Jeni Tennison

I've moved to BlueSky. Come and chat there: bsky.app/profile/jenite…

Data protection law and policy are founded on the notion of individual notice and consent, but this approach has shortcomings in an age of big data and AI. In this special report, CIGI Senior Fellow and @ConnectedByData founder @JeniT considers the need for collective data rights by examining legal remedies currently available in the United Kingdom in three scenarios where the people affected by algorithmic decision making are not data subjects and therefore don’t have individual data protection rights. Read it here: cigionline.org/publications/d…

Reminder: Victory for Trump is likely to all but end global hopes of staying below 1.5C, our analysis found in March carbonbrief.org/analysis-trump…

#GenerativeAI is impacting on workers now, and increasingly. Our recent Connected Conversations with provocations from @jenit, @janiswong_, Aparna Surendra and @AdioDinika, discussed #WorkerRights in relation to #data and #AI. connectedbydata.org/events/2024-10…

I've just made another FOI request. Chasing whether Alice's data has been used in Professor Appleby's July 2024 DHSC report on suicide in trans young people. gov.uk/government/pub… I've asked the DHSC and Professor Appleby directly. Both say they don't know 🧵1/9

👻Spooked by AI? It’s not the first time policymakers have had to govern highly complex, socially-important technologies. 🪦Read the lessons we dug up from the regulation of carbon emissions, financial services and pharmaceuticals: adalovelaceinstitute.org/report/new-rul…

#GenerativeAI is impacting on workers now, and increasingly. Our recent Connected Conversations with provocations from @jenit, @janiswong_, Aparna Surendra and @AdioDinika, discussed #WorkerRights in relation to #data and #AI. connectedbydata.org/events/2024-10…

Very useful run down of the new Data Bill from @hawktalk_blog amberhawk.typepad.com/amberhawk/2024… Lots that remains problematic (recognised legitimate interests is my particular bugbear) and (I think) almost no chance of getting any changes now.

and at the risk of blowing @GenomicsEngland's trumpet (disclosure - where I was until recently CEO)... check out the Participant Panel as one way of squaring the circle here - full control over who accesses sensitive data and what they do with it sits with reps of the participants genomicsengland.co.uk/patients-parti…

Such an important debate. @matthewclifford is right - who can argue against patient privacy? For me it's not a single dimension spectrum (privacy vs. no privacy) it's about HOW data is used, and WHO has control over it. We need to empower the humans whose data it is, not lawyers (or doctors, or biotech or pharma, or academics, I'm afraid!).

change.nhs.uk seems destined to set back public participation in policymaking by decades But you gotta love the UK public's sense of humour

So, my GP practice has threatened to report me as a safeguarding concern for supporting my almost 18 year old daughters gender affirming healthcare. After 4 years of being on her meds, having a female gendered passport, and is well into her female puberty journey, they insist on leaving her stranded. It’s cruelty, discrimination and abuse of someone that doesn’t currently have MH issues, but soon will. @wesstreeting @Keir_Starmer @UKLabour

I'm talking at a conference later this year (on UX+AI). I just saw an ad for the conference with my photo and was like, wait, that doesn't look right. Is my bra showing in my profile pic and I've never noticed...? That's weird. I open my original photo. No bra showing. I put the two photos side by side and I'm like WTF... Someone edited my photo to unbutton my blouse and reveal a made-up hint of a bra or something else underneath. 🤨 Immediately, I email the conference host. (FYI he is a great, respectable guy with 5 kids at home.) He is super apologetic and immediately looks into the issue. He quickly reports back that the woman running their social media used a cropped square image from their website. She needed it to be more vertical, so she used an AI expand image tool to make the photo taller. AI invented the bottom part of the image (in which it believed that women's shirts should be unbuttoned further, with some tension around the buttons, and revealing a little hint of something underneath). 🤯 — FYI the conference organizers were super apologetic and took down all of the content with that photo.

Terrifying visualization — The top 5 global methane hotspots are all in the United States: 1. Permian Basin 2. Los Angeles Basin 3. Denver-Julesberg Basin 4. Gulf Coast processing complex 5. Marcellus Shale Formation They told us gas was clean fuel. It was a climate nuke.🧵

As part of our Innovation Fellowships – Route B: Policy-led (Digital Society) scheme, you can now apply to work with the Digital Regulation Cooperation Forum on the topic of AI regulation, conducting research with impact across the UK regulatory landscape: thebritishacademy.ac.uk/funding/innova…

🌐 "The adoption of the Global Digital Compact (GDC) in the UN gives us a globally agreed framework, enabling more unified and aligned policies & practices." @JSlotin shares 3 reasons we should see the GDC as a win for digital cooperation. 🔗 buff.ly/3BIDqr4

I've written down some of my reflections based on conversations around what DSIT should be doing as the "digital centre" for government: connectedbydata.org/blog/2024/10/0…

For people into digital public services who aren't checking on Bluesky: there's a really good conversation happening there right now around what the new DSIT digital centre needs to do. Come join in! bsky.app/profile/jenite…