Know CF

We encourage you to continue engaging with us here, where we can still share resources, stories, and updates. Thank you for being a part of the cysticfibrosis . com community! Wishing you all the best in health and happiness, From all of us at cysticfibrosis . com

In good news, as of now, this isn’t the end of our community! Our social media pages will remain open as a space for connection, support, and sharing among individuals impacted by cystic fibrosis.

While it’s bittersweet to say goodbye to the forums that brought us together, we are thankful for the connections, support, and shared experiences along the way.

Important Update: Website and Forum Closure To our valued community, We wanted to let you know that cysticfibrosis.com is no longer active & has been closed.

Thank you for your service

Dr. Bonnie W. Ramsey, Professor and Senior Advisor to the CFF Therapeutics Development Network, receives the prestigious 2025 American Pediatric Society John Howland Award! To read more, click here: bit.ly/3NTThpJ

Watch the recording here: @CysticFibrosisFoundation" target="_blank" rel="nofollow noopener">youtube.com/@CysticFibrosi… #CureCF #CF #cysticfibrosis #65Roses #Health #Educate #Spoonie #NACFC

From the archives of the 1990's - Oh how far we've come! Do you have interesting articles to share?! Let us know! . . . #CureCF #cysticfibrosis #65Roses #CF #Support #Educate #Hope #Fromthearchives

Happy Father's Day to all the amazing Dads out there! #HappyFathersDay!

In addition to oral food and supplements, sometimes extra help is needed by tube feedings . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope

People with CF can get a unique type of #diabetes, cystic fibrosis related diabetes or #CFRD . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope

Vitamins, minerals, and supplements are important . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope

Caring for bone health . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope #boneHealth

Food is fuel! . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope

Supplemental oxygen may be necessary as CF progresses. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope

Sometimes it is necessary for someone with CF to get a lung transplant. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope #Transplant #LungTransplant #DonateLife #OrganDonation

Chronic illness takes its toll. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope

Hospitals are associated with getting healthy, but sometimes an infection can actually come from the others at the hospital! . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope

CF does not impact only one system. There are several comorbidities associated with it. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope

We remember and honor those who gave the ultimate sacrifice today and every day. #MemorialDay