EpiCARE

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EpiCARE

EpiCARE

@EpiCARE_ERN

European Reference Network for Rare and Complex Epilepsies. We are 50 specialist hospitals in 24 European countries with expertise in epilepsy & research.

Lyon, France Katılım Ekim 2017
452 Takip Edilen3.2K Takipçiler
EpiCARE
EpiCARE@EpiCARE_ERN·
🔬 WEBINAR | Don’t Miss Out! "How precision is changing our treatment protocols in childhood epilepsy" 📅 June 26, 2025 | 🕒 5 PM - 6:30 PM | 🎤 Featuring: Prof. Lieven Lagae | ✅ Save your spot now.: us06web.zoom.us/webinar/regist…
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EpiCARE@EpiCARE_ERN·
📍 The 22nd ERN Coordinators meeting with DG SANTE was held at the Ministry of Health in Rome, followed by the meeting with the Board of Member States. Highly interactive sessions during which the work of the ERNs was presented and the need for their sustainability, at the service of patients with rare diseases, underscored by all participants.
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EpiCARE@EpiCARE_ERN·
📍 The 36th International Epilepsy Congress will take place in Lisbon, Portugal from 30 August - 3 September. View the preliminary programme and register for the IEC 2025! ilae.org/congresses/36t… @IlaeWeb
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EpiCARE@EpiCARE_ERN·
📍 The third Nordic Status Epilepticus Meeting will be held on May 22 and 23 in Oslo, and it features some of the leading experts in the field, both internationally and from the Nordic countries. This is an independent scientific meeting that you can attend either in person or online, and it is free of charge! epi-care.eu/wp-content/upl…
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EpiCARE
EpiCARE@EpiCARE_ERN·
𝗘𝗥𝗡 𝗝𝗼𝗶𝗻𝘁 𝗪𝗲𝗯𝗶𝗻𝗮𝗿 – 𝗖𝗢𝗟4𝗔1/𝗔2-𝗿𝗲𝗹𝗮𝘁𝗲𝗱 𝗱𝗶𝘀𝗼𝗿𝗱𝗲𝗿𝘀: 𝘀𝗽𝗿𝗲𝗮𝗱𝗶𝗻𝗴 𝗮𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗼𝗳 𝘁𝗵𝗲 𝗮𝘀𝘀𝗼𝗰𝗶𝗮𝘁𝗲𝗱 𝗽𝗵𝗲𝗻𝗼𝘁𝘆𝗽𝗶𝗰 𝘀𝗽𝗲𝗰𝘁𝗿𝘂𝗺 framaforms.org/registration-t… ✨The continued belief in the importance and benefits of cooperation among the ERNs is upheld!
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EpiCARE@EpiCARE_ERN·
𝐄𝐩𝐢𝐂𝐀𝐑𝐄 𝐦𝐞𝐦𝐛𝐞𝐫𝐬: 𝐫𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐟𝐨𝐫 𝐭𝐡𝐞 𝐰𝐨𝐫𝐤𝐬𝐡𝐨𝐩: “Beyond Seizures: Advancing Holistic Care for Rare and Complex Epilepsies” 🧠✨📅 26 - 27th May 2025 📍 Aalesund, Norway forms.office.com/pages/response…
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EpiCARE@EpiCARE_ERN·
Thank you to all the participants of this conference, and to every essential member of the ePAG. We hope you’re enjoying it, and that we’ll be able to come together again soon 💙
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EpiCARE@EpiCARE_ERN·
Today marks the second and final day of the 1st ePAG Meeting. Among other sessions, the Research Working Group and its survey has been presented, and now, we are helding an engaging Mental Health Workshop, organized by Matt Bolz-Johnson from @eurordis, and Carol-Anne Partridge BSc(Hons) MSc.
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EpiCARE@EpiCARE_ERN·
✨We're very excited to kick off the 1st European Meeting of all associations dedicated to Rare and Complex Epilepsies in Barcelona! It has been coordinated by the ePAG (European Patient Advocacy Group) representatives within EpiCARE, and more than 250 associations have been invited to join.
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EpiCARE@EpiCARE_ERN·
📍 The 12th International Residential Course on Drug-Resistant Epilepsies is being held in Tagliacozzo, Italy. Designed for neurologists, epileptologists, and other healthcare professionals, the course offers in-depth education through expert-led lectures and interactive working groups focused on the complexities of drug-resistant epilepsy.
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EpiCARE@EpiCARE_ERN·
🧠 Join us for our upcoming webinar on May 22th, 2025, from 17:00 to 18:30PM - Topic: 𝐇𝐨𝐰 𝐭𝐨 𝐚𝐩𝐩𝐫𝐨𝐚𝐜𝐡 𝐭𝐡𝐞 𝐌𝐑𝐈 𝐧𝐞𝐠𝐚𝐭𝐢𝐯𝐞 𝐩𝐚𝐭𝐢𝐞𝐧𝐭 us06web.zoom.us/webinar/regist…
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EpiCARE@EpiCARE_ERN·
🧡 We extend our sinceres gratitudes to all of the faculty members who generously shared their expertise through the sessions, as well as to all the participants who contributed to this year's EPIPED. 📸epi-care.eu/event-moments/
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EpiCARE
EpiCARE@EpiCARE_ERN·
Now we will enjoy a Morning Debate: "Do we know enough to defend early surgical treatment in children?" by Alexis Arzimanoglou and Kees Braun.
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EpiCARE@EpiCARE_ERN·
🌊 We wrapped up Friday in one of the most beautiful places of the country. The Costa Brava and Llafranc welcomed us with a seaside stroll and dinner to celebrate the final night of the EPIPED Course.
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EpiCARE@EpiCARE_ERN·
🌍 ☀️ Girona has welcomed 75 participants - mentors and mentees, adult and child neurologists - from 24 different European countries! Today, the EPIPED course kicked off with practical training sessions, rotating through three groups.
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EpiCARE@EpiCARE_ERN·
🗣️We are continuing the sessions in Girona, now with @EugenTrinka, discussing "Acute symptomatic status epilepticus and therapeutical approach to unprovoked seizures that follow". #EPIPED
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