Anneke Lucassen

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Anneke Lucassen

Anneke Lucassen

@annekeluc

Data, genomics, ethical preparedness. U of Oxford, https://t.co/yrpT0KuUvR Also enjoy Twitter for cool art and funny videos

Oxford UK Katılım Nisan 2013
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Anneke Lucassen
Anneke Lucassen@annekeluc·
Slowly migrating to alucassen@bsky.social
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Centre for Personalised Medicine, Oxford (+ bsky)
What would success look like in the context of a rare disease screening programme? We’re going to consider how principles around screening should account for very rare conditions, where we cannot expect to have a wealth of data to guide decisions. (Chair: @annekeluc)
Centre for Personalised Medicine, Oxford (+ bsky) tweet media
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Anneke Lucassen retweetledi
Centre for Personalised Medicine, Oxford (+ bsky)
@annekeluc Navigating new uncertainties. We want to discuss the challenges of interpreting genomic variation in a screening context, the challenges for families and clinicians of managing uncertainty, and the challenges of living with a rare condition. (Chair: @DrSusieWeller1)
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