BEAT-PCD (ERS CRC)

2.4K posts

BEAT-PCD (ERS CRC)

@beatpcd

@EuroRespSoc Clinical Research Collaboration - Multidisciplinary network coordinating research & improving clinical care of Primary Ciliary Dyskinesia (PCD)

Katılım Eylül 2015

196 Takip Edilen788 Takipçiler

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BEAT-PCD (ERS CRC)@beatpcd·4 Şub

Save the Date! The inaugural Global PCD Conference will take place in August 2026 in Montreal, Canada! Global PCD 2026: International Scientific Conference Wednesday, August 19th - Saturday, August 22nd More details and registration information coming soon!

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Yin Ting Lam@YinTing_Lam·6 Mar

Please be aware that the Global PCD Conference replaces the pre-ERS PCD annual meetings. More details will follow here Global PCD conference 2026 — BEAT-PCD

BEAT-PCD (ERS CRC)@beatpcd

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Lena Group Respiratory Hub 🫁@Lena_Group4Resp·3 Mar

Day 2 #RTI2026 is underway, diving into ‘Infection and their Friends’ – from NTM and chronic lung conditions to bronchiectasis. Highlights - Lucy Morgan’s talk on difficult respiratory infections alongside dynamic poster sessions with expert faculty feedback. More updates coming!

Lena Group Respiratory Hub 🫁 tweet media

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Lena Group Respiratory Hub 🫁@Lena_Group4Resp·3 Mar

What a great start to #RTI2026 at @gsc1. Global experts addressing respiratory challenges & advance better patient solutions. Day 1 featured advances in RTI diagnosis, bronchiectasis treatment and pleural infection. Congratulations to Rising Stars Tommaso Morelli & Amy Gilmour

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BEAT-PCD (ERS CRC)@beatpcd·28 Şub

As we celebrate Rare Disease day, we are very pleased to let you know that the new patient information page on Primary Ciliary Dyskinesia (PCD) is now live on the @EuropeanLung (ELF) website: europeanlung.org/en/information…

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Mine Yüksel Kalyoncu@minee_yuksell·23 Şub

Looking forward to our upcoming BEAT-PCD Expert Talk🫁 🎙 Dr Bruna Rubbo 📅 25 Feb 2026 | 17:30 CET 🌍 Automatic translated captions in multiple languages Register: beat-pcd.squarespace.com/events/https/w… #BEATPCD #PCD #RareDiseases

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BEAT-PCD (ERS CRC)@beatpcd·22 Şub

Conversation with Myrona Goutaki @EuropeanLung @mgoutaki europeanlung.org/en/news-and-bl…

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BEAT-PCD (ERS CRC)@beatpcd·6 Şub

This highlights the potential underdiagnosis of PCD in bronchiectasis cohorts: six individuals with previously unrecognised PCD were identified.

Mathieu Bottier, PhD@mathieu_bottier

Sharing the preprint of our @EMBARCnetwork cilia cohort study on upper airway ciliary dysfunction in bronchiectasis while the manuscript is under review: doi.org/10.64898/2026.… Patients with bronchiectasis show reversible upper airway ciliary dysfunction during stable disease.

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BEAT-PCD (ERS CRC)@beatpcd·4 Şub

@PCDFoundation @ErnLung We invite abstract and poster submissions, with a submission deadline of April 2, 2026. Additional information regarding submission guidelines, formatting, and instructions will be provided soon.

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BEAT-PCD (ERS CRC)@beatpcd·4 Şub

The Global PCD Conference, jointly organized by the @PCDFoundation, @beatpcd and @ErnLung, builds on the strong foundation established by successful PCD-and bronchiectasis-focused meetings held across Europe and North America.

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BEAT-PCD (ERS CRC)@beatpcd·4 Şub

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Yin Ting Lam@YinTing_Lam·29 Oca

Join us when @bruna_rubbo shares her expertise in longitudinal lung function variability in #PCD Register here beat-pcd.squarespace.com/events @beatpcd @minee_yuksell @unisouthampton @EarlyCareerERS

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Lena Group Respiratory Hub 🫁@Lena_Group4Resp·9 Oca

🗓️ Save the date in your calendar! 📍 The 1st European Workshop on Bronchiectasis and Chronic Cough in Children and Adolescents will take place on February 26–27, 2025 in Bergamo, Italy. 👉 Learn more and register now on the website: paediatricbronchiectasis.org #bronchiectasis

Bergamo, Lombardia 🇮🇹 English

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BEAT-PCD (ERS CRC)@beatpcd·5 Oca

In addition, we would like to send a reminder of the invitation to complete a BEAT-PCD survey on the availability of genetic screening for HYDIN variants in PCD centres. Please complete this short survey on your centre's approach by Jan 14th 2026 forms.gle/FYkafwr3juBEuX….

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BEAT-PCD (ERS CRC)@beatpcd·5 Oca

Please find on our website the issue 12 of our newsletter. It contains an update on BEAT-PCD activities and projects, a report on the annual PCD research meeting in Amsterdam, and information on upcoming events: beat-pcd.squarespace.com/newsletters

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Mathieu Bottier, PhD@mathieu_bottier·12 Ara

I am excited to present my work on « PCD-AID: AI-assisted TEM diagnosis of primary ciliary dyskinesia » in the @ESP_Pathology Webinar Series on AI in Electron Microscopy on Thursday December 18th (15:00 CET) esp-pathology.org/event/esp-webi…

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Mathieu Bottier, PhD@mathieu_bottier·8 Ara

Ten years ago, this very young me in the red shirt attended my first international conference! From learning more about PCD to watching the network grow exponentially, I’ve met so many incredible people along the way. Here’s to the next decade of collaboration!

BEAT-PCD (ERS CRC)@beatpcd

As we commemorate the 10th anniversary of BEAT-PCD, we encourage you to delve into our past achievements and conferences showcased on our website. The image below is from the inaugural BEAT-PCD conference held in December 2015. Visit us at beat-pcd.squarespace.com/research-meeti…

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BEAT-PCD (ERS CRC)@beatpcd·7 Ara

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Lena Group Respiratory Hub 🫁@Lena_Group4Resp·2 Ara

Hear Prof. Amelia Shoemark on why RTI Forum is such a cutting-edge conference, and the importance of such a varied group of international respiratory specialists under one roof. Early fee deadline approaching — register for #RTI2026 at the discounted rate:rti-forum.org/2026/?page_id=…

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BEAT-PCD (ERS CRC)@beatpcd·2 Ara

The 2025 PCD Patient Conference replay is set to launch on our YouTube channel at 6:30 PM this evening. The link will also be accessible on our website's dedicated PCD Patient Conferences page: beat-pcd.squarespace.com/patientconfere…

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BEAT-PCD (ERS CRC)@beatpcd·29 Kas

For anyone who missed it, the replay should be up on our website in a couple of weeks!

BEAT-PCD (ERS CRC)@beatpcd

We would like to thank all the speakers, chairs, panel and support team member, @EuropeanLung, PCD support groups, and of course everyone who attended our annual PCD patient conference! Great talks and discussions once again!

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Keşfet

@gsc1 @EuropeanLung @mgoutaki @PCDFoundation @ErnLung @bruna_rubbo @minee_yuksell @unisouthampton