CaringVoiceCoalition

Caring Voice Coalition’s last full day of operation is May 1, 2019. caringvoice.org/helpful-resour…

A great piece on Huntington's disease in the Observer. Includes an interview with Prof Sarah Tabrizi, HD Centre Director. theguardian.com/science/2019/m…

Medicare Advantage—the private plan add-on option in the Medicare program also know as Part C—has new flexibility to cover expenses such as transportation or caregiver support. caringvoice.org/medicare-advan…

It's World #RareDiseaseDay. Here's our staff sharing why they #careaboutrare #WRDD2019

#RDDNIH is on Thursday! If you can’t attend in person, watch live at bit.ly/2GHocVT. ncats.nih.gov/rdd

“#Need. But I’m terrible at it 🤨”: buff.ly/2Ss2d6r #sleep #selfcare #painsomnia #chroniclife

From Shaun who's living with Huntington's disease: "All the time I’m awake and speaking and fighting, they’re working on cures and learning things and that could mean a lot more time. I think as long as I remember that I’m good for the fight." caringvoice.org/good-for-the-f…

Still looking for ways to get involved in Rare Disease Day this year? Check out all the different things you can do to be a part of the campaign>> rarediseaseday.org/article/get-in… #RareDiseaseDay #ShowYourRare

Note to self #chiarimalformation #chronicillness #chronicpain

"Modest Needs provides small, no-strings-attached, #financialgrants for short-term immediate crisis situations for working #families": buff.ly/2HAtyhE @CVCinc #HealthCareForAll #chronicillness #medical

Do you understand balance billing? Learn a little about when it is and isn't legal to help you navigate #SurpriseMedicalBills caringvoice.org/understanding-…

Having reliable information is key for making informed health care decisions. Visit the Genetic and Rare Diseases Information Center for current and easy to understand information about genetic and #RareDiseases in English or Spanish. #RDDNIH @ORDR bit.ly/2FEs4FR

Nearly one third of Americans received medical bills they didn’t expect in 2014. We collected five tips for avoiding and navigating surprise medical bills. #healthinsurance caringvoice.org/navigating-sur…

Have you made a plan for your financial future? Save yourself heartache later by thinking through a few things today: caringvoice.org/planning-for-y…

#HDWorkoutTips with #ShanaVerstegen. For more info about #HuntingtonsDisease & the #HDSAFamily please visit HDSA.org 📺youtube.com/watch?v=goA-WZ… #WednesdayWorkout #LetsTalkAboutHD @shanamartin

Before you consider a short-term health insurance plan, be sure to understand their limitations. Here's a guide: caringvoice.org/short-term-hea…

A recent study has shown, for the first time, that companies that championed people with disabilities actually outperformed others — driving profitability and shareholder returns. nytimes.com/2018/12/27/opi…

Your insurance plan is about to begin its 2019 coverage. We’ve collected three things you can do before then to hopefully save you money and heartache. caringvoice.org/getting-the-mo…

From $1,500 toenail cream to a $109,000 heart-attack bill, relive these medical billing horror stories in our KHN/@NPR #BIlloftheMonth club. khn.org/ODkzNDA3

It's the #FirstDayofWinter and the #WinterSolstice! Listen to Dr. Samer Hattar, chief of the Section on Light and Circadian Rhythms at NIMH, on @NPR's Morning Edition. He discusses the results of a study that may explain how light exposure influences mood. n.pr/2Gxd52w