Tourettes Action

Yes, Tourette’s does have a huge impact on the lives of those with Tourette’s & their families & yes it hurts. BUT, the right support can make a huge difference💚 #TourettesHurts #Tourettes youtu.be/_Y8KOC863bs?si…

We’re shaping this year’s Tourette’s Awareness Month campaign and we want to make sure the messaging truly reflects you – our community. Can you spare a moment to help? We’ve put together a short anonymous form to gather your views 👉 Take part here: buff.ly/Y2xXzbQ

Our friends @TicYorkshire are going through a very difficult time, they've lost their main funding bid & may be forced to close. They support over 900 families - closure would hit the community hard. If you're able to support, please reach out to them. buff.ly/2Lpzhes

Some of my friends are taking on the London virtual marathon raising money for @tourettesaction The crazy person in my head told me it would be a good idea to join them! This mornings run wasn’t pleasant 🤣 If you’d like to donate you can here justgiving.com/page/paulandma…

Over the past week, the Tourette’s community has come together in a way we’ve never seen before. Read more here: facebook.com/share/p/1EK4ED…

Over recent weeks, our community has faced an unprecedented wave of online trolling, misinformation, and targeted mockery. Following the extremely difficult events surrounding the BAFTAs, many people with Tourette’s have been struggling. Read more here: buff.ly/S2Vfxot

@Moondancer1972 We will be share all support with John

Is there a way to contact Mr John Davidson or can someone pass on messages of support? @tourettesaction

Our impact report for April 2024 to March 2025 is now live. Read the report here: tourettes-action.org.uk/storage/downlo… As CEO @EmmaJMcNally reflects, the year has been “one of both challenge and incredible progress,” driven by the courage and honesty of the #tourettes community.

During what has been a very difficult week I’ve been contacted by many people. Lots have asked how they can support or donate to us. Donate here tourettes-action.org.uk/47-donate.html a simple way to offer support is to share our content to enable us to reach and support more people

Read our CEO @EmmaJMcNally statement here: facebook.com/share/p/186fof… In moments like this, we are reminded of our shared responsibility: not to divide, but to educate. It’s not a case of “them and us,” but of moving forward together with empathy, and a commitment to understanding

Amazing 💚 variety.com/2026/film/news…

To mark #TourettesAwarenesssMonth @AutismWales are planning to record audio discussions with people living with #Tourettes . They are seeking Welsh speakers to take part. If you are interested in taking part, please contact by email: autismwales@wlga.gov.uk

Listen in from 27.25 minutes where Mikey John talks about his upcoming challenge of 6 half marathons in 6 months. His first one is on Saturday at Aberdare, we are wishing him lots of luck. Go Mikey!!! buff.ly/IOrVoRp

Lee Waters MS discussed in @SeneddWales the need for a national plan to improve #TouretteSyndrome services View here buff.ly/oV8Aalj Members were in agreement - theres a lack of consistent specialist support across #Wales & the lack of @nicecomms further compounds this

We're thrilled to report that Lee Waters MS has secured a short debate in @SeneddWales on 21st January on the need for a national strategy to improve the services for #TouretteSyndrome Please contact your Member of the Senedd asking them to attend to support this vital debate

eLearning module for GPs and Health Professionals: buff.ly/wrdlKtz Dedicated to Ruth Szymankiewicz, who tragically ended her life at just 14 years old. Her mother, a GP herself, was the driving force behind it. Her hope is we can change the story for other children.

We're thrilled to launch our new animation video - specifically for people who have just gained a diagnosis of #TouretteSyndrome. It will help them make sense of things and understand the complexities of the condition buff.ly/t0vzTgE #Tourettes #Psychoeducation

Please take 2 minutes to nominate Tourettes Action to be in with the chance of winning £1000 Nominate here: #nominateACharity" target="_blank" rel="nofollow noopener">movementforgood.com/index.php?cn=1…

We are so proud of one of our Tourettes Advisory Panel members, Paul Stevenson, for his incredible work on the #Backthe1in6 and Beyond programme for 24/25. His lived experience and advocacy continue to make a real difference for our community.

We only went and did it!!! A HUGE thank you to you, our wonderful community who have yet again stepped up to help. With your help we hit our £50,000 target that will be used to go towards funding our fest weekends in 2026 Much love a very tired Emma McNally x

⌛ There are just 24 hours left to double your donation! ⌛ Help us hit £50K and keep Fests alive for 2026! River’s met his best friend in the WHOLE world at our fests. Help others make that connection when they need it most. Donate here: buff.ly/Ui224GF #BigGive