AGM will be on 25 April 2026. This short business meeting will elect officers and oversee the future direction of WAMES. Get in touch if you would like to be part of that. tinyurl.com/4fjh7rsc