SUDEP Action

Good luck to Wizzy Mills who is taking on the Loch Morlich “Go Swim” in September in memory of her cousin Adam who died from #SUDEP aged 22: justgiving.com/page/wizzy-mil… “He was taken from us far too soon, and the loss has left a lasting impact on everyone who knew and loved him.”

"Why do most SUDEP deaths happen at night when people are asleep?" Get advice from our CEO Sammy Ashby and Dr Rhys Thomas, Consultant Neurologist & Clinical Trustee. For more information on SUDEP, please head to: sudep.org/what-is-sudep/ #Epilepsy #EpilepsySafety #Seizures

The UK Government has pledged to restore its partnership with SUDEP Action to tackle epilepsy risks and prevent sudden deaths. With 21+ UK deaths a week, this is a major breakthrough for safety. Read the full update on what this means: sudep.org/government-ple… #SUDEP #Epilepsy

Our services include free bereavement support, advice and guidance after an epilepsy-related death and help with understanding the inquest process. Call 01235 772852 or email support@sudep.org #SUDEP #Epilepsy #EpilepsySupport

Last Sunday, Jack and Nikki Murphy raised an incredible £1042 at their Zumbathon in support of SUDEP Action! 🧡 If you’re feeling inspired, why not see what you could organise? Find ideas online: sudep.org/get-involved/h… or email fundraising@sudep.org #SUDEP #Epilepsy

The #LondonMarathon ballot results are out! 🏃‍♂️🎉 Got a place? Join Team SUDEP Action for a race vest & full support! Missed out? Run a London Half Marathon with us: ✨ London Landmarks (4 Apr 2027) ✨ Run South London (14 Mar 2027) Help save lives. 💜 📩 fundraising@sudep.org

One year ago today, we launched the Charlie Card. Anti-seizure medication is time critical. The Charlie Card helps those with #epilepsy advocate for their legal right to an emergency supply at the pharmacy counter, protecting lives from avoidable risk: sudep.org/charlie-card/

Our Children’s SUDEP & Seizure Safety Checklist gives clinicians an evidence-based way to have meaningful, personalized chats with families. Health professionals – register for the Checklist today! sudep.org/about-research… #Epilepsy #SUDEP #SeizureSafety

Earlier this year, MP @OllyGloverLD led a debate in the House of Commons, calling on the Government to develop a modern framework for #SUDEP and #epilepsy risk management. He secured a meeting today with Jane Hanna OBE to meet Sharon Hodgson MP for further discussion.

Guidelines alone aren't enough to prevent #SUDEP. A new paper shows reducing epilepsy deaths takes open conversations & better systems - not just rules. We have campaigned for UK guidelines & uniquely provides advocacy to ensure lessons are learned & systems change. @haritsa1

We understand the worry of parenting a child with epilepsy, but we are here to help. If you want more information about epilepsy safety, please head to: sudep.org/epilepsy-safet… or email our team at info@sudep.org

Start your week by making a life-saving difference. 💜 Every week in the UK, about 21 people die from epilepsy-related deaths, including #SUDEP. Many are preventable. We fund vital research & support families affected. 👉 Donate today: sudep.org/get-involved/d… #EpilepsyAwareness

Join us at our coffee club in Guildford and be among people who “get it”. There is no pressure to share; some come to talk openly about their experiences, while others simply listen and draw strength from being among people who understand. Email info@sudep.org ☕ #SUDEP

Band member Scott Hardcastle lost his sister Samantha to SUDEP in 2004. As a tribute to love & loss, his band released a song featuring photos submitted by 23 families who lost loved ones to #SUDEP 💜 Read more: sudep.org/new-record-ded… #Epilepsy #EpilepsyAwareness

"Although it won't bring a loved one back, it could save someone else suffering in the same way." If you’ve lost someone to #epilepsy, your memories can help researchers identify preventable risks and save lives: epilepsydeathsregister.org #SUDEP #EpilepsyAwareness

The 4th annual Murph for Meg was held this May, in memory of Megan Gardiner who died from SUDEP whilst pregnant in 2022, aged 25. “Family, friends and a great community came together on a very hot day to raise nearly £1,900 for SUDEP Action.”

“My friend has epilepsy, and I’m worried they’re going to have a seizure when they’re with me. What do I need to know?” Get advice from CEO Sammy Ashby and Dr Rhys Thomas, Consultant Neurologist. Watch our first aid for #seizures video: youtu.be/IWPyDdq9SDg?si… #Epilepsy

Sign up to our newsletters! 📩 Stay in the loop with impact stories, research updates and ways to get involved. Join our community and see how your support makes a difference. Sign up here: sudep.org/newsletter-sig… #SUDEP #Epilepsy #EpilepsyAwareness

Do you use the EpSMon app? We want your feedback! Your experiences help us ensure the app remains a vital tool for the #epilepsy community. Whether you've used it for a while or just started, tell us what you think. 👇 Share your feedback here: epsmon@sudep.org

If you’ve lost a friend, family member, a colleague or someone close to you because of an epilepsy-related death our team is here to talk. We offer free and confidential support for anyone in need, call 01235 772852 or email support@sudep.org #SUDEP #Epilepsy #EpilepsySupport