LifeArc

At LifeArc, patients are at the heart of everything we do. During this fireside chat, our CEO shares insights from patients that have shaped her perspective, explaining why we must innovate faster and act with a sense of urgency. Watch the full video: t.ly/ITQyq

How can we get effective treatments to rare disease patients faster? Read perspectives from 5 industry experts in the @NewStatesman's rare disease report: t.ly/EyekY

Launched to a positive reception in parliament yesterday, a new report – More trials, better data, faster access – outlines policy changes that would have huge impact for people with rare diseases. 👉 Read the report now: t.ly/LJRi4

More trials, better data, faster access. We worked with @GeneticAll_UK to develop a new report from the LifeArc Translational Centres for Rare Disease Hub, setting out how smarter policy can accelerate rare disease research. Read more 👉 t.ly/LJRi4

We're supporting the DefINe trial, testing the use of deferiprone to treat people with neuroferritinopathy, a disorder which leads to the gradual buildup of iron in the brain and ultimately the death of brain cells. @Cambridge_Uni Learn more: t.ly/HEFgY

Curiosity is where science starts. For #BritishScienceWeek, we’re sharing the stories of our placement students and degree apprentices – what inspires them, what they’re learning and their advice for future scientists. 🔗 Read now: t.ly/wWj3G

C‑Further has announced its first two projects to help children and young people with aggressive cancers. The projects: - an immunotherapy for hard-to-treat cancers - a small molecule therapy for Ewing sarcoma Learn more: t.ly/fztCX @CR_Horizons @GOSHCharity

At LifeArc, we’re committed to creating an environment where everyone can thrive, grow and lead. This #InternationalWomensDay, women from LifeArc share their experience of paying it forward through support and mentorship. 🔗 Read the article now: t.ly/jus6w

How can we ensure tests and treatments for brain health conditions are truly accessible for all? A great discussion between our CEO, Sam Barrell and Niranjan Bose of Gates Ventures at The Brain House, Davos.

On World Book Day, we're sharing 'See Me' from the LifeArc–@Kidney_Research UK Centre for Rare Kidney Diseases. Told in rhyme, it follows a child living with a rare condition, raising awareness of invisible illness and the power of research. 📚 Order now: t.ly/b4ksx

Rare disease innovation needs mission‑driven science. Our CEO explored this on the latest episode of the @NewStatesman podcast, released for #RareDiseaseDay. Listen on Spotify: t.ly/RteOX Listen on Apple Podcasts: t.ly/O_5DG

"We need to do more for people living with a rare disease – they don't have time to wait." Read the @NewStatesman's rare disease report, introduced by our CEO Sam Barrell: t.ly/EyekY

Listen on Spotify: open.spotify.com/episode/2oBuMQ… Listen on Apple Podcasts: podcasts.apple.com/gb/podcast/rar…

Families are reshaping the rare disease landscape – not just as patients, but as advocates and drivers of change too. Our CEO Sam Barrell and parent‑advocate Terry Pirovolakis spoke with the @NewStatesman in a podcast to mark Rare Disease Day. Listen across platforms now.

Nicola lived through the pain of undiagnosed Fanconi Syndrome as a child. Years later, her daughter Emilie began showing the same symptoms. A rare disease shouldn't define generations. Research can change that. #RareDiseaseDay

To mark #RareDiseaseDay, we worked with the @NewStatesman and key industry voices to create a rare disease report looking at where the opportunities lie to create better outcomes for patients: t.ly/EyekY

Today is #RareDiseaseDay. Yesterday’s activation at King’s Cross encouraged the public to stand in support of an often‑overlooked community. We shared patient stories, sparked meaningful conversations, and are proud of the 1,700 people who interacted with us.

Collectively, there are around 7,000 rare diseases, yet the voices of the people and families living with these conditions are rarely heard. Today, we're sharing some of these stories and reminding people of the millions of lives impacted by rare disease. #RareDiseaseDay

To mark #RareDiseaseDay, this week's @NewStatesman magazine includes an important report on rare diseases, featuring key industry voices and our CEO's perspective. Read the report now: t.ly/EyekY

It's brilliant to see the public interacting with our stand by taking photos with our zebra mascots and stamping a pink hoofprint on the wall to represent the 1 in 17 people living with a rare disease. #RareDiseaseDay