ALS Network

@youralsnetwork, in partnership with ALS United, is now accepting Letters of Intent for ALS research funding from March 16 – April 20, 2026. As part of our ALS Research Innovation Initiative, we invite bold, imaginative proposals that push the field forward and accelerate progress toward better treatments and cures. Together, we are fueling the ideas that will change what’s possible for people living with ALS. Apply for funding here: researchfunding.alsnetwork.org For questions about the process or the ALS Research Innovation Initiative, email research@alsnetwork.org.

Congress is beginning work on federal funding for 2027. For people living with ALS, these decisions will shape progress across care, research, and access to resources. We’re asking Congress to prioritize and strengthen the full ALS ecosystem, including: - ACT for ALS - Department of Defense ALS Research Program - NIH and CDC - Advanced Research Projects Agency for Health (ARPA-H) - Department of Veterans Affairs ALS Centers Take action today and ask your Members of Congress to support these priorities. ow.ly/TI9B50YwzC3

In recognition of Brain Health Awareness Week, March 16-22, the ALS Network supports the bipartisan HEALTHY BRAINS Act. This legislation advances research into environmental risk factors linked to ALS and other neurodegenerative diseases. Expanding research on these risk factors is critical to understanding how these diseases develop and how we can better address them. Take action: Urge your members of Congress to support the HEALTHY BRAINS Act through the link below. ow.ly/8OtZ50Ywza7 #BrainAwarenessWeek

You can now fund #ALS research as a California taxpayer using code 447! Donate to the California ALS Research Network Voluntary Tax Contribution Fund to fuel groundbreaking research for ALS, and to better understand related diseases. There is no maximum contribution amount! Please share this opportunity far and wide! For more information visit: alsnetwork.org/taxfund

We are less than 8 WEEKS away from the 10th annual SoCal Ride, Walk & Roll to Cure ALS on Saturday, May 16, 2026! Donate and join @youralsnetwork in support of our mission and #ourALScommunity. This event is open to everyone! We have options to cycle, hike, walk, and roll and invite you to join us in a way that feels most meaningful and accessible to YOU. Visit ALSRideSoCal.org to make a real difference in the lives of people affected by #ALS and help us surpass our fundraising goal of $160,000! Register today at alsridesocal.org. #socalride #enduretocureALS

Our Day of Remembrance program is Saturday, March 21 at 11:30 AM PDT/8:30 AM HST. Honoring and remembering those we have lost to ALS, this virtual event will take place via Zoom and is free to attend. If you would like your loved one's name to appear on the memorial scroll, please submit their name, exactly as you would like it to read on screen, via the RSVP form below, no later than 12:00 pm PDT / 9:00 am HST on Wednesday, March 18. RSVP at alsdayofremembrance.org.

This Women’s History Month, we honor the women who turn heartbreak into hope. When Beth’s husband Geoff was diagnosed with ALS, her friend Donna signed up for the ALS Network’s SoCal Ride, Walk & Roll to Cure ALS in his honor — transforming helplessness into action and awareness. Women like Beth and Donna remind us that community, courage, and compassion are powerful forces in the fight to cure ALS. #WomensHistoryMonth Join in our community movement to cure ALS at events.alsnetwork.org.

Use code 447 and donate to the California ALS Research Network Voluntary Tax Contribution Fund this tax season. Help those living with ALS today. Let’s make sure this program continues by making a contribution of any amount when you file your taxes. For more information visit: alsnetwork.org/taxfund

NOW LIVE: Please watch our ASK ME educational webinar, "ACT for ALS - Progress, Impact, and What's Next.” This free online program will provide an accessible overview of the landmark legislation and what it means for the ALS community today — and what comes next. Attendees will also have the opportunity to ask questions following the presentation. youtube.com/live/K-5Toup6-…

Join us on Monday, March 23 at 1:00 PM PST/10:00 AM HST for PLS: Connect, Support, Chat. This is a focused group for individuals living with Primary Lateral Sclerosis. Please contact ALS Network ALS Network Care Manager, Trung Ton at tton@alsnetwork.org for more information on how to participate.

