ERN-EYE

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ERN-EYE

ERN-EYE

@ErnEyeEU

https://t.co/hGZjQCukos - ERN-EYE is a European Reference Network dedicated to Rare Eye Diseases.

Strasbourg, France Katılım Ocak 2018
208 Takip Edilen1.2K Takipçiler
ERN-EYE
ERN-EYE@ErnEyeEU·
🚨 Press Release: General Annual Meeting 2026 💡 Topics in focus: ➡️ Latest updates on ORPHANET ➡️ Ongoing revision of HPO ➡️ Insights into the evolving RD landscape ➡️ Updates on @ERDERA_org, #RealiseD, and EVICR.net activities 🔗 Read more: mailchi.mp/4c5c78b55a64/p…
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ERN-EYE@ErnEyeEU·
🎬 Missed our ERN-EYE and Endo-ERN - European Reference Network joint webinar on Blepharophimosis syndrome (BPES)? The replay of our lastest webinar is now available: youtu.be/xi0jwl10R2c 👍 Like, comment and repost!
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ERN-EYE@ErnEyeEU·
ERN-EYE’s February updates! 👀 🎙️ BPES webinar (Endo-ERN & ERN-EYE) 🗓️ ERN-EYE Annual Meeting, Helsinki 🇫🇮 💻 Replay available: CRISPR & RNA/ASO therapies ✨ Prof. Hélène Dollfus wins the 2026 Black Pearl Scientific Award 🗓️ 2026 ERN-EYE Scientific Workshop, Florence 🇮🇹
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ERN-EYE@ErnEyeEU·
📢 Join ERN-EYE and Endo-ERN webinar on Blepharophimosis syndrome (BPES) and learn from leading experts! 📅 Friday, 27 February 2026 🕠 5:30 - 7:30 pm CET 👉 Register now: urls.fr/XhkYkm
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ERN-EYE@ErnEyeEU·
🎬 Missed our ERN-EYE webinar on CRISPR and RNA/ASO therapies? The replay of our lastest ERN-EYE webinar is now available: urls.fr/VdnAsx 👍 Like, comment and share!
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ERN-EYE@ErnEyeEU·
🚀 Start 2026 with an ERN-EYE webinar! Gain expert insights on CRISPR & RNA/ASO therapies 💡 📅 Thu, 16 Jan | 13:00 CEST 🎙️ Chair: Prof. Camiel J.F. Boon 👉 Register: urls.fr/NYR8iA
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ERN-EYE@ErnEyeEU·
🔥 ERN-EYE updates you can't miss! 📅 13-14 Apr 2026: General Annual Meeting, Helsinki 💻 CRISPR & RNA/ASO webinar 🤝 Short Exchange Program 🎙️ High-Level Rare Diseases Meeting 2025 🎥 2025 webinar replays Stay in the loop and never miss an update 👉 urls.fr/Jsfzft
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ERN-EYE@ErnEyeEU·
✨ Season's greetings from the ERN-EYE team! Thank you to our members, patients, healthcare professionals, researchers & partners. 🤝💙 Your engagement and support drive our work forward. Let’s continue work together, sharing knowledge & supporting our community in 2026! 🎉
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ERN-EYE@ErnEyeEU·
#ECRD2026 is approaching and registration is NOW OPEN! 🎟️ Register by 26 February 2026 to grab Early-Bird prices and secure your place 👉 lnkd.in/dk8azGQ
EURORDIS-Rare Diseases Europe@eurordis

🚨 Registrations are OPEN for #ECRD2026 2026 marks a defining moment for rare disease policy in Europe. Five years after #Rare2030 and midway to the WHO 2028 target, #ECRD gathers the community to support an EU Action Plan. 👉 Register now: rare-diseases.eu/register/

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ERN-EYE@ErnEyeEU·
🚨 Final call! The #RareBarometer survey closes on 14 Dec! Tell us how you cope with the stresses of life, this will help us drive positive change for the rare disease community! Survey available here in 25 languages 👉 tiny.cc/RB-MH
EURORDIS-Rare Diseases Europe@eurordis

Across Europe, people living with a rare disease face challenges that are deeply personal, yet also systemic. And far too often, these realities are missing from the data that policymakers and health systems rely on. Rare Barometer helps change that. 👉 : tiny.cc/RB-MH

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ERN-EYE@ErnEyeEU·
📷 Missed our ERN-EYE webinar on Understanding Opsin-Related Retinal Disorders? 📷 The replay is now available: youtu.be/bVKJI09VmWo 💙 Like, comment and share!
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ERN-EYE@ErnEyeEU·
🚨 Few hours left! Join the ERN-EYE webinar TODAY: “Understanding Opsin-Related Retinal Disorders” 👁️ 👉 Register now: urlz.fr/uVwP
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ERN-EYE@ErnEyeEU·
🎬 Missed our ERN-EYE webinar on Corneal inflammation and infections?👁️ The replay is now available: youtu.be/67HXK1oapRk 💬 Joined the live session? Share your feedback in the comments!
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ERN-EYE@ErnEyeEU·
🚨 Don’t miss the ERN-EYE webinar on Corneal Inflammation & Infections!👁️ Learn from experts across Europe 🇪🇺 📅 Thu, 6 Nov | 16:00 CET 👉 Register: urls.fr/DQwb0v
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ERN-EYE@ErnEyeEU·
📣 Researchers, policymakers & advocates — ECRD 2026 wants YOU! Share your work with Europe’s rare disease community at the largest patient-led event 🇪🇺 🗓️ Deadline: 6 March 2026 📝 200–300 words abstract 🔗 Submit now: lnkd.in/efKzCmkV
EURORDIS-Rare Diseases Europe@eurordis

We’re now accepting poster abstract submissions for #ECRD2026! 📝 Share your research, advocacy, or policy work with Europe’s rare disease community — the largest patient-led event of its kind. Submit by 6 March 2026! 👉 go.eurordis.org/ECRD2026Posters

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ERN-EYE@ErnEyeEU·
NEW ERN-EYE video📽️ How to help people with visual impairment in public environment? 👉 Watch here: urlr.me/gsvUXa 📢 Share this video and help build a more inclusive world!
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ERN-EYE@ErnEyeEU·
✨ Registration OPEN! ERN-EYE e-learning on Paediatric Rare Eye Diseases 🧒👁️ 📅 Nov 1 – mid-April | 🎥 18h lectures + live | 🎓 EACCME ➡️ Free for ERN-EYE staff & partners 📌 Program & lecturers👉 urls.fr/lXqyB6 |🚀 Register by Nov 15👉 urls.fr/onjLV1
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