

Lilabean Foundation
435 posts

@LBF__Foundation
The Lilabean Foundation for Pediatric Brain Cancer Research (LBF) seeks to fund critical childhood brain cancer research and help raise awareness of the severit



We are proud to share the accelerated approval by the US FDA of the first targeted medicine for the treatment of patients with relapsed or refractory pediatric low-grade glioma (#pLGG) with a BRAF fusion or rearrangement, or BRAF V600 mutation. Learn more: bit.ly/3xNgk0P

We are proud to share the accelerated approval by the US FDA of the first targeted medicine for the treatment of patients with relapsed or refractory pediatric low-grade glioma (#pLGG) with a BRAF fusion or rearrangement, or BRAF V600 mutation. Learn more: bit.ly/3xNgk0P

















Today, we announced updated data from the registrational Phase 2 FIREFLY-1 trial as well as our completion of the rolling NDA submission for tovorafenib for relapsed or progressive pediatric low-grade glioma (pLGG). Read the press release: bit.ly/487XM97



We honor the monumental milestone of over 5,000 children enrolled in the Children's Brain Tumor Network. Delve into the impact of collaboration, and the promise of personalized treatments in our latest blog article: buff.ly/44BFaLP Let's #endchildhoodcancer #wearecbtn



Prayers: Alex Smith’s daughter, Sloane, was diagnosed with a brain tumor in 2022 and the family is living “scan to scan” Alex Smith told the @nytimes She continues to undergo tests and scans during her recovery. Smith admits that he is feeling "helpless" throughout the process. “It’s different when it’s your little girl and you’re helpless with how terrifying that is.” This family has been through hell and back, praying for all of them. nytimes.com/2023/09/01/spo… (H/T: @_MLFootball)



