Soft Bones HPP

One week left to register! ⏳ Calling all Northwest Region HPP members. Meet us in Penn Valley, CA! Join us for an in-person luncheon on May 17, 2026, from 11 AM -2 PM Pacific Time. 📅 Registration is required and closes May 3rd. Register today! ow.ly/RgrV50YNp7i

Last chance to register! ⏳ Do you live in Texas or Louisiana? Meet us in Azle, TX! Region Lead, Cassandra S., is hosting an in-person get-together on April 30th. OneSource Case Managers, Sandi Tefft and Kayla Wehrend, will be in attendance. Register! app.dvforms.net/api/dv/9vydye

Spring into savings for a cause! 🌸 Celebrate the season with purpose! From April 22–29, enjoy 20% OFF everything in our Soft Bones Spreadshop. Every purchase helps raise awareness and support the HPP community. Shop below: ow.ly/kO2J50YIf9U #SoftBonesHPP #HPPCommunity

Do you live in Texas or Louisiana? If so, this is a friendly reminder to register for the South Central in-person Region Meeting on April 30th at 5 PM Central. Registration is required and closes April 27th. Join us below: ow.ly/m45R50YN2sS #SoftBonesHPP #RegionMeeting

Attention all UK HPP members! Friendly reminder to register and join Ash F. and Meryl C. tomorrow at 7 PM GMT for an HPP AND ME Zoom Chat. This is open to HPP families in the UK. We’d love to see you there! Please register below: ow.ly/ttO450YIPkg #SoftBonesHPP

Happy Volunteer Appreciation Week! Nonprofits like Soft Bones could not create meaningful change without the incredible dedication of our volunteers. To everyone who has given their time and talent this year, THANK YOU for being such an essential part of our work. #SoftBonesHPP

Thank you to everyone who attended our HPP AND ME Zoom chats this week. We hope you enjoyed it and got what you needed from the meeting. Mark your calendar for our next one on Tuesday, May 12th, at 8 PM Eastern. Register below. ow.ly/80rF50YKzFg #SoftBonesHPP

Need a place to unwind before or after the National Patient Meeting? Coolidge Park is a scenic spot right on the waterfront with plenty of open space and places to sit and relax. It features a 100-year-old carousel, an interactive play fountain, and the Chattanooga Center.

Friendly reminder! Join us tomorrow at 8:00 PM Eastern for an #HPPANDME Zoom Chat! Connect with others and share your HPP journey. Let’s come together and grow this incredible community! Registration is required. Join us below. ow.ly/fBO750YF7p1 #SoftBonesHPP

Join us for the South Central in-person Region Meeting on April 30th at 5 PM Central. Come ready to mingle, talk about HPP, and meet others living with HPP. We hope to see you there! 📅 Registration is required and closes April 27th. Register below: app.dvforms.net/api/dv/9vydye

There's still time to complete the In-Utero Enzyme Replacement Therapy survey on the myPP app. It only takes five minutes. This is your chance to directly influence research that could impact future generations of families living with HPP. Learn more: ow.ly/6c2C50YIaU7

Friendly reminder! Join us tomorrow at 1:00 PM Eastern for an #HPPANDME Zoom Chat. Meet the faces behind the names, talk about HPP or life in general, and connect with others! Registration is required. Join us below. ow.ly/LJeV50YF6KR #SoftBonesHPP #HPPCommunity

Calling all HPP members across the pond! Our next UK HPP AND ME Zoom chat, hosted by Ash F. and Meryl C., will take place on April 21st at 7 pm GMT. This is your chance to connect and ask questions. Don’t miss out! Register: ow.ly/mC6750YFO0s #SoftBonesHPP #HPPCommunity

🚨 Calling all Teen Advisory Council (TAC) members! Our next TAC meeting is on April 13th at 8 PM Eastern. Please check your email or text to let us know you’re in. See you soon! Interested in TAC? View eligibility below: ow.ly/95V450YGFYG #SoftBonesHPP #HPPCommunity

New Podcast Alert! What happens when a physical therapist becomes the patient? In this episode, Adam joins guest host Cindy Reasor and shares what it’s like to navigate HPP from both sides of care. Tune in below: ow.ly/kLW650YF0bW #SoftBonesHPP #HPPCommunity

Are you familiar with #HPPANDME? It is an online community forum that connects HPP patients and caregivers. Ask disease-specific questions and share experiences in a secure, welcoming environment. Join the conversation: ow.ly/giGx50YFbP9 #SoftbonesHPP #HPPCommunity

Friendly reminder to register for the Northwest In-Person Region Meeting. Catch up with your Region Leads and connect with others in your area. 📅 Registration is required and closes May 3rd. Be sure to reserve your spot below! ow.ly/Nl0750YCtXs #SoftBonesHPP

Spring into style with Soft Bones merch for you, your family, and your friends just in time for warmer weather. April deals are here! Every purchase supports Soft Bones and helps spread awareness every time you wear it! 🌸 Shop now! ow.ly/Kj5p50YEAFN #SoftBonesHPP

What do Soft Bones and March Madness have in common? @BillRaftery! Bill was our first guest on the Cannon Unbroken podcast and has been adding colorful commentary from the sidelines to this year’s NCAA men's postseason. 🎧 Tune in! ow.ly/Xcsw50YEGp7 #SoftBonesHPP

⏳ One week left to register! Join us on April 25 at 11 AM ET for our Northeast Region In-Person Meeting near Times Square. Meet others in the community and enjoy a casual lunch. 📅 Registration closes April 11. Secure your spot today! app.dvforms.net/api/dv/8l9lzr #SoftBonesHPP