ERN ReCONNET 🇪🇺

🎓 The @ern_reconnet #webinar “What is the added value of triple therapy in lupus nephritis?” is now available on our YouTube channel! 🔗You can access the webinar here: youtu.be/f78o2pK35rc 🌐 More info on SLE here: reconnet.ern-net.eu/disease-sle/

TODAY’S @ERNReCONNET webinar at 16 CET on “What is the added value of triple therapy in lupus nephritis?” with Prof. A. Fanouriakis, moderated by Prof. M. Schneider, the ePAG Z. Karakikla-Mitsakou, and Prof. D. Haffner as guest moderator. ✍️ Register here: rb.gy/wgqvkz

Register now for the 🆕@ern_reconnet #webinar “Pregnancy in women with primary Sjögren´s disease” with Dr. Grégoire Martin de Frémont, moderated by Prof. Chiara Baldini and the ePAG representative Coralie Bouillot. 🗓️Mar 25th - 16 CET ✍️Registration is: rb.gy/5u11hl

Don’t miss TODAY’S @ERNReCONNET webinar at 16 CET on “Recent advances in the treatment of inflammatory myopathies” with Prof. Alain Meyer, moderated by Prof. Patricia E. Carreira. ✍️ Make sure you're registered to participate: rb.gy/fvr9mp

Advancing access to cross-border healthcare in the EU. 📅 26 March High-Level Conference on Patients’ Rights & ERNs Key topics: cross-border rights, border regions, rare diseases. 🔗bit.ly/HLC_PatientsRi… #CrossBorderHealthcare #EUHealth #PatientRights #RareDiseases #ERNReCONNET

⏰ Last call! Today is the last day to submit your poster abstract for #ECRD2026. Don’t miss the chance to showcase your work, submit before the end of the day 👇 go.eurordis.org/ecrd-posters-2… #RareDiseases #ECRD2026

🆕@ern_reconnet #webinar “Recent advances in the treatment of inflammatory myopathies” with Prof. Alain Meyer @Myositis_Stras, moderated by Prof. Patricia E. Carreira. 🗓️Mar 18th - 16 CET ✍️Register here: rb.gy/fvr9mp

🆕@ern_reconnet #webinar “What is the added value of triple therapy in lupus nephritis?” with Prof. A. Fanouriakis, moderated by Prof. M. Schneider, the ePAG Z. Karakikla-Mitsakou, and Prof. D. Haffner (ERKNet). 🗓️Mar 11th - 16 CET ✍️Register here: rb.gy/wgqvkz

Today, 28 Feb, the Leaning Tower of Pisa shines for Rare Disease Day, illuminated by ERN ReCONNET 💜 A symbol of resilience, unity & shared strength. Rare, but not alone 🤝🌍 #RareDiseaseDay #ERNReCONNET #StrongerTogether @EU_Commission @EU_HaDEA

🎓 The latest @ern_reconnet #webinar “The role of exercise as a non-pharmacological treatment adjunct to pharmacotherapy in people with systemic sclerosis” is now available on our YouTube channel! 🔗You can access the webinar here: youtu.be/ZduWgneRs-Q

Don’t miss TODAY’S @ERNReCONNET webinar at 16 CET on “The role of exercise as a non-pharmacological treatment adjunct to pharmacotherapy in people with systemic sclerosis” with Dr. Alexandros Mitropoulos, moderated by Prof. Vanessa Smith. ✍️ Register here: bit.ly/4aCrd5j

🎓 The latest @ern_reconnet #webinar “The Path to Better Treatments: A Patient-Friendly Guide to Sjögren’s Clinical Trials” is now available on our YouTube channel! 🔗You can access the webinar here: youtu.be/X1yftyvPdOQ 🌐 More info on SjD here: reconnet.ern-net.eu/disease-ss/

TODAY’S @ERNReCONNET webinar at 16 CET on “The Path to Better Treatments: A Patient-Friendly Guide to Sjögren’s Clinical Trials” with Prof. I. Peene, moderated by Prof. G. Nocturne, and Mrs C. Bouillot standing in for Mrs A. Vieira. ✍️Register here: rb.gy/t4u9p8

🆕@ern_reconnet #webinar “The role of exercise as a non-pharmacological treatment adjunct to pharmacotherapy in people with systemic sclerosis” with Dr. Alexandros Mitropoulos, moderated by Prof. Vanessa Smith. 🗓️Feb 18th - 16 CET ✍️Register here: rb.gy/t4u9p8

📅 The ERN ReCONNET 2026 Webinar Calendar is out! 🎥 Launch video by Prof. Maurizio Cutolo: bit.ly/Webinar2026MC 👉 Explore the calendar and register now: bit.ly/ERN_webinar #ERNReCONNET #RareDiseases #Webinars #PatientPartnership

Register now🆕@ern_reconnet #webinar “The Path to Better Treatments: A Patient-Friendly Guide to Sjögren’s Clinical Trials” with Prof. Isabelle Peene, moderated by Prof. Gaetane Nocturne, and Mrs. Ana Vieira. 🗓️Feb 11th - 16 CET ✍️Registration is rb.gy/t4u9p8

ERN ReCONNET has endorsed new key events that in 2026 will bring together the European rare disease community to share expertise and advance patient care. Read more about these events on our website: bit.ly/45GvHG8 #ERNReCONNET #ERNs #europeanreferecenetworks

📣 Register now for ECRD 2026! 📣 The registration for the European Conference on Rare Diseases & Orphan Drugs is officially open! 🗓️ 🔗 Register for ECRD 2026 at this link: lnkd.in/dk8azGQ 🔗 The Programme is available here: lnkd.in/eRt85NW7

📢 The new ERN ReCONNET Newsletter is out! Discover how collaboration, expertise, and patient partnership continued to shape ERN ReCONNET throughout the year. 👉 Read the newsletter here: lnkd.in/dnRMXdw3 @EU_Commission @Hadea #ERNs #rarediseases #sharecarecure

🎓 The latest @ern_reconnet #webinar “IgG4-related disease (IgG4-RD): update on diagnosis and treatments in 2025” is now available on our YouTube channel! 🔗You can access the webinar here: youtu.be/XVmeVoes0g0 🌐 More info on IgG4-RD here: reconnet.ern-net.eu/disease-igg4/

Don’t miss TODAY’S @ERNReCONNET webinar at 16 CET on “IgG4-related disease (IgG4-RD): update on diagnosis and treatments in 2025” with Prof. Nicolas Schleinitz, moderated by Prof. Eric Hachulla. ✍️Make sure you're registered to participate: rb.gy/l91vdm