Huntington's Disease Association

Well done to Harley for taking on this incredible challenge to raise money for us 👏👏

Today is the first day of Huntington's Disease Awareness Month, this year we will be going#BehindTheGene. Find out more hda.org.uk/huntingtons-di…

This May, for Huntington’s Disease. I’m challenging myself to walk a total of 375,000 steps across the Over the 31 days, I’ll be walking the equivalent of around 187 miles. I’m aiming to raise £300, and I’d really appreciate any support. justgiving.com/page/rickyjohn…

@rickyjohnston26 Thank you and good luck

This May, for Huntington’s Disease Awareness Month, I’m challenging myself to walk a total of 375,000 steps across the Over the 31 days, I’ll be walking the equivalent of around 187 miles. I’m aiming to raise £300, and I’d really appreciate any support

@SportsTraderMG Amazing work - thank you and good luck!

If you include gift aid just over 4 grand raised so far for @HDA_tweeting. A massive thank you to everyones support Llanberis 25k 4 weeks to go Pyrenees 55k 11 weeks to go Helvellyn 100k 21 weeks to go justgiving.com/page/matthew-g…

Want to take part in a research study? This study looks at how people with Huntington’s disease experience communication with professionals about assisted dying in the UK hda.org.uk/news/trigger-w…

In Westminster we met the Parliamentary Officer to Ben Lake MP to talk about improving support for people living with Huntington's in Ceredigion Preseli, with particular reference to access to mental health services. We look forward to working on follow-up activity in this regard

@savagesteph82 @Marathon_Mcr Fantastic! Well done

4:15 @Marathon_Mcr @HDA_tweeting

Thank you @MSCymru for inviting us to yesterday's Welsh Parliament election hustings. We were pleased to be able to ask about the actions the candidates would take to help ensure people with neurological conditions are able to access mental health services

@coachtonymee This is great news, Tony. Thank you

I have managed to nag my way onto our area’s local news program, Calendar, in order to raise awareness of @HDA_tweeting and my charity bike ride in Mallorca, hopefully to increase donations. Should be filming later this week. justgiving.com/page/tony-mee-…

Thank you Mabon ap Gwynfor MS @mabonapgwynfor for meeting us to discuss ways to improve access to mental health services for people with Huntington's in Dwyfor Meirionnydd and across Wales.

This is a huge boost for people with Huntington’s in North Wales hda.org.uk/news/an-update…

@MarkIsherwoodMS This is brilliant - thank you for your support

After working with the Huntington's Disease Association @HDA_tweeting I'm delighted the Welsh Government's new Quality Statement confirms people with Huntington's shouldn't be excluded from mental health services.

We were in Westminster to meet the Senior Parliamentary Assistant to Adam Jogee MP @AJogee to discuss care and support for people with Huntington's in Newcastle-under-Lyme. We are following up by asking Adam Jogee MP to table Written Parliamentary Questions to the government.

The Welsh Government has published its Quality Statement for Mental Health, which defines the outcomes and standards that mental health services must deliver. The Statement makes clear that people with Huntington’s shouldn't be excluded. Read more: hda.org.uk/news/an-update…

Thank you to @MarkIsherwoodMS for raising the issue of access for people with Huntington's disease in Wales to mental health services, and for calling on the Welsh Government to ensure that people with neurological conditions are able to get the support they need and deserve.

As always, a huge thank you to all those who purchased from us and to those kind artistes who donated signed photographs to help raise a fantastic amount of money for our good causes. @saintcathsuk @mariecurieuk @HDA_tweeting

Thank you Janet Finch-Saunders MS @JFinchSaunders for meeting us to talk about mental health access and care coordination for Aberconwy constituents with Huntington's disease. We appreciate you offering to table Written Questions to the Welsh Government on both of these points.

Thank you @markisherwoodMS for your time discussing care coordination and mental health support for people with Huntington's disease in North Wales, and letting us know you will ask the Welsh Government about these issues

Last week we attended the Rare Disease Parliamentary Event where Rare Disease UK launched their Equity for Rare report. You can find out more about it here: geneticalliance.org.uk