DAISy-PCOS

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DAISy-PCOS

DAISy-PCOS

@DaisyPcos

Dissecting Androgen excess & metabolic dysfunction – an Integrated SYstems approach to PolyCystic Ovary Syndrome. #WellcomeTrust funded, led by Prof @WiebkeArlt

Birmingham Katılım Ağustos 2019
505 Takip Edilen1.1K Takipçiler
DAISy-PCOS
DAISy-PCOS@DaisyPcos·
The @LindAlliance Top 10 #PCOS Research Priorities are being announced today! Bravo to all involved, including members of the PCOS community who contributed questions & helped prioritisation. We can’t wait to hear what priorities have been identified! Exciting! Tune in 5pm 📣🌼
Verity (PCOS UK)@veritypcos

📢 Calling all #PCOS patients, healthcare professionals & researchers — big news! We’re announcing the Top 10 PCOS Research Priorities on a webinar, open for all. Tuesday, 21 Oct at 5pm. Register: 👉 lnkd.in/exPCT7m8 @cardiffuni @LindAlliance

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Caroline Gillett
Caroline Gillett@cdtgillett·
A big thank you to my local MP Laurence Turner @larry_turner for taking the time to respond to my invite & for joining us at the @APPG_PCOS report launch. I was pleased to have the opportunity to talk with you about #PCOS women’s health research & public engagement @unibirmingham
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Caroline Gillett
Caroline Gillett@cdtgillett·
Delighted to have been at the Houses of Parliament today with @DAISyPCOS 🌼for the launch of the @APPG_PCOS inaugural report outlining recommendations for reform on #PCOS diagnosis, treatment & care. Incredible work by @verity & collaborators to get to this point! #PCOSAPPG 1/2
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Caroline Gillett
Caroline Gillett@cdtgillett·
Great day at the QE hospital engaging #PCOS patients (& partners!) on a discussion about the ongoing Seva clinic pathway development led by @drpunith & @Devicollab team. Special thanks to Dani & Sunila for helping co-develop this event & for sharing their own stories! ✨
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Verity (PCOS UK)
Verity (PCOS UK)@veritypcos·
Get your friends involved in helping with #pcos research with our friends at @DaisyPcos
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DAISy-PCOS
DAISy-PCOS@DaisyPcos·
📢 We need your voice! Help shape the future of PCOS research. We’ve narrowed down over 1400 suggestions to a shortlist of 51. Now, it’s time for patients and healthcare professionals to vote for the most important topics. 📷 It only takes 10 mins #PCOS #JLApcos #PCOSAwareness
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Caroline Gillett
Caroline Gillett@cdtgillett·
Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊
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Caroline Gillett
Caroline Gillett@cdtgillett·
Thank you Birmingham attendees! Such a useful & enjoyable day getting your feedback @DAISyPCOS #EMPOWERPCOS. Special thanks @eka_melson for talking through plans & answering questions so thoroughly! Thanks Lida & Cadence for behind the scenes support! London… see you Monday! 😀
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Caroline Gillett
Caroline Gillett@cdtgillett·
We have 2 workshops for women with PCOS interested in helping us with planning a future PCOS research project - one workshop is in London, the other one is in Birmingham. Last chance to sign up, we are almost fully booked! Scan poster QRs for more information.
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Verity (PCOS UK)
Verity (PCOS UK)@veritypcos·
Thank you to the 467 that have completed our survey. We need a minimum of 1000 from as diverse a group as possible. If you have #PCOS & live in the UK please share your experiences. Will only take 15 mins. Pls RT if you can!
Verity (PCOS UK)@veritypcos

Do you have #PCOS & live in the UK? Please take our #PCOSconsultation survey, which will help inform a ** PARLIAMENTARY INQUIRY** into diagnosis & management of PCOS in the #NHS. Take the survey: surveymonkey.com/r/ZX8DD85 Please share!

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Caroline Andrews
Caroline Andrews@carand2015·
Thank you so much for coming and contributing- you have done such great work in the field of #PCOS and #PCOSDiagnosis it was great to have you there
Caroline Gillett@cdtgillett

Thank you @veritypcos for the invitation to be part of the oral evidence session on #PCOSDiagnosis in parliament today, chaired by @fivanmierlo. Well done to all scientists & lived experience voices who shared powerful data & testimonials, including our #PPIE partner Sunila!

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Caroline Gillett
Caroline Gillett@cdtgillett·
Thank you @veritypcos for the invitation to be part of the oral evidence session on #PCOSDiagnosis in parliament today, chaired by @fivanmierlo. Well done to all scientists & lived experience voices who shared powerful data & testimonials, including our #PPIE partner Sunila!
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DAISy-PCOS
DAISy-PCOS@DaisyPcos·
Survey still open! Calling women with PCOS & in particular those from ethnic minority backgrounds, please let your voices be heard! Also calling healthcare professionals from the UK, they need to hear your perspectives on what future research into #PCOS should be focusing on!
Verity (PCOS UK)@veritypcos

Help shape the future of #PCOS research! We’re working with patients & experts to identify the top 10 priorities for #PCOSResearch in the UK. 🔗 Take the Survey: verity-pcos.org.uk/jlapcos.html 📣 Please help us get as many voices heard as possible and share this post #JLAPCOS

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Keşfet

@LindAlliance @cardiffuni @larry_turner @APPG_PCOS @unibirmingham @verity @drpunith @Devicollab