Cure MSD

Next Tuesday, 3/24, Student Ambassador Emily Sandlin will take over our IG to share a glimpse into her day as a United MSD Foundation Student Ambassador! Follow us @CureMSD to see Emily sharing her experiences and journey! #TakeoverTuesday #InstagramTakeover #StudentAmbassador

BIG NEWS! 🚨 Save the date for the MSD Virtual Summit, hosted by the United MSD Foundation this Sept 18–19! Our global community of MSD families, researchers, clinicians & more will unite on Zoom because in partnership, we thrive.💡Learn more & join us at curemsd.org/2026-virtual-s…

Today we remember Jill Anseth, who passed away from MSD 35 years ago at just 14 years old. Jill’s life, though far too short, left a lasting imprint on everyone who knew her. Her joy, kindness, & the light she brought to her family continue to be remembered today & always.

As we kick off the #ZebraRun, we’re sending another big THANK YOU to our Presenting Sponsor, AlphaCare Urgent Care & Dr. George Loukatos, M.D., for standing with #MSD families & for the heart they bring to our mission to #CureMSD. 💙

🎉 Today’s the day! The registration table is open and our Zebra Run committee and volunteers are ready to kick off the 9th Annual ZEBRA RUN for Rare Disease! 🦓🏃‍♀️ There’s still time to join the fun! ⏰ Schedule: 🐾 8:00 AM — Fun Run 🏁 8:45 AM — 5K

Shout out to our #ZebraRun in-kind sponsors! Your support keeps everyone fed, entertained, informed, hydrated, & headed the right direction. We couldn't do this without you! Thanks to Chik Fil A, Dubba's Delights, Images Galore, MGCCC, Mitchell Distributing, The Shed, & TatoNut!

We’re proud to again recognize Stein LTC Group for their generous support of the #ZebraRun. 🦓 Partnership like yours drives our mission forward to bring us closer to a treatment for #MSD. Thank you for helping to raise awareness, amplifying our message of #relentlesshope! 🖤🤍

From the pre-race warmups to the moment the medals are placed around proud finishers’ necks, the #ZebraRun is going to be an unforgettable day! 🦓✨ Take a look at the full event schedule & secure your spot today. We can’t wait to see you there! 👉 ow.ly/is3x50Yoctt

Thank you to Haute Designs by Nate, official photographer for the #ZebraRun, for capturing all the dazzling moments! 📸 Don’t forget to flash that winning smile when you see him at the finish line! Not signed up yet? Join the fun here: ow.ly/c0bX50YoaUe #RareDisease

🎉 Join us for #ZEBRAFEST on Fri., March 6, at 5PM at Val's Sports Bar as we kick off #ZebraRun weekend with heart! 💙 Grab your race packet early; bid on Silent Auction items to support #raredisease families; & enjoy entertainment, food & fun! 👉ow.ly/Myzq50YmJ2a

We’re proud to recognize Stein LTC Group for their generous support of the #ZebraRun. Their continued sponsorship, year after year, helps us share a message of #relentlesshope. Thank you, Stein LTC Group, for standing with our #MSD families and fueling the fight for a treatment!

We’re grateful to once again recognize @WLOX for their incredible support of the #ZebraRun. Your ongoing partnership continues to move our mission forward. Thank you for helping raise awareness and elevate our message of relentless hope in pursuit of a treatment for #MSD.

Registered for #ZebraRun yet? We're in 24 states & counting & thrilled to be racing alongside our amazing supporters in our newest states: FL, GA, MD, MA, MI, MT, NV, NC, & VA! 💙 Register today & join the fun here ow.ly/ss2650YkwqU.

👏 We’re excited to give another well-deserved shout-out to our incredible Gladiator Sponsor, Lamar Advertising! Thank you for supporting our mission in the relentless pursuit of a treatment for #MSD. We're grateful for your commitment to the MSD community & the #ZebraRun! 🖤🤍🦓

Happy Birthday to our Executive Director, Sarah Cortell Vandersypen! We celebrate not only her birthday, but the passion she pours into ensuring a future where MSD is #treatablenotterminal. Let's wish Sarah a beautiful year ahead, full of #relentlesshope & #realprogress.

Another round of applause for our Gladiator Sponsor, Magnolia Wealth Strategies! We’re sending a heartfelt thank you for their continued support of #ZebraRun. Partners like Magnolia Wealth truly make a difference, helping move our mission to #CureMSD forward!

#ThrowbackThursday to one of our favorite Zebra Run moments…. 🦓 Schooner is BACK! The Biloxi Shuckers’ beloved mascot returns to #ZebraRun to cheer you on from the sidelines as you #RunforRare. 🎉 Grab your spot & join the celebration: 👉 ow.ly/bKgx50YiqYY

Happy Mardi Gras! 💜💛💚 While our team is spread out across the U.S., our roots remain on the Gulf Coast & this season holds a special place in our hearts. To all who celebrate, we wish you a Mardi Gras filled with music, joy, & King Cake! See you soon for #ZebraRun!

Today we remember Barbie Ewen, who gained her angel wings 9 years ago at the age of 40, after a life full of love, laughter, & beautiful memories made with her devoted family. Barbie’s joyful spirit touched everyone around her who remember her always.💙 #MSDAngel #NeverForgotten

Today we remember Liam the Lionheart on the anniversary of his passing. Though his time here was far too brief, Liam’s precious smile and joyful spirit left an imprint that will never fade. 💙 Forever missed. Forever loved. #MSDAngel #NeverForgotten #MultipleSulfataseDeficiency