Cure NF2 Foundation

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Cure NF2 Foundation

Cure NF2 Foundation

@NF2BioSolutions

Cure NF2 Foundation is a patient-led nonprofit dedicated to funding research and supporting those affected by NF2-related schwannomatosis

United States Katılım Ağustos 2018
390 Takip Edilen378 Takipçiler
Cure NF2 Foundation
Cure NF2 Foundation@NF2BioSolutions·
Along with our new name, Cure NF2 Foundation, we’ve launched a brand new website. Click here to visit: curenf2.org Designed to better serve our community, the new site makes it easier to explore research, share stories, and get involved in the mission to cure NF2.
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Cure NF2 Foundation
Cure NF2 Foundation@NF2BioSolutions·
Living with NF2 brings unique challenges, but new strategies can help. Discover how psychological approaches and neuroscience-based tools empower individuals to manage stress and find meaning. Watch our latest webinar and read the full one-pager: buff.ly/Z4w9izb
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Cure NF2 Foundation
Cure NF2 Foundation@NF2BioSolutions·
NF2 impacts entire families, and for Lizzie and Alanna, the journey has included surgeries, scans, specialist visits, and constant resilience. Behind every appointment and every procedure are real people fighting to hold onto their health and their futures.
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Cure NF2 Foundation
Cure NF2 Foundation@NF2BioSolutions·
Every NF2 diagnosis involves a child facing extraordinary challenges. A.J. was diagnosed at 6 and continues to manage multiple tumors and ongoing monitoring, but his strength shines through daily.
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Cure NF2 Foundation
Cure NF2 Foundation@NF2BioSolutions·
Lyren passed away in 2019, but her courage, strength, and spirit continue to inspire our community and our mission to find a cure for NF2. Her story is a reminder that behind every diagnosis is a person deeply loved by family and friends, and why this fight matters so much.
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Cure NF2 Foundation
Cure NF2 Foundation@NF2BioSolutions·
Behind every diagnosis is a person. A family. A fight. NF2 is not just a condition: it’s a daily reality for children, parents, and loved ones navigating uncertainty, treatment, and hope. Their stories are why we exist. Their strength is why we keep going.
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Cure NF2 Foundation
Cure NF2 Foundation@NF2BioSolutions·
Behind every NF2 diagnosis is a story, and a child, a family, a future. Tucker’s journey began with small changes that led to a life-changing diagnosis. Stories like his remind us why this fight matters so much. Help us turn stories like Tucker’s into hope.
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Cure NF2 Foundation
Cure NF2 Foundation@NF2BioSolutions·
NF2 is rare, but it affects real people in every community. Most are diagnosed young. There is still no approved treatment. But there is hope. Gene therapy research is advancing and with your support, we can help move these breakthroughs closer to real treatments for patients.
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Cure NF2 Foundation
Cure NF2 Foundation@NF2BioSolutions·
Before a therapy can be tested in people, it must first be shown to be safe, high-quality, and ready. That’s the work happening now, and it’s what your support makes possible. Closer to clinical trials. Closer to a cure. Donate today and be part of this progress:
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Cure NF2 Foundation
Cure NF2 Foundation@NF2BioSolutions·
Today is NF2 Awareness Day. NF2 is a rare genetic condition that can cause tumors to grow along the nervous system, impacting hearing, balance, vision, and more. But behind every diagnosis is a person, a story, and a community that refuses to give up.
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Cure NF2 Foundation
Cure NF2 Foundation@NF2BioSolutions·
Living with NF2-SWN comes with real, everyday challenges, especially when it comes to mental health. We want to hear from you: what has helped you cope? Share your experience or tips in the comments. Register for our upcoming webinar: buff.ly/qRGkudY
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Cure NF2 Foundation
Cure NF2 Foundation@NF2BioSolutions·
Living with NF2 can bring more than physical challenges. Join our webinar to explore tools and strategies to support your mental health, whether you’re managing appointments, scans, or uncertainty. Friday, May 22 at 11:00 AM ET / 4:00 PM BST Register here: buff.ly/NJxiJxq
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