Cure Sanfilippo Fdn

@JohnWolfeYT @gofundme Thank you so much for choosing Cure Sanfilippo Foundation as one of your fund-a-thon beneficiaries today! We truly appreciate the support in our mission to help children suffering from the rapidly degenerative, and currently fatal disease Sanfilippo syndrome.

Join me for the @gofundme Fund-A-Thon on Friday, May 9th starting at 10am CST! In celebration of 15 years of GoFundMe, we'll be raising money for non-profits as well as individual fundraisers all day long on both my YouTube and Twitch! #GoFundMe15

Save Lydia gofund.me/4856913f

For Palm Coast mom, a TikTok video led to diagnosis of daughter's rare disease news-journalonline.com/story/news/202… via @dbnewsjournal

@BySarahWilson a compelling local story from family in Palm Coast, FL. We hope you might have interest in covering. TikTok influencer helps Mom get little girls' diagnosis. Now they are trying to save her life. Video and story at SavingVeda.com

@kaitlynross1 Thank you for covering Sanfilippo syndrome and the amazing Carrie and Haidyn. Another compelling story here about them. TikTok influencer helps Mom get little girls' diagnosis. Now they are trying to save her life. Video and story at SavingVeda.com

@emlefroy Thank you for covering Sanfilippo syndrome and the amazing Carrie and Haidyn. Another compelling story here about them. TikTok influencer helps Mom get little girls' diagnosis. Now they are trying to save her life. Video and story at SavingVeda.com

@BethTeitell we wonder if you might be interested in covering this compelling story. TikTok leads to little girls' diagnosis. Now they are trying to save her life. 3-minute viral video and story at SavingVeda.com

@juliejargon we wonder if you might be interested in covering this compelling story. TikTok leads to little girls' diagnosis. Now they are trying to save her life. 3-minute viral video and story at SavingVeda.com

@HeySamantha we wonder if you might be interested in covering this compelling story. TikTok leads to little girls' diagnosis. Now they are trying to save her life. 3-minute viral video and story at SavingVeda.com

@EmilyJoshu thank you for covering Sanfilippo syndrome. Another compelling story here, and please contact us if interested. TikTok leads to little girls' diagnosis. Now they are trying to save her life. 3-minute viral video and story at SavingVeda.com

@byTheresaVargas thank you for covering Sanfilippo syndrome. Another compelling story here, and please contact us if interested. TikTok leads to little girls' diagnosis. Now they are trying to save her life. 3-minute viral video and story at SavingVeda.com

@ImDrea thank you for covering Sanfilippo syndrome. Another compelling story here, and please contact us if interested. TikTok leads to little girls' diagnosis. Now they are trying to save her life. 3-minute viral video and story at SavingVeda.com

A Doctor And Mother's Plea To FDA To Help Save Children With Rare Disease #Sanfilipposyndrome #curesanfilippo ibtimes.com/doctor-mothers…

BREAKING: U.S. takes down a second flying object, this time flying over Alaska, White House National Security Council says. nbcnews.to/3HNHu97

A Detroit couple noticed that one of their twin boys wasn't advancing as much as his brother. After some research and raising concerns to doctors repeatedly, he was diagnosed with Sanfilippo syndrome, a neurodegenerative genetic disorder. fox2detroit.com/video/1157625

Family of a Muskego 3-year-old with a terminal illness is raising $1 million for a chance to save her life finance.yahoo.com/news/family-mu… #SavingLiv

Parents hope to raise $1 million to cure 3-year-old diagnosed with deadly genetic disorder tmj4.com/news/local-new… #SavingLiv

Waukesha County family hopes to raise $1 million to find cure for daughter's disorder tmj4.com/news/local-new… #SavingLiv

Muskego family seeks Sanfilippo syndrome cure | FOX6 News Milwaukee youtu.be/Rh6VFwnFq-M via @YouTube @ErinStoop

@CureSanfilippoF I’m a Mom raising $1M to save my 3-year-old daughter We just released a viral video, “Saving Liv,” and it’s already raised over $100,000. Would you consider covering our story? It would mean so much to us. Thank you. Erin (Liv’s Mom) SavingLiv.com