ERN ReCONNET 🇪🇺

🆕@ern_reconnet #webinar “Why morning joint stiffness and swelling in rheumatic diseases? Role of Circadian Rhythms” with Prof. Maurizio Cutolo and Dr. Rosanna Campitello, moderated by Prof. Rainer Straub. 🗓️May 20th - 16 CET ✍️Register here: rb.gy/8444ez

TODAY’S @ERNReCONNET webinar at 16 CET on “CAR-T Therapy in Systemic Lupus Erythematosus (SLE): Explained to the Patient” with Prof. Georg Schett, moderated by Prof. Marta Mosca and the ePAG Jeanette Andersen. ✍️ Register here to participate: rb.gy/s18q03

Heading to EULAR 2026? We invite you to visit us at our dedicated space in the NPO area (Booth 013). See you in London!

🎓 The @ern_reconnet #webinar “2026 focus on monogenic Ehlers-Danlos syndromes: periodontal and vascular variants” is now available on our YouTube channel! 🔗You can access the webinar here: youtu.be/cXdFpmHwxhw 🌐 More info on EDS here: reconnet.ern-net.eu/disease-eds/

Don’t miss TODAY’S @ERNReCONNET webinar at 16 CET on “2026 focus on monogenic Ehlers-Danlos syndromes: periodontal and vascular variants” with Dr. Fleur S. van Dijk and Dr. Ingrid van de Laar, moderated by Prof. Alberto Sulli. ✍️ Register here: rb.gy/crrvp1

💜 World Lupus Day 🌍 At #ERNReCONNET, we are profoundly committed to supporting the lupus community @LupusEurope Together, let’s #MakeLupusVisible by raising awareness and sharing knowledge

Register now for the 🆕@ern_reconnet #webinar “CAR-T Therapy in Systemic Lupus Erythematosus (SLE): Explained to the Patient” with Prof. Georg Schett, moderated by Prof. Marta Mosca and the ePAG Jeanette Andersen. 🗓️May 13th - 16 CET ✍️Registration is: rb.gy/s18q03

🎓 The @ern_reconnet #webinar “Steroids in Relapsing Polychondritis” is now available on our YouTube channel! 🔗You can access the webinar here: youtu.be/OFhiFAnN4sI 🌐 More info on RP here: reconnet.ern-net.eu/disease-rp/

Don’t miss TODAY’S @ERNReCONNET webinar at 16 CET on “Steroids in Relapsing Polychondritis” with Prof. Simona Rednic and Mrs. Camelia Denisa Bucsa, moderated by Dr. Oliver Sander. ✍️ Make sure you're registered to participate: rb.gy/ydv7g6

📢 Last call! The ERN ReCONNET Transition Survey deadline is 31 May. If you’re a patient with rCTDs or a carer, your experience can help improve care across Europe. It only takes 15 minutes. 👉 bit.ly/TransitionSurv… Please share—every voice matters! #ERNReCONNET #RareDiseases

📬 ERN ReCONNET Newsletter n.31 is out! A network in full motion — read the April 2026 edition here 👇 bit.ly/NewsERNApr26 Not subscribed yet? →bit.ly/Sub_NewsReCONN… #ERNReCONNET #RareDiseases #EuropeanReferenceNetworks

Register now!🆕@ern_reconnet #webinar “2026 focus on monogenic Ehlers-Danlos syndromes: periodontal and vascular variants” with Dr. Fleur S. van Dijk and Dr. Ingrid van de Laar, moderated by Prof. Alberto Sulli. 🗓️May 06th - 16 CET ✍️Registration is: rb.gy/crrvp1

Living with Systemic Sclerosis (SSc)? Share your experience in our EU survey & help improve care. 🔗Participate here: bit.ly/48cJPsy #SystemicSclerosis #SSc #RareDiseases #PatientVoice #DigitalUlcers

🌍The 2026 Call for ERN Affiliated Partners is open! Healthcare Providers from Bulgaria, Cyprus, Ireland, Norway and Slovakia are particularly encouraged to apply to become Affiliated Partners of ERN ReCONNET. 📷bit.ly/4mRANXB #ERNReCONNET #ERN

Register now for the 🆕@ern_reconnet #webinar “Steroids in Relapsing Polychondritis” with Prof. Simona Rednic and Mrs. Camelia Denisa Bucsa,moderated by Dr. Oliver Sander. 📌Disease: #RP 🗓️Apr 29th - 16 CET ✍️Registration is: rb.gy/ydv7g6

🌍 9 years of ERNs. The ERN flagship manuscript has just been published in the Orphanet Journal of Rare Diseases. 📷Read the full paper: bit.ly/4vqn9hX #RareDiseases #ERNReCONNET #EuropeanReferenceNetworks #JARDIN #RareConnectiveTissue #euhealth

🎓 The @ern_reconnet #webinar “Update on B cell targeting therapies in IgG4-related disease” is now available on our YouTube channel! 🔗You can access the webinar here: youtu.be/pdSy44yEZeE 🌐 More info on IgG4 here: reconnet.ern-net.eu/disease-igg4/

Don’t miss TODAY’S @ERNReCONNET webinar at 16 CET on “Update on B cell targeting therapies in IgG4-related disease” with Dr. Marco Lanzillotta, moderated by Prof. Emanuel Della Torre. ✍️ Make sure you're registered to participate: rb.gy/senvan

🎓 The @ern_reconnet #webinar “Recent advances in the treatment of inflammatory myopathies” is now available on our YouTube channel! 🔗You can access the webinar here: youtu.be/rW9SK3S7jeA 🌐 More info on IIM here: reconnet.ern-net.eu/disease-iim/

Don’t miss TODAY’S @ERNReCONNET webinar at 16 CET on “Recent advances in the treatment of inflammatory myopathies” with Prof. Alain Meyer, moderated by Prof. Patricia E. Carreira. ✍️ Make sure you're registered to participate: rb.gy/fvr9mp

🎓 The @ern_reconnet #webinar “Pregnancy in women with primary Sjögren´s disease” is now available on our YouTube channel! 🔗You can access the webinar here: youtu.be/rQKoIAXy3y4 🌐 More info on SjD here: reconnet.ern-net.eu/disease-ss/

Don’t miss TODAY’S @ERNReCONNET webinar at 16 CET on “Pregnancy in women with primary Sjögren´s disease” with Dr. Grégoire Martin de Frémont, moderated by Prof. Chiara Baldini and the ePAG representative Coralie Bouillot. ✍️ Register here to participate: rb.gy/5u11hl