Rare Disease Review Western

95 posts

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Rare Disease Review Western

Rare Disease Review Western

@WesternRare

Student run medical research journal that aims to educate the general public on groundbreaking research surrounding rare diseases and their societal impact

London Ontario 가입일 Mart 2021
154 팔로잉83 팔로워
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Rare Disease Review Western
Rare Disease Review Western@WesternRare·
It was great to meet so many wonderful people working together to address the needs of the #RareDisease community! Thank you for the shout out @C4RCanada
Care4Rare Canada@C4RCanada

We had the pleasure of meeting Oviya, Victoria, and Lina from @WesternRare at the @raredisorders conference earlier this month. They're a group of @WesternU students educating the public on RD discoveries through podcasts, events, and social media. 🦓 Keep up the great work! 😍

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Rare Disease Review Western
Rare Disease Review Western@WesternRare·
Season 2 Episode 3 of the Rare Diseases podcast is out now! Join us in discussing rare disease patient experiences in the healthcare system with Hyejin Park from Ipsos Canada! YouTube: @RareDiseasesPodcast" target="_blank" rel="nofollow noopener">youtube.com/@RareDiseasesP… or Spotify: search "Rare Diseases Podcast" open.spotify.com
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Rare Disease Review Western
Rare Disease Review Western@WesternRare·
The second episode of Season 2 of the Rare Diseases podcast is finally here! Join us in discussing being a rare disease patient advocate with Alice Williams from Toronto, Ontario! YouTube: @RareDiseasesPodcast" target="_blank" rel="nofollow noopener">youtube.com/@RareDiseasesP… or Spotify: search "Rare Diseases Podcast" open.spotify.com
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Rare Disease Day
Rare Disease Day@rarediseaseday·
🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours
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CORD
CORD@raredisorders·
👏Kudos to @GovCanHealth for investing in rare diseases, but we need this money to flow out as quickly as possible and in the right areas. Read CORD’s pre-budget submission to learn more 👉 shorturl.at/iwBN3 #Canada4Rare #CdnPoli #CdnHealth
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CORD
CORD@raredisorders·
👏THANK YOU to everyone who has signed the petition to help ensure the National Strategy for Drugs for Rare Diseases is successful. We have reached over 1000 signatures! Let's keep the momentum going! 🇨🇦PLS SIGN HERE 👉 lnkd.in/g7_tZ8KZ
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Rare Disease Review Western
Rare Disease Review Western@WesternRare·
CORD, many advocates, rare disease patients and stakeholders have been working to bring Canadian #RareDisease patients and families the support that they deserve. Please consider signing the petition so we can implement a National Strategy for Drugs for Rare Disease in Canada
CORD@raredisorders

WOW! THANK YOU to everyone who has signed the petition to help ensure the National Strategy for Drugs for Rare Diseases is successful. We have reached over 500 signatures in just over a week! LET’S DOUBLE THIS BY NEXT WEEK. PLS SIGN HERE 👉 petitions.ourcommons.ca/en/Petition/De…

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CORD
CORD@raredisorders·
Tomorrow is Rare Disease Day! Canadian Illuminations #LightUpForRare movement to raise awareness on #RareDiseaseDay! February 28: Calgary Tower CN Tower Edmonton High Level Bridge Niagara Falls Toronto Sign at Nathan Phillips Square Victoria, BC Parliament Building’s
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탐색

@ChrisLewisEssex @GovCanHealth @AlexionPharma @jyduclos @Durhane @raredisorders @McGillu @DrMatthewGrol