Transplant Families

A proven EBV+ PTLD treatment exists. Europe has it. U.S. families don't. No FDA-approved treatment. No time to wait. Sign the petition 👉 change.org/EBVPTLDCantWait #EBVPTLDCantWait #PTLD #RareDisease

When does Fontan circulation lead to transplant? At #PTC2026, Dr. Humera Ahmed will review the Fontan pathway, complications over time, and how families can prepare for transplant referral and evaluation. April 24, 2026 Free registration Register: transplantfamilies.org/ptc2026

Life after transplant brings emotional challenges for families. At #PTC2026, Drs. Kristin Neil, Lauren Esposito, and Courtney Smith will present Supporting Families’ Emotional Wellness After Transplant. Register: transplantfamilies.org/ptc2026

A heartfelt THANK YOU to @COTA for co-sponsoring the 2026 Pediatric Transplant Conference! 💙 Your support keeps this event FREE for transplant families across the country. We are so grateful for your partnership. cota.org | #PTC2026 #ThankYou #COTA

Our Kidney Month highlight is IROC Family Partners, a patient & family-driven community within IROC supporting pediatric kidney transplant families. See how they partner with Transplant Families to lift family voices: wix.to/1uW37GC #Transplant #Pediatrics #KidneyHealth

The wait for transplant can be emotionally difficult. At #PTC2026, Dr. Priyanka Doshi of Children's Hospital Los Angeles will present Supporting Families’ Emotional Wellness Before Transplant. Register: transplantfamilies.org/ptc2026

Transplant comes with financial challenges. At #PTC2026, Lisa McDermott, representing the Transplant Financial Coordinators Association (TFCA), will present Navigating Financial Support Before and After Transplant. Register: transplantfamilies.org/ptc2026

Understanding the transplant journey matters. At #PTC2026, Dr. Cory Schaffhausen of SRTR will present the Transplant System Map, including never-before-seen pediatric and transition extensions. Register: transplantfamilies.org/ptc2026

Cardiomyopathy is a leading cause of pediatric heart transplant. At #PTC2026, Dr. Ashwin Lal of Primary Children’s Hospital will present Navigating Cardiomyopathy to Transplant, introduced by the Children’s Cardiomyopathy Foundation. April 24 Register: transplantfamilies.org/ptc2026

Biliary atresia can lead to liver transplant in some children. At #PTC2026, Dr. Tebyan Rabbani will present Biliary Atresia: Bridge to Transplant, introduced by Jen Lau, ED of BARE. April 24, 2026 Register: transplantfamilies.org/ptc2026

What are ventricular assist devices and how do they support children awaiting heart transplant? At #PTC2026, Dr. Tanya Perry will explain how VADs work, when they are recommended, and what families can expect during this phase of care. April 24, 2026 transplantfamilies.org/ptc2026

Why do children need kidney transplants? At #PTC2026, Dr. Stephanie Kervliet will cover common causes, CKD stages, and how families can monitor kidney function using GFR. April 24, 2026 Free registration Register: transplantfamilies.org/ptc2026

Daisy Friedman is 19 years post multivisceral transplant. Her work has premiered at Sundance. Transplant is part of her story. It is not the limit of it. This is what long-term transplant success can look like. April 24: bit.ly/TFPTC2026 #RoadToTransplant

Kristin Hunt is 31 years post kidney transplant. Medical setbacks. Major milestones. Still skiing. Still traveling. Still living fully. This is what long-term transplant success can look like. April 24 bit.ly/TFPTC2026 #PediatricTransplant #RoadToTransplant

Heart transplant at age two. 41 years later, still going strong. Plus 27 years with a transplanted kidney. This is what long-term transplant success can look like. Join us on April 24 to hear Lizzy's story: bit.ly/TFPTC2026 #PediatricTransplant #RoadToTransplant

Some of our keynote speakers are 40 years post-transplant. Yes. Forty. Come hear what long-term life after pediatric transplant truly looks like. April 24 Free registration: bit.ly/TFPTC2026 #PediatricTransplant #RoadToTransplant

Registration is officially OPEN. 💚 Join us for the 2026 Pediatric Transplant Conference 📅 Friday, April 24, 2026 ⏰ 11:00 AM to 4:30 PM EDT Free registration thanks to our sponsors. Save your spot now: bit.ly/TFPTC2026 #PediatricTransplant #RoadToTransplant

Registration is officially OPEN. 💚 Join us for the 2026 Pediatric Transplant Conference 📅 Friday, April 24, 2026 ⏰ 11:00 AM to 4:30 PM EDT Free registration thanks to our sponsors. Save your spot now: bit.ly/TFPTC2026 #PediatricTransplant #RoadToTransplant

January is usually about fresh starts and hopeful resets. This year feels heavier. Our latest newsletter makes space for the truth many transplant families and clinicians are living right now: it is okay to pause. Read more. Wellness in Rest wix.to/wlWevDJ

Thank you! Thank you so much for your support yesterday! We couldn’t do it without you, and we’re so proud to be part of this community. Stay tuned for exciting events and activities in 2026!