Partnership to Fight Chronic Disease (PFCD)

“By confronting these challenges head-on, the President has charted a path that, in no uncertain terms, puts patients first.” Statement from Former Rep. Larry Bucshon, MD, in Response to Trump Administration Executive Order: fightchronicdisease.org/post/statement…

More than 7 million Americans are living with Alzheimer’s disease, yet the path to diagnosis is often filled with barriers. NEXT WEEK: Join us on March 26 as we explore the challenges patients face in obtaining an early Alzheimer’s diagnosis. Register: …adiagnosisasap-thehill.splashthat.com

PFCD advocates for improved access to treatments, a streamlined regulatory process, and policy reforms that ensure Americans with #Alzheimers benefit from the latest scientific advances.   We have the tools to change the fate of early stages Alzheimer’s disease. We must deploy them urgently. pfcdalz.org #BrainAwarenessWeek #Fight4Health #EndAlz

Memory loss that disrupts daily life isn’t a normal part of aging. During #BrainAwarenessWeek, it’s a good time to check in with yourself and your loved ones. Do you know the early symptoms of #Alzheimers? Here are the top 10 warning signs. ⬇️ ncoa.org/article/know-t…

With an estimated 7.2 million Americans facing Alzheimer's disease, the race for a cure has never been more urgent. We hope you can join us this Thursday, March 19, from 8:30 a.m. to 10 a.m. ET, for a breakfast briefing on Capitol Hill. This briefing will look at progress against Alzheimer's disease and explore the urgent need for innovative partnerships and policies to overcome scientific and clinical challenges. When: Thursday, March 19, 2026, from 8:30 a.m. – 10:00 a.m. ET (Breakfast will be served) Where: 2045 Rayburn House Office Building 45 Independence Ave SW, Washington, DC 20515 Register today! docs.google.com/forms/d/e/1FAI… #BrainAwarenessWeek

This is Celia Grace Hamlett and her dad Gary. Celia Grace is the first person in the US to receive transformative #genetherapy for metachromatic leukodystrophy (MLD). You’re invited to this important discussion about the challenges AND opportunities for our friends in the MLD community. #FacesofGeneTherapy WATCH: vimeo.com/930330538?fl=p…

A new national analysis of NHIS data reveals a historic drop in cigarette smoking among U.S. adults while highlighting persistent tobacco use and widening disparities across demographic and occupational groups. news-medical.net/news/20260315/…

Europe’s experience is a warning for Washington. Policies undermining incentives for innovation will quietly erode US global leadership. If the US weakens IP, cuts research funding, or expands price controls, it risks repeating Europe’s decline. More ⬇️ itif.org/publications/2…

Check this out! collins.senate.gov/newsroom/senat…

New Analysis: Patients Paid the Price When Europe Controlled Drug Costs fightchronicdisease.org/post/new-analy…

It’s clear that earlier diagnosis of Alzheimer’s and related conditions can positively change the path forward for individuals and their families. Early diagnosis begins with recognition and conversation. dcjournal.com/black-communit…

Wondering about the real-world consequences of MFN? We’ve seen examples abroad where patients have faced tragic delays in accessing treatments. What lessons should U.S. policymakers take from those cases when considering MFN-style pricing policies? Hear what @RareDiseases' Pam Gavin thinks youtu.be/_1lU4m79FxQ

How would importing foreign price controls through the "Most Favored Nation" model affect American patients’ access to advanced treatments for complex diseases like colorectal cancer? Hear what @GlobalCRC's Andrew Spiegel has to say: youtu.be/uPEnMptkoNA #EnoughCRC #Fight4Health

DYK March is #NationalKidneyMonth? Join our friends @NatForumHDSP this Thursday March 12 to participate in the new Call to Action to Increase Diagnosis and Management of Kidney Disease. More info: nationalforum.org/unseen-and-unt… #Fight4Health

Livestreaming now: cnbc.com/cures-events/

#colorectalcancer is the deadliest #cancer in people under 50 and the second deadliest overall. Join the movement: colorectalcancer.org/get-involved/a… #Fight4Health #EnoughCRC #ColorectalCancerAwarenessMonth

An estimated 50 million Americans are living with an autoimmune disease. #Fight4Health and help raise awareness for #autoimmunedisease. RESOURCES: autoimmune.org/autoimmune-awa… #AutoimmuneAwarenessMonth

Advancing standards of care for the 7 million people navigating the challenges of #Alzheimers is critical to making America healthy and must remain a priority for Congress. #Fight4Health #EndAlz thehill.com/p/healthcare/5…

Codifying MFN into law would fundamentally shift the U.S. toward access delays and gaps observed in the countries that MFN pricing would emulate without any guarantees of improving affordability for patients. fightchronicdisease.org/post/lowering-…

Here's the latest from PFCD's Chronic Choices, Critical Voices series with @Aging_Research's Adina Lasser examining “Most Favored Nation” drug pricing and what it could mean for older Americans who rely on Medicare, including the flaws of the QALY and explore better policy solutions to lower drug costs without undermining innovation, access, or long-term health outcomes. youtube.com/watch?v=HJGHMo…

How would adopting foreign reference pricing standards under "Most Favored Nation" specifically limit access to lifesaving therapies for individuals with rare diseases, who already face limited treatment options? Hear what @RareDiseases's Pam Gavin has to say about risks to patient access. #RareDiseaseWeek