National Bleeding Disorders Foundation

You don't need all the answers all at once. Steps for Living is built for the moments when a new question comes up, and you just need help figuring it out. Find your answer: bit.ly/3PfbDFO. #NBDF #BleedingDisorders #StepsforLiving

NBDF’s Virtual Health Equity Summit kicks off this week, May 11–12, from 1–5 PM EST. Don’t miss your chance to be part of it. 🎟 Free & open to all 🔗 Register now: bit.ly/3ZVIWj6

Today is World Hemophilia Day, a global moment to raise awareness, share knowledge, and advocate for better care and access for people with bleeding disorders. On April 17, we stand with the global bleeding disorders community in recognition, solidarity, and action.

Camp changes lives. Confidence grows. Friendships form. Kids realize they are not alone. Nominate them by Friday, April 17th: bit.ly/4lciRGu

If your diagnosis is rare, finding information that fits can feel challenging. Steps for Living brings together trusted resources designed to support you, no matter how rare your condition may be. Find what applies to you: bit.ly/4sRmzHR #NBDF #StepsforLiving

Health is a human right. This #WorldHealthDay, we’re raising awareness about the importance of accessible and equitable healthcare for all. Today and every day, let's commit to building a healthier future for everyone. #nbdf #advocacy #bleedingdisorders

Period lasting longer than 7–10 days? Bleeding that won’t stop? Easy bruising or frequent nosebleeds? These symptoms aren’t something to ignore, and they could be signs of a bleeding disorder. 💬 Early awareness leads to earlier care. 🔗 Learn the signs: bit.ly/3MxkVMb

This month, our community showed up, shared stories, advocated for change, and strengthened the future of care and access. And the work doesn’t stop here. Because progress is built every time the community and advocacy move forward together.

Every policy change starts with someone speaking up, and that someone could be you. 🔥 Your voice today can shape a better future tomorrow. 🔗 Turn your story into action at bit.ly/4lmOSM0 #BleedingDisorders #BleedingDisordersCommunity #NBDF #Advocacy

Steps for Living isn’t something you visit once. It’s a resource you return to as life changes, questions come up, and decisions evolve. Bookmark so you're ready when life changes. Learn more: bit.ly/4lxwdgm. #NBDF #BleedingDisorders #StepsforLiving

NBDF is hosting a high-energy livestream packed with live music, bold conversations, community voices, and real-time connection. This is your front-row seat to what’s happening right now in the bleeding disorders community. Tune in. Be part of it. 🔗 bit.ly/3ZwrRvV

Advocacy starts with a story. And every policy that protects care, access, and coverage began with someone speaking up. During Bleeding Disorders Awareness Month, we’re elevating the voices of patients, families, and caregivers who turn lived experience into real change.

You don’t have to be an expert to be an advocate. If you’ve shared your story, you’re already making an impact. 💙 Nobody tells your story better than you. 🔗 Learn how your voice creates change at bit.ly/4lmOSM0

This is what awareness looks like. It’s stories shared. Connections built. Voices amplified. Bleeding Disorders Awareness Month is a reminder that community is the foundation, and together, we are stronger. #BleedingDisordersCommunity #BleedingDisorderAwarenessMonth #NBDF

We are proud to recognize and thank the sponsors of Educate to Elevate for their commitment to advancing education and empowering the bleeding disorders community. Thank you to: Sanofi, Kedrion, Genentech, Pfizer, and Westmount Partners, LLC

Not sure where to start after a bleeding disorder diagnosis? Steps for Living is designed for moments like this, when you need clear, trusted information without feeling overwhelmed. Take the first step towards understanding: bit.ly/4lbcDX8? #NBDF #BleedingDisorders

Through the Jason Fulton Memorial Leadership Fund, his vision continues to empower young leaders in our National Youth Leadership Institute. Honor Jason’s legacy with a gift that carries his impact forward. 🔗 bit.ly/3NsZCvC

We’re bringing our entire community together for a night of energy, music, real talk, and powerful moments you won’t want to miss. Come for the music. Stay for the message. Leave feeling connected. 🔗 Learn more at: bit.ly/3ZwrRvV

We are proud to recognize Westmount Partners, LLC as our Community Sponsor for Educate to Elevate. Thank you, Westmount Partners, LLC, for standing with us and investing in awareness, access, and impact. #EducateToElevate #NBDF #CommunitySupport #Gratitude

Update for the hemophilia B community. CSL Behring has announced a temporary global stockout of HEMGENIX. The company states the disruption is not related to safety or effectiveness, but to manufacturing complexity and regulatory standards. Read more: bit.ly/472Pkcs