24 Hours of Rare

@cathsmstratton @moyamoyafdn We are excited to have you join us with important #registry lessons!

Very excited to be taking part or @24HoursOfRare tomorrow, #RareDiseaseDay2023! I will be talking about @moyamoyafdn’s registry! #RareDiseaseTruth

@arianek @brunodbo Thank you for sharing such a difficult story in the hopes that it might change things for others. Our team is thinking of you. #RareDiseaseDay #complexpatients

Do you have an update you'd like to share from your #raredisease community at our #RareDiseaseDay event? Join us for #24HoursOfRare2023, the only global event held in celebration of the rare disease community.

Delighted @KerryLeeson will be joining @24HoursOfRare to talk about everything #AlstromSyndrome #RareDiseaseDay2022 #RareDiseaseDay There is still time to join, register NOW!! 24hoursofrare.com

Really loving the @24HoursOfRare sessions so far. Highly recommend joining as many as possible over the next few hours. 24hoursofrare.com #RareDiseaseDay #RareDiseaseDay2022

@davidrose88 Always glad to see so many amazing advocates like yourself sharing your knowledge and experience at events!

Join us as @RareRevolutionM kicks off #24HoursOfRare live from the UK and discusses “Turning the Tide” in #raredisease for #RareDiseaseDay2022!

Are you a #raredisease patient, advocate, #nonprofit, or #medtwitter professional? We want to celebrate your accomplishments during our #rarediseaseday2022 event, #24HoR2022! We showcase the best of rare in each timezone. Registration now open - bit.ly/3g88qD9