OurBrainBank

Not only is palliative care misunderstood, it's often barely discussed and then only near the end. Glioblastoma patients should be told about it from DAY ONE. Part of our GBM Bill of Rights. #GBM #GBMRights

Brava! Navigators are an incredible resource for people diagnosed with glioblastoma. Thank you for all you do.

A beautiful speech by Baroness Julie Elliott, speaking about my late sister Margaret and how she learned of her glioblastoma diagnosis. Thank you to @JulieExMP and @DrScottArthurMP for all your work introducing the Rare Cancers Bill, and congratulations on getting it this far.

Give: secure.givelively.org/donate/ourbrai…

OurBrainBank's year in photos: youtu.be/foPE9mgnXGI

2025 was a big year. • Presented our Glioblastoma Disparities Survey at SNO & ASCO • Close to launching our DANO-GBM (Digital Assessment Neuro-Oncology for GBM) project with Harvard Please consider a gift so we can reach our goal of $15,000 in 2025. (links in comments)

Sad to see this, but understand. If you'd like to connect with others affected by glioblastoma, please find us elsewhere: BlueS** FaceB**k Ins*a YouTu**

RIP @KinsellaSophie. Heavens are richer today because of you 💔 @NBTStweets @theABTA @ourbrainbank @StacheStrong @shitscaredmum #braincancer #Glioblastoma #gbm #btsm

Each time we talk about glioblastoma treatment, we say there's been little innovation in decades — unlike many other cancers. Bravo to @imvax_inc for their efforts to change that.

@imvax_inc Good news. GBM NEEDS more research and innovation. Thank you.

Newly diagnosed #glioblastoma often proves fatal within 12-15 months. After 20 years without a change to the standard of care, our Ph 2b study of IGV-001 shows potential to give patients more time and provides real hope to the ndGBM community. More here: bit.ly/4rxZlqs

Please give today and help us to help people living with glioblastoma.

Help us help people living with glioblastoma on Giving Tuesday - mailchi.mp/adbde2bf5f17/g…

Press release: 66% OF GLIOBLASTOMA PATIENTS NEVER OFFERED A CLINICAL TRIAL Disparities in Glioblastoma Care Expose Systemic Failures ourbrainbank.org/disparities-re…

Please give to OurBrainBank on Giving Tuesday, Dec. 2nd. Our goal: turn glioblastoma from terminal to treatable secure.givelively.org/donate/ourbrai…

66% OF GLIOBLASTOMA PATIENTS NEVER OFFERED A CLINICAL TRIAL Disparities in Glioblastoma Care Expose Systemic Failures - mailchi.mp/d157bcc4602e/g…

@OncLive @NeuroOnc Ex. Dir. Kelli Duprey will be there, happy to talk about our GBM Disparities survey — selected for the 2025 Health Disparities & Quality Improvement Award.

🌺We're trading in those winter coats for our best Hawaiian shirts at #SNO2025! From November 19–23th, OncLive will be on site in Honolulu bringing you updates on the latest advances in neuro-oncology! Reach out to our editors below to spotlight your research!✈️ @NeuroOnc

“It sounds funny, but itch your nose before the radiation mask goes on!” That’s just one of the patient-tested tips shared by people who’ve been through #braintumor radiation therapy. Check out all nine insights: braintumor.org/news/9-patient…

Help Us Improve Clinical Trials for Glioblastoma Patients! The Pennsylvania State University invites you to participate in a research study to better understand the perspectives of patients and caregivers regarding clinical trials for glioblastoma and high-grade gliomas. Your input will guide future treatment approaches and enhance patient-centered care. Who Can Participate? Adults aged 18 or older who are: Diagnosed with glioblastoma or high-grade glioma, OR Caregivers of someone with glioblastoma or high-grade glioma. What's Involved? Complete an anonymous online survey that takes about 5 minutes to 15 minutes of your time. The survey will include questions about: Your experiences as a patient or caregiver. Your treatment priorities. Your views and preferences regarding clinical trials. Why Participate? Your participation can: ·      Help researchers understand what matters most to patients and caregivers. ·      Contribute to improving clinical trial designs and advancing glioblastoma research. How to Participate? Join now! Participation is voluntary, anonymous, and confidential. Access the survey via the link or QR code below. pennstate.qualtrics.com/jfe/form/SV_eM… Make a Difference in Glioblastoma Research Thank you for considering this opportunity to make a difference in healthcare innovation! @AsgeirJakola @WeTrialshub

Going to #SNO2025? Come to our sessions and view our poster #GBM #glioblastoma #TTF #GBMRights #GBMDisparities