Neurofibromatosis Therapeutic Acceleration Program

In case you missed it, our December newsletter is packed with highlights from 2025. - Check out exciting innovations - Learn about upcoming events and resources - Discover how we’re driving impact through entrepreneurship and tech commercialization buff.ly/KjiENf6

A powerful opportunity to advance innovative therapies and repurpose treatments — accelerating discoveries that can translate into real impact for patients. #EndNF #NFResearch #RareDisease #Innovation

NTAP is proud to support @VasuLabUCSF and team's research published in @JCI_insight "Tumor heterogeneity underlies clinical outcome and MEK inhibitor response in somatic NF1-mutant glioblastoma" #EndNF #NFResearch

A powerful tribute to Dr. Verena Staedtke’s vision. Huge congratulations to Dr. Bai, @jblakel3, and the NTAP/JH/KKI teams for this exciting step forward. Grateful for the progress — and hopeful for what’s ahead. #EndNF #NFResearch

A major milestone for the NF1 community. Congratulations to all involved. Here's to continued momentum in NF research and drug development! #EndNF #NFResearch

NF1 Researcher? NTAP launched a Scholars program to support early-career PhD-level scientists. LOIs are due on October 20th. Apply today!

1 day way! Join us tomorrow at 10AM for the Francis Collins Scholars Information session.

Are you an early-career clinician-scientist? Ready to make an impact on NF1 research? Join us for an information session on the Francis Collins Scholars Program. Wednesday, October 1, 2025 @ 10 AM EST 🔗 Register here: forms.office.com/r/nGqDFnN2B3 #Research #EndNF #NF1

Great to host @vlmerker yesterday! She highlighted how many with NF1 lack access to specialty clinics-and how decentralized trials + virtual interventions can help bridge the gap. Exciting work on NF1-health surveillance & proposed mobile apps for pain management.#EndNF #research

Fueling the next wave of NF research: Nearly $1.5M in Young Investigator Awards will drive cutting-edge science, smarter care & real solutions for NF1, NF2-SWN & SWN. Meet the early-career scientists shaping NF’s future: ctf.org/news/yia2025/

App open thru 9/8! Junior faculty, fellows, postdocs & PhD students in #NFresearch—apply now for the NFYIF: a career-catalyzing event for mentorship, productivity & community info.ceconcepts.com/nfyif-001 #EndNF #Neurofibromatosis #YoungInvestigators #PostdocLife #PhDlife #ceconcepts

Incredible time for the Francis Collins Scholars community! Our 7 summer interns shared powerful NF1 research on MPNST, optic gliomas, GI symptoms & neuropsychiatric profiles. Huge thanks to mentors & supporters! #FrancisCollinsScholars #NFResearch

🚨Updated Criteria! NTAP @HopkinsMedicine is funding early-career PhD (or equivalent) scientists focused on NF1 🧬 Learn more: NF1 Laboratory Scholars Program—mentorship, salary + project support! 🔗n-tap.org/who-we-are/new… · LOI due: Oct 20, 2025 #EndNF

🚨 Just 20 days left! 🚨 Apply by Aug 13 for up to $50K from the DHART SPORE DRP & CEP Awards to support NF1 & Rasopathy research. Open to clinical, population & basic science investigators. 🔗 dhartspore.org/about/developm… #NF1 #ResearchFunding #DHARTSPORE

🚨 Double the funding, double the chance! Apply now for the DHART SPORE Developmental Research Program (DRP) & Career Enhancement Program (CEP) Awards. Don’t miss out! 🔗 Apply here: #SPORE202508" target="_blank" rel="nofollow noopener">indianactsi.org/funding/opport… 🗓️ Deadline: August 13, 2025

The cancer center’s D. Wade Clapp, MD, and colleagues have published their latest findings in the Journal of Neuro-Oncology. Learn more: ow.ly/elPY50Win4s. #ResearchCuresCancer #NCIcomprehensive @JNeurooncol

We're excited to have @BettegowdaMDPHD from @HopkinsNsurg join us this week for our #Neurosurgery Grand Rounds!

Congrats! Excited to see the next generation of scientists driving discovery for the NF1 community. Make this summer count! 🔬🧬 #NF1 #Research #FutureScientists #SummerInterns #TeamScience

Pipeline of experts advances discovery in neurofibromatosis hub.jhu.edu/2025/07/15/pip… via @HubJHU Accepting applications now for the 2026 Francis Collins Scholars Program. #EndNF #NFResearch

🧬 Help Advance Genomic Interpretation—Join a CAGI7 Challenge! Sage Bionetworks is excited to support the recently launched CAGI7 (Critical Assessment of Genome Interpretation) challenges—open to researchers, data scientists, and students who want to help predict the functional impact of genetic variants. 8 challenges are already open for submission. These include: 🔹 BARD1: Predict how single nucleotide variants affect RNA abundance and cell survival—using data from saturation genome editing of a key tumor suppressor gene. 🔹 ARSA: Predict the stability of 8,867 missense variants in Arylsulfatase A, linked to the lysosomal storage disorders. 🔹 ATP7B: Model the functional effects of ATP7B missense variants—key to understanding Wilson disease, a disorder of copper metabolism that affects the liver and brain. Work with cutting-edge data, get credit, and contribute to a global open science effort to improve genetic prediction models. ➡️ Explore the open challenges and register today genomeinterpretation.org #CAGI7 #openscience #datachallenges