PSC Support Australia

Primary Sclerosing Cholangitis (PSC) is an autoimmune Liver disease with no cure. It causes the destruction of bile ducts resulting in cirrhosis. Its progression is different for each individual patient but most end up needing a liver transplant or risk an early death. #PSC

Australian’s touched by PSC know how life changing Organ Donation can be. We encourage everyone to make their wishes known to their loved ones & register their decision #DonateLifeWeek2019" target="_blank" rel="nofollow noopener">donatelife.gov.au/register-donor…

@DocKateLynch Wonderful work 🤗🙌🏻

I am pleased to finally share our internationally collaborative publication looking at the effect of VDZ in PSC/IBD. Maybe beneficial in a subset of patients? Overall no clear signal. Time for a carefully constructed prospective trial! #IPSCSG cghjournal.org/article/S1542-…

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Give mum the VIP treatment with Entertainment! Packed with thousands of valuable offers across dining, retail, attractions and travel, an Entertainment Membership is the gift she can enjoy all year round. entertainmentbook.com.au/orderbooks/9r5…

Lest We Forget 🇦🇺🌹 🇳🇿

Head over to our Facebook Page & check out our awesome competition; facebook.com/20028272399186… #CompetitionTime #freebie #win #bargain

@ChooseWiselyAU encourages Patients to be empowered with their health choices. Here are some questions to ask your doctor before your next medical test. ⤵️

@PSCPartners Great job guys!!

Rare Disease Day💙💚💖 PSC is a rare autoimmune disease affecting the Liver It’s cause remains unknown. There’s currently no treatment and many patients will require a life saving liver transplant Share your story and let others know what it’s like to be rare #psc #PSCrare

Get involved in the #ShowYourRare campaign for Rare Disease Day 2019! Are you feeling up to a challenge? Try painting the Rare Disease Day logo! Check out the other ways to Show Your Rare for #RareDiseaseDay rarediseaseday.org/article/show-y…

We hope every Transplant Hospital in Australia takes note how beneficial Telehealth can be for people with chronic illness. - less travel time - less cost - less time off work - greater accessibility - patient centred Yes please! @GregHuntMP

We hope tonight’s screening of @dyingtolivedoco on @SBS inspires discussion in your household on the important and beautiful gift that is #organdonation #donatelife

Truely amazing 2018 Organ Donation rates here is Australia. Still so much work to be done to support recipients and donor families. #donatelife #makeitcount

@PSCSupportUK @bhamliverMP We believe this is being trialed here too. Just amazing 🤗

Game changing news for people on the liver transplant waiting list: NICE has agreed perfusion machines can be safely used in liver transplants. This will increase the number of organs available and shorten waiting times. WOW! @bhamliverMP #organdonation bbc.co.uk/news/health-46…

@garyptaylor @PSCSupportUK @AutoImmuneLiver @jfergus75 @F8Martine @maxceline_ @_elenamarcus @LiverTrust @uhbtrust Happy Liverversary 🥳

Research is so important 🙌🏻

Happy New Year PSC World 🥳

Merry Christmas PSCers & Carers. Have a wonderful day with those closest to you & make beautiful memories. 🎅🏻🤶🏻🎄

Wonderful news out of @Austin_Health in Melbourne. Only possible because of the beautiful gift of organ donation. 🎁 Congratulations to the LTU Team! 👩🏻‍⚕️👨🏻‍⚕️🏥 @DonateLifeToday #havethechat #PSC

🧔🏻👱🏻‍♂️👴🏼👦🏻👨🏻👨🏻‍🦰👳🏾‍♂️🕵🏻‍♂️👮🏻‍♂️👨🏻‍🚀 Today is International Men‘s Day. We’re sending a big shout out to all males affected by PSC 🙋🏼‍♂️ We see you 💚 #InternationalMensDay #psc #pscaware