Deb the Tired 리트윗함
Deb the Tired
14.2K posts
Deb the Tired
@debage01
Nerd, proud native Minnesotan, MN sports fan. SURVIVOR. Kinda lost. She/Her. 🏳️🌈
Chicago, IL 가입일 Aralık 2009
1.5K 팔로잉511 팔로워
Deb the Tired 리트윗함
@VenZenix @kthsdlr1 @SillyPutty78 That's awful. I'm so sorry. I, at one point, started to doubt myself because of these doctors. But my therapist disagreed. She knew it wasn't anxiety or depression. If I hadn't done the work and investigated it myself I'd still be undiagnosed. Or dead.
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@debage01 @kthsdlr1 @SillyPutty78 This hapoened to me. I had a GP who messed up my head so bad I was scared to go to doctors. Turns out I had a tumor on my adrenal causing Conn's syndrome which damaged my kidneys. I also have autoimmune disease that wasn't diagnosed until damage was done to my joints and liver.
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Deb the Tired 리트윗함
@DigitalKitten5 @SillyPutty78 This is so true. It really shines a light on who you thought was someone you could trust. Chronic illness narrows your world in so many unexpected and unfair ways.
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@debage01 @SillyPutty78 Even worse, they often won’t believe the new doctor, the old one damaged your credibility forever.
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I spend a small fortune to see the doctor I see for this and I'm still miserable. MCAS is hell.
Paul Gads@PaulGadsden82
I find it so upsetting reading doctors on here insult and belittle people with MCAS. I am going through absolute hell with mine right now. You absolute pricks do nothing to help. I fucking despise you.
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Deb the Tired 리트윗함
Deb the Tired 리트윗함
Deb the Tired 리트윗함
Imagine a doctor refusing to diagnose you with a condition for which you have the symptoms, because the doctor believes the condition is rare, and therefore there's an imaginary quota on how many people are allowed be diagnosed with that, and you're not one of those people.
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Deb the Tired 리트윗함
This is a major issue . These conditions are not over diagnosed , in fact the medical gaslighting that patients have to endure is unreal. Under diagnosis is an issue. No medical pathway in the Uk. These conditions wreck lives, as do opinions like these. The gaslighting is real
Bryan Shapiro MD, MPH@BShapiroMD
@awgaffney Underlying cause of unexplained symptoms captured as "EDS/MCAS/POTS/chronic lyme": Developmental trauma, excessive stress, overstimulation. Based on my experience.
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I remember going in for my appointment thinking I was going to get help and answers. By about the fifth doctor you realize that's delusional.
ThePOTSPostman@ThePOTSPostman
There’s a version of the healthcare system people believe exists. And then there’s the version you meet when you have a complex chronic illness. They’re not the same.
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Deb the Tired 리트윗함
@amiautoimmunex The same thing happens to me. The only thing that's made a difference is LDN, but it increased symptoms at first and it was a struggle getting through that. I think it's all individual and there's not one fix for everyone. Especially if we're not responding to approved treatments
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Is there hope if all my body does is reject MCAS Meds?! Like they just activate my symptoms x10000 and put me in a really bad crash no matter what dose I try. I’m so so scared.
#mcas #chronicillness
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