UK MND Research Institute

We've hit 100 sign-ups to our Remote Research Platform! Thank you to everyone who has signed up; together, we’re building a more inclusive #MND/#ALS research community. 🔗If you haven't joined, sign up below! ukmndri.org/research/under…

We're thrilled to announce that the drug RT1999 has been selected for EXPERTS-ALS. This is how we accelerate progress for people with MND. Participants are expected to receive the drug by the end of 2026. ukmndri.org/2026/03/10/new…

Today, we are celebrating the women driving MND research forward, from the lab bench and clinical trials to patient advocacy and care. Progress towards a cure is built on their vital work. Happy #InternationalWomensDay2026🔬

Biotech company @Cervo_Med has announced that the drug, neflamapimod, will be selected for evaluation in our EXPERTS-ALS platform.🧪 The drug will be tested on a small cohort of people living with #ALS to look for any positive results. Read more below🔬ukmndri.org/2026/02/24/nef…

Industry partners are vital collaborators in our mission to find crucial new treatments for #MND/#ALS. Which is why our co-director, @AmmarAlChalabi, teamed up with Raya Therapeutics at TRICALS to lead a discussion on Repurposing and Combination Therapies. Read more about our EXPERTS platform👇 ukmndri.org/2025/11/13/rep…

We're delighted to be attending #TRICALS Masterclass this year in Amsterdam. It's always fantastic to meet up with our international colleagues and collaborators to discuss how we can best accelerate #ALS clinical drug development.

🧠💤 Have MND/ALS? Help us understand. Sleep is more than a symptom, it reflects underlying disease processes, affects quality of life, and may offer clues for new treatments. Take part in a 15-min @kingsmnd survey to guide future care and research. 🔗 surveymonkey.com/r/D8SYJPQ

We're proud to continue our partnership with the @UKMNDRI Our funding supports new and ongoing research projects that sit under the umbrella of the Institute, with the primary goal to accelerate the search for a cure. #MND Read more 👇 ukmndri.org/2025/12/17/uk-…

Three years after our launch, we’ve worked tirelessly to understand how and why MND occurs, identify promising treatments, and test them in clinical trials. Read about what we've achieved, together, in our first three years here: ukmndri.org/2025/12/17/uk-…

🎉We're thrilled to announce that our biosampling platform has recruited 212 participants, surpassing our target of 200. This work will be vital in bringing us closer to new and more personalised treatments for #MND/#ALS.🔎 ukmndri.org/2025/12/12/bio…

How are biomarkers are changing #ALS/#MND research?🔎 A new review from @KingsIoPPN shows how specific biomarkers, such as neurofilament light chain (NfL), can accelerate trials and enable personalised medicine. 🔗 Read more 👇 ukmndri.org/2025/12/05/bio…

New research reveals what people with #MND/#ALS need when deciding on genetic testing: clear info, implications for family & tailored support.📃 This data can help inform decision aids to assist people when thinking about genetic testing. Read more🔗 ukmndri.org/2025/12/03/gen…

Great speech by @Emma_MacLennan about MND at Ashford Mayor’s charity lunch in Tenterden hosted by Cllr Lyn Suddards. Emma spoke about finding cure for cruel disease that took our son Alex in 2020 who was elected @AshfordCouncil in 2019 with Lyn. With @sojanuk #United2EndMND.

Our posters from ENCALS 2025 on findings from the @MNDRegister are now published on our website. Click the link below to read about the epidemiological insights, incidence and prevalence, as well as gender differences in #MND/#ALS. mndregister.ac.uk/research-paper…