Dystonia Medical Research Foundation

Online in the Spring 2026 Dystonia Dialogue: Learn about different ways that people impacted by dystonia are making connections through DMRF support groups. bit.ly/4svNEkf #dystonia #dmrf #dystoniafoundation

In the Spring issue of the Dystonia Dialogue: Find out why the DMRF funds basic research and how studying drug targets led to more effective dystonia treatments (Part 2 of a 4-part series on DMRF research support). bit.ly/4rDiINF #dystonia #dmrf #dystoniafoundation

The Spring issue of Dystonia Dialogue is now live on the DMRF website! Learn more about the DMRF’s plans to recognize our 50th anniversary, rare genetic forms of dystonia, and how support groups keep people connected. bit.ly/4ssAViq #dystonia #dmrf #dystoniafoundation

Recognizing 50 years of making a difference: From brain bank tissue samples to important data that informs future research, there are several resources for dystonia investigators listed on the DMRF website. bit.ly/4sUwj4l #dystonia #dmrf #dystoniafoundation

We’re halfway through the Dystonia Pet Palooza! Have you checked out the 2026 pets yet? Help these beloved companions raise money for dystonia research, awareness and support! bit.ly/4bVYavP #dystonia #dmrf #dystoniafoundation

The Dystonia Advocacy Network (DAN) held their annual Advocacy Day on March 12 on Capitol Hill. DAN advocates shared their personal experiences and called upon legislators to support federal research dollars and health care policies that impact the dystonia community. #dystonia

We’re unleashing cuteness (and kindness)! See who’s leading the pack after the first week of the Dystonia Pet Palooza. Stop by and support the pets whose owners are supporting dystonia research! dmrfpetpalooza.swell.gives #dystonia #dmrf #dystoniafoundation

The Dystonia Advocacy Network (DAN) held their annual Advocacy Day on March 12 on Capitol Hill. DAN advocates shared their personal experiences and called upon legislators to support federal research dollars and health care policies that impact the dystonia community. #dystonia

Your Tributes Make a Difference! Thanks to our community, dozens have already been honored. They have felt your appreciation, and the DMRF appreciates your generosity. Join in and make a 50th Anniversary Tribute today: bit.ly/4jFiy65 #dystonia #dmrf #dystoniafoundation

Stay in the know about what is happening with research, advocacy, education and other resources in the #dystonia community with the DMRF monthly e-newsletter. The March e-news is now available: Email link: conta.cc/40IDgJu #dystonia #dmrf #dystoniafoundation

Science matters. Research matters. Because people matter. Since 1976, the DMRF has funded over $38 million in research grants and awards, leading the way for 5 decades of progress in dystonia research. bit.ly/4cxXIEk #dystonia #dmrf #dystoniafoundation

Shout out to Leslie Carrara-Rudolph on her recent EMMY Award for her work on Sesame Street. Leslie and her character Lolly Lardpop have spread joy and dystonia awareness during the DMRF Virtual Zoo Days and "YOU" Day. @lesliecarrararudolph @humorwithaheart @lollylardpop

Dystonia Pet Palooza is off to an amazing start! Even if you’ve not entered your own pet, there are 22 reasons to visit dmrfpetpalooza.swell.gives Check out the adorable pet photos Support your favorite pets Help fund dystonia research #dystonia #dmrf #dystoniafoundation

The official T-shirt color for this year’s DMRF Dystonia Zoo Days will be Heather Galapagos Blue. Visit our website for upcoming Zoo Day dates and registration information in the weeks to come. Thank you to everyone who participated in our annual T-shirt poll. #dystonia #dmrf

For 50 years, the DMRF has supported and stimulated dystonia research. DMRF-funded research has led to a better overall understanding of dystonia as well as breakthroughs in genetics and therapeutics. bit.ly/3Fhc6Sz #dystonia #dmrf #dystoniafoundation

🎉 The Dystonia Pet Palooza starts today — raise funds all month long for dystonia research. Join the movement ➡️ bit.ly/4bVYavP and visit to see and support our community’s beloved pets! #dystonia #dmrf #dystoniafoundation

Dystonia Pet Palooza starts TOMORROW! Grab your leash, snap a pic, and get ready to make a difference for dystonia research. 🐶 bit.ly/4bVYavP #dystonia #dmrf #dystoniafoundation

SHARE TO SPREAD AWARENESS: Feb 28 is #RareDiseaseDay. Myoclonus-Dystonia (M-D) is a rare form of dystonia characterized by a combination of rapid, brief muscle contractions (myoclonus) and/or sustained twisting and repetitive movements that result in abnormal postures (dystonia).

Coming soon—next month the 2026 Dystonia Pet Palooza is a celebration of the vital role that pets play in the dystonia community. Here’s a sneak peek at some of the pets who are part of the pack. bit.ly/4bVYavP #dystonia #dmrf #dystoniafoundation

Have you registered for the Dystonia Pet Palooza yet? Your pet could be a social media influencer while supporting the work of the DMRF. Get ready to celebrate these pets throughout the month of March. bit.ly/4bVYavP #dystonia #dmrf #dystoniafoundation