DrugOrphanisation

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DrugOrphanisation

DrugOrphanisation

@orphanisation

@WellcomeTrust #OrphanDrugs: High prices, access to medicines and the transformation of #biopharmaceutical #innovation @sheffielduni @ihumansheff #raredisease

University of Sheffield Entrou em Mart 2021
631 Seguindo99 Seguidores
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Proton VPN
Proton VPN@ProtonVPN·
Just a few minutes after the Online Safety Act went into effect last night, Proton VPN signups originating in the UK surged by more than 1,400%. Unlike previous surges, this one is sustained, and is significantly higher than when France lost access to adult content.
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Martin Lewis
Martin Lewis@MartinSLewis·
I can't because it's not true - certainly not universally. For many Uni is the best option, and will both boost their earning power, and give unique exposures to outlooks & opportunities. What I have written though, many times, is with the increased payback, it is more important than ever for people to assess if Uni is specifically right for them, and look at alternatives. Doing it by default as you've no other ideas is certainly a bad way to do it.
Jared Lawrence@Beyondfinancee

@MartinSLewis How about writing an email about why going to University is actually a pretty terrible idea these days. Let's see some better alternative options be promoted.

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DrugOrphanisation@orphanisation·
Lovely to see Dan O'connor from MHRA discuss the need for regulators to adapt, and for the importance of patient voice #reactcongress #irdirc
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DrugOrphanisation@orphanisation·
Fantastic talk by Tim Buckinx (Epihunter) at the @irdirc Conference today. Sony's PS6 and next-gen wearables will have EEG sensors to grant emotion data. Great for real-world data for absent seizures @react_community #rwd #RareDisease
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DrugOrphanisation@orphanisation·
Some great discussions today at the @SPIN_rare Conference We've covered RWE and pricing, also the use of patient-reported outcomes, and what frameworks are needed #RareDisease
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