IKCC Kidney Cancer

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IKCC Kidney Cancer

IKCC Kidney Cancer

@IKCCorg

International Kidney Cancer Coalition (IKCC) is the only global collaboration of patient groups working to reduce the burden of kidney cancer.

Global, based in Amsterdam Katılım Haziran 2014
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IKCC Kidney Cancer
IKCC Kidney Cancer@IKCCorg·
IKCC has a unique role in the DISCERN project to ensure that patients and caregivers are represented throughout, and results are relevant to the patient community, and that findings are communicated in plain language. (3/4)
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IKCC Kidney Cancer
IKCC Kidney Cancer@IKCCorg·
DISCERN is a five-year project of the European Commission Cancer Mission to understand the causes of renal (kidney), pancreatic, and colorectal cancer in Europe and to help explain the geographical distribution of these cancer types, (1/4)
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IKCC Kidney Cancer
IKCC Kidney Cancer@IKCCorg·
We’re proud to be a member of the COMFORT project (Computational Models FOR patienT stratification in urologic cancers – Creating robust and trustworthy multimodal AI for health care), (1/2)
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IKCC Kidney Cancer
IKCC Kidney Cancer@IKCCorg·
We’re proud to be a full member of the Management Board of the CARE1 Pragmatic Clinical Trial. (1/2)
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IKCC Kidney Cancer
IKCC Kidney Cancer@IKCCorg·
Notably, Ono Pharmaceutical and avec are collaborating on a shared decision-making project specifically focused on kidney cancer (Renal Cell Carcinoma). (2/2)
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IKCC Kidney Cancer
IKCC Kidney Cancer@IKCCorg·
Our Chair, Dr Eric Jonasch, was in Japan to meet with the Japanese Society of Medical Oncology, the kidney cancer patient organisation avec, and Ono Pharmaceutical. (1/2)
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IKCC Kidney Cancer retweetledi
Digestive Cancers Europe
Digestive Cancers Europe@dice_europe·
As we mark the end of #ECCAM2026, we are proud to spotlight the DISCERN project, an EU-funded initiative in which DiCE, alongside our partners @P_C_E_, @IKCCorg, and Instytut Medycyny Pracy w Łodzi, ensures that the patient perspective remains central to the research.
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KidneyCAN
KidneyCAN@kidneycan·
Rare kidney cancers require focused research and strong partnerships. The tRCC Project is working to accelerate discovery for translocation renal cell carcinoma (tRCC) by bringing together researchers and patients to better understand this rare subtype. If you or a loved one has been diagnosed with tRCC in the U.S. or Canada, participating can help advance knowledge and future treatment options. Learn more at trccproject.org #AcceleratingCures #KidneyCancerAwarenessMonth #BetterTogether
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IKCC Kidney Cancer
IKCC Kidney Cancer@IKCCorg·
Back in November, IKCC participated in the European Cancer Organisation Summit. Recognising the barriers that patients face across the cancer care pathway is key to advancing the priorities of the cancer community. (1/2)
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KidneyCAN
KidneyCAN@kidneycan·
Scientific progress doesn’t happen in isolation. Research conferences like the Kidney Cancer Research Summit bring together scientists, clinicians, industry leaders, and patient advocates to share discoveries, exchange ideas, and accelerate progress in #KidneyCancer research. These collaborations help turn new insights from the lab into better treatments and care for patients. #AcceleratingCures #KidneyCancerAwarenessMonth #KnowledgeIsPower
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IKCC Kidney Cancer
IKCC Kidney Cancer@IKCCorg·
However, there is still room for improvement. Those who reported less than ‘Satisfied’ still represent approximately 1 in 5 clinical trial participants. (2/3)
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IKCC Kidney Cancer
IKCC Kidney Cancer@IKCCorg·
When asked about their level of satisfaction with their participation in a clinical trial, overall, 2025 Global Patient Survey respondents said they were more satisfied than in the previous survey. (1/3)
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KidneyCAN
KidneyCAN@kidneycan·
Scientists are exploring new tools and technologies, from biomarkers that could guide personalized treatment, to AI-driven tools that help detect and analyze tumors, to combination therapies designed to improve treatment outcomes. Each discovery helps researchers better understand the disease and develop more effective strategies for treating it. Progress takes collaboration, investment, and time, but each step forward brings us closer to more precise, personalized care for people living with #KidneyCancer. #AcceleratingCures #KidneyCancerAwarenessMonth #KnowledgeIsPower
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