Lo invitamos a unirse a Conéctese, Apoyar, Unase: Español. Cuándo: Miércoles, 18 de marzo, a las 4:00 p.m. Hora del pacífico / 01:00 p.m. Hora de Hawaii. Nos acompañará la ponente invitada especial Kelly Figueroa, de @MaximHealthcare, para hablar sobre el cuidado de personas dependientes. Por favor, comunicarse por correo electrónico a Debbie Joy djoy@alsnetwork.org para las instrucciones. Please join us on Wednesday, March 18, at 4:00 PM PST/1:00 PM HST for Connect, Support, Chat: Spanish Language. We will be joined by special guest speaker Kelly Figueroa from @MaximHealthcare to discuss caregiving. Contact Care Manager, Debbie Joy, at djoy@alsnetwork.org for more information about how to participate.

Join us tomorrow for our next ASK ME educational webinar, "ASK ME: ACT for ALS — Progress, Impact, and What’s Next" on Monday, March 16 at 3:00 PM PDT/1:00 PM HST. This free online program will provide an accessible overview of the landmark legislation and what it means for #ourALScommunity today — and what comes next. Thanks to our sponsors @TanabePharmaUS and @ALSNewsToday for supporting #ourALScommunity! RSVP here: ow.ly/ENLb50Ys3mQ

Before ACT for ALS, ALS research was often fragmented across institutions and sectors. The law strengthened public-private partnerships across NIH, FDA, researchers, industry, and nonprofits, helping align data, tools, and priorities to move ALS research forward more efficiently.

The ALS Network’s clinical trials page makes it easy to explore and participate in ALS research. Clinical trials play a critical role in developing new treatments and improving care for people living with ALS. Whether you're living with ALS, a caregiver, or a healthcare professional, this resource can help you learn about ongoing studies and how to get involved in advancing research. Explore available clinical trials powered by @TrialX: alsnetwork.org/clinicaltrials/

Use code 447 on the voluntary contributions section of your income tax return and support the California ALS Research Network Voluntary Tax Contribution Fund. Your donation, no matter how small or large, will help us reach the necessary $250,000 to keep critical research projects alive. When filing your taxes, consider joining us in the search for effective treatments and cures for ALS. Together, we can make a significant impact! For more visit: alsnetwork.org/taxfund

Join us at the 12th Annual Jim Tracy 5K on Sunday, May 3, 2026! Jim Tracy was an inspirational cross country coach at San Francisco University High School (UHS), who lost his courageous battle with ALS in 2014. Jim touched countless lives during his remarkable career, which spanned two decades and 40 seasons at UHS. This year’s fundraising goal is $75,000 with proceeds from the event utilized to support #ourALScommunity. Sign up today at JimTracy5K.org.

Please join us for Connect, Support, Chat: Living with ALS Under 50 on Tuesday, March 17, at 12:00 PM PST/9:00 AM HST. For more information or questions, please contact Care Managers Emma Karavardanyan, M.A. at ekaravardanyan@alsnetwork.org or Shannan Sonnicksen, LCSW, MPH, at ssonnicksen@alsnetwork.org.

We invite you to our next ASK ME educational webinar, "ASK ME: ACT for ALS — Progress, Impact, and What’s Next" on Monday, March 16 at 3:00 PM PDT/1:00 PM HST. This free online program will provide an accessible overview of the landmark legislation and what it means for #ourALScommunity today — and what comes next. Thanks to our sponsors @TanabePharmaUS and @ALSNewsToday for supporting #ourALScommunity! RSVP here: ow.ly/ENLb50Ys3mQ

Join global leaders this month in San Diego for the 6th RNA Metabolism in Neurological Disease Conference, on March 29-31, 2026. This two-day conference brings together basic, clinical and industry scientists around the world to explore how disrupted RNA metabolism drives neurological diseases like ALS. Poster abstracts accepted until Mar 16. View the program and register at bit.ly/4jTjl2D. Use the code ACRNA100 to save $100 on the registration fee.

Join @youralsnetwork for the @labjnews’ Nonprofit + Corporate Citizenship Symposium & Awards on Thursday, March 26, 2026 at 9:30 AM-2:30 PM at the Biltmore in Los Angeles. @Sheri_Strahl, our president and CEO will serve as a panelist discussing effective partnerships and creating meaningful change within communities. Purchase tickets today and learn more at labusinessjournal.com/events/npcca20…