PBC Foundation

We Need You! We are calling for change and your voice must be heard . If you are part of the #PBCCommunityThis is one of the most important moments in our history. Please take time from your day to read and have your say here: pbcfoundation.org.uk/we-are-asking-… #PBC #Sign #Share

Yesterday Caroline McGinlay completed the Loch Ness Marathon for three wonderful charities. PBC Foundation, Sands and Marie Curie. Amazing!! Well done Caroline. Please support, read and share her emotional and inspiring story. donate.giveasyoulive.com/fundraising/ma… Thank you Caroline!

Good Luck to Caroline McGinlay who is running the Loch Ness Marathon for three wonderful charities tomorrow. PBC Foundation, Sands and Marie Curie. Please support, read and share her emotional and inspiring story. donate.giveasyoulive.com/fundraising/ma… Thank you Caroline and Good Luck!!!

Sports and Supercars in the Glen, Dunfermline! Sunday 24th August 10am - 1pm Pittencrieff Park Dunfermline Please support this wonderful event in the Link below. All welcome to come along and support a wonderful event. justgiving.com/page/jimmy-mas…

Yorkshire Three Peaks Challenge for PBC Please support Josh Goodman as he takes on the Yorkshire 3 Peaks Challenge this weekend—24 miles, 3 mountains, and over 5,000 feet of climbing—all in one day. Good Luck justgiving.com/page/josh-good…

Good Luck to Michael Shah who running the Scottish Half Marathon today for the Foundation. Please support and share Michaels story on the link below; justgiving.com/fundraising/Mi…

Sports and Supercars in the Glen Sunday 24th August 10am - 1pm Pittencrieff Park Dunfermline Please support this wonderful event in the Link below. All welcome! Please come along and support a wonderful event. justgiving.com/page/jimmy-mas…

Michael Shah is running the Scottish Half Marathon on the Sunday for the Foundation. Please support and share Michaels story on the link below; justgiving.com/fundraising/Mi… Good Luck!!

Michael Shah is running the Scottish Half Marathon on the 17th of August for the Foundation. Please support and share Michaels story on the link below; justgiving.com/fundraising/Mi… Good luck!!

Sports and Supercars in the Glen Sunday 24th August 10am - 1pm Pittencrieff Park Dunfermline Please support this wonderful event in the Link below. All welcome! Please come along and support justgiving.com/page/jimmy-mas…

The PBC Foundation is at BSG LIVE’25 in Glasgow this week! The event runs from 23rd – 26th June 2025. If you're attending, drop by booth F1 and talk to Mo (Head of Patient Services) and Cheryll (Patient Services Manager) about all things PBC! #PBC #BSGLIVE25

Good Luck to Jamie, Mairi, Girvan, Taylor, A D, John and Jay who are running the Edinburgh Half Marathon tomorrow. Please read their story and support on the page below; justgiving.com/fundraising/Ma…

Jamie, Mairi, Girvan, Taylor, A D, John and Jay will be taking on the Edinburgh Half Marathon on Sunday the 25th of May. Good Luck Please read their story and support on the page below; justgiving.com/fundraising/Ma…

Team BASL drumming up business at EASL😀

Holistic care for people with #PBC starts with listening. 💬 At a pre-congress event on consensus endpoints in PBC, patients, clinicians, regulators & industry sat at the same table, sharing needs, emotions & goals. Learn more: easlcongress.eu/consensus-conf… @EASLnews #EASLcongress #LiverX

@EASLnews @analleo @PhilTroke @PBCFoundation @PBCers Fatigue in #PBC is not “just a symptom.” 👉Up to 30% of patients with severe fatigue are in disability schemes. 👉It affects daily function & quality of life. We must rethink how we measure & prioritise fatigue in trials and care. #EASLCongress #LiverX

@EASLnews @analleo @PhilTroke @PBCFoundation @PBCers @CarrieFrenette @LiverNotFighter @JesusMBanales @CholestasisDoc 🌍 Challenges in PBC care differ across the world. We must understand quality of life in diverse contexts. There’s no perfect solution but by bringing together each perspective, we move closer to meaningful, inclusive care. @EASLnews #EASLCongress #PBC #PatientVoice #LiverX

The more we talk about symptoms, the more we ask the right questions: ❓Do you have an itch? ❓Are you fatigued? ❓Can you manage daily life? You won’t make it worse by asking, you may in fact uncover something the patient wasn’t comfortable sharing. @EASLnews #EASLCongress #PBC #PatientCare #LiverX

We are thrilled to welcome Rebecca West to the PBC Foundation as our new Head of Research and Education. We encourage you to meet Rebecca at EASL next week or visit our booth. #PBCFoundation #PBC #PrimaryBiliaryCholangitis @electricdreamz

Congratulations to all our London Marathon runners. Outstanding performance- we hope you all had a great day. There will be some sore legs today. Photos to follow. Still time to read their stories and support on the link below. pbcfoundation.org.uk/get-involved/f…

Today is the day - London Marathon 2025! Good luck to our amazing 10 runners who have gone above and beyond to train and raise funds. Have a great day and enjoy the run. Please check out all their stories and support on the link below. pbcfoundation.org.uk/get-involved/f…