SUDEP Action

In the epilepsy community, we know the importance of constructive conversations between the patient and health professional. Discussing risks can significantly support living well with #epilepsy Download the SUDEP and Seizure Safety Checklist: Sudep.org/checklist

Interested in making a real, lasting difference? 🧡 By regular giving, you can help spread awareness of #epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP). Help to support those in need and bring hope to where it’s needed: sudep.org/get-involved/r…

Help us support the research that saves lives. The Epilepsy Deaths Register (EDR) collects valuable information to help researchers better understand #epilepsy risks and prevent future losses. Learn more: epilepsydeathsregister.org Share this post to increase awareness. ✅

Together, we can push for better awareness, better support and safer futures 💜 So, stay informed after #NationalEpilepsyWeek by signing up to receive our newsletter: sudep.org/newsletter-sig… #epilepsyawareness

Every donation saves lives. Our mission is to prevent every avoidable epilepsy-related death through research and education, and to ensure no one grieves alone. 💜 Donate today: Sudep.org/donate #NationalEpilepsyWeek

This #NationalEpilepsyWeek, SUDEP Action is calling on employers to move beyond awareness and toward active safety. We’re making it easy for your business to be "epilepsy safe" with our free workplace resources: sudep.org/epilepsy-safet… #EpilepsySafety

Awareness tells you SUDEP exists; action helps you reduce the risk. ✅ As a health professional, our SUDEP and Seizure Safety Checklist is a free tool for you and your patient to identify and manage risks together: sudep.org/checklist #NationalEpilepsyWeek

Take action for #NationalEpilepsyWeek 📲 To prevent future deaths, we must learn from the past. If you have lost a loved one to #epilepsy, registering with the Epilepsy Deaths Register (EDR) provides vital data that fuels life-saving research: epilepsydeathsregister.org

It’s #NationalEpilepsyWeek 💜 We believe that this week is about more than just awareness – it’s about taking action. So, what can you do? 🔄 Register for our webinar where you can ask questions about epilepsy to our CEO Sammy: buytickets.at/sudepaction/22… #Epilepsy #SUDEP

Don’t miss your chance to join us for an empowering live webinar dedicated to helping you live well and safely with epilepsy 💜 Whether you're looking for clarity on everyday safety or want more confidence in your independence, our panel is here to help: tickettailor.com/events/sudepac…

@epilepsyaction @epilepsysociety @youngepilepsy @EpilepsyInst @matthewsfriends @hope4epilepsy1 @curedravet @UKTSA @UK_IS_T @MeathCharity

Kicking off #NationalEpilepsyWeek with a reminder of the strength of the epilepsy community. So many voices. So many experiences. So many organisations standing side by side so no one faces epilepsy alone. We are proud to stand alongside others supporting people with epilepsy.

Emma Taylor lost her daughter, Erin, on the 5th March 2018 to SUDEP (Sudden Unexpected Death in Epilepsy). Watch her talk to ITV News West Country: itv.com/watch/news/cat… Go to 5 minutes in 💜 #SUDEP #Epilepsy #EpilepsyAwareness

"Fraser Morton was a child when he first saw someone have a seizure. It was his own brother." Through his project, “A Life Electric,” Fraser has travelled across the world to capture the stories of those living with #epilepsy: sudep.org/how-a-letter-t…

“My constituent Emma Taylor tragically lost her daughter at the age of 19.” (MP Simon Opher) Watch the full debate, led by @OllyGloverLD, which called on the Government for better epilepsy risk management: youtube.com/watch?v=XQUFYs… #sudep #epilepsy #epilepsyawareness

Do you have questions on #epilepsy risks, SUDEP or how to stay safe living with epilepsy? Get your answers from CEO Sammy Ashby and Dr Rhys Thomas, Consultant Neurologist! Read more: sudep.org/epilepsy-webin… Sign up now: buytickets.at/sudepaction/22… #NationalEpilepsyWeek

When someone dies from epilepsy, there are often more questions than answers. By sharing their story, you can help prevent future deaths. Register with the Epilepsy Deaths Register today: epilepsydeathsregister.org #epilepsy #epilepsyawareness

Ask your questions on living with #epilepsy to CEO Sammy Ashby and Dr Rhys Thomas on our #NationalEpilepsyWeek webinar! ➡ Sign up now: buytickets.at/sudepaction/22… Questions can be submitted on registration and the webinar will take place at 7pm, May 20th 2026. #EpilepsyAwareness

Looking to make your workplace safer for people living with epilepsy? Download our free ‘first aid for seizures’ poster! Learn more: sudep.org/epilepsy-safet… #epilepsy #seizures #seizureaware

Following the tragic death of Megan Gardiner, the Coroner has asked the Cardiff and Vale University Health Board to clarify within 28 days how the individualised risk of SUDEP will be discussed in future. Read more: sudep.org/health-board-g… #SUDEP #epilepsy