Sickle Cell Disease Coalition

Want a sneak peek of the #SCD Stakeholder Database?: bit.ly/3VgN9g4 Make sure you fill out the survey for your organization to be included: bit.ly/4au6iAw

Now accepting submissions for the March SCDC Update! Have news, events, opportunities, or resources the sickle cell community should know about? Share them so we can amplify your work in our next newsletter. Send your items or questions to coordinator@scdcoalition.org.

We're excited to start the SCDC Research & Innovation Subcommittee tomorrow, March 18, shaping a new series on sickle cell disease research and its experts. Join us! Apply here: ow.ly/IPtl50Ys1H4

Headed to Atlanta for the SCD Unified Action Forum (April 11–12)? This is your sign to lock in your travel. Book your flight and hotel by March 24 to secure your spot & make the most of the Forum (and the SC3 Leadership Summit if you’re joining). #SickleCell #SCD #SCDCPartner

We can't wait for the @SickCells Sickle Cell Disease Policy Forum! Don't forget to register and join us to learn, engage, and advocate. Bring your voice! #SCDCPartner #PolicyForum

It's Patient Safety Awareness Week! For the sickle cell community, safety means survival. Use ASH's SCD guidelines for safer care: ow.ly/lYhx50Ys0Xr #SCDC #ASH #Guidelines #PatientSafety

We're co-hosting the SCD Unified Action Forum with @SCCConsortium, April 11–12, 2026, Atlanta, GA. SCDC members can also attend the SC3 Leadership Summit free! #SCDCPartner #SCD

📬 Have you signed up for the SCDC Update? It’s a great way to stay up to date on the latest sickle cell disease opportunities, resources, and events, and to easily share them with colleagues and others in your network. Join the mailing list today: ow.ly/mYBV50YcoLk

🚨 Our first U.S. Pathways to Care meeting is on March 6! Join U.S. based stakeholders to address barriers and develop practical, community-informed solutions for equitable, high-quality sickle cell care. Apply to join the subcommittee: ow.ly/YwWh50YcoEF

Reminder: 📣 Join us for #PeerLearningExchange #4 on the sickle cell disease policy landscape in 2026. Hear from Maia Laing, Chief Policy Officer at @SickCells on the latest regulatory, funding & access trends shaping care and research in the U.S. 🔗 ow.ly/Wg6B50Yhl54

❤️ February is American Heart Month! People living with sickle cell disease (SCD) face unique heart health risks. Learn practical tips to support cardiovascular health here: ow.ly/HA6f50Ycosg #AmericanHeartMonth #SickleCellDisease #HeartHealth #PatientAdvocacy

📢 Flash Friday #3 is coming in March! We’re looking for community news, events, and resources related to sickle cell disease to feature in our next Flash Friday. 🗓️ Submit by Feb 26 | Email coordinator@scdcoalition.org Help us keep the SCD community informed and connected.

The SCDC is excited to join community members and advocates at the 2026 #SCDPolicyForum, hosted by @SickCells and the @SCCConsortium. 🗓️ March 17–18, 2026 | Virtual Register: ow.ly/AkW550YcnxE #SickleCellDisease #Advocacy #SickleCellAwareness

📣 Join us for #PeerLearningExchange #4 on the sickle cell disease policy landscape in 2026. Hear from Maia Laing, Chief Policy Officer at Sick Cells on the latest regulatory, funding & access trends shaping care and research in the U.S. 🔗 ow.ly/RPMZ50YhkWp

🧬 The FDA is hosting a virtual Rare Disease Day 2026 public meeting on Feb 23. The SCDC will be attending—will you? Let us know how you or your organization are engaging during #RareDiseaseDay or #RareDiseaseWeek. 🔗 Learn more: ow.ly/gfL050Ycnn1

📢 Don’t miss our Peer Learning Exchange: “Effective Advocacy Through Coalitions & Government Engagement.” Hear Mario Ottiglio share tips on advocacy. 📅 Feb 17 🔗 Register: ow.ly/wksJ50YcmWg #SickleCellDisease #Advocacy

🩸 Today is World Anemia Day 2026! Many confuse sickle cell anemia (HbSS) with sickle cell disease (SCD). Quick tip: HbSS is the most common & severe form of SCD. Learn more here: ow.ly/WO1q50YcmLR

👥 Our first SCDC-wide meeting of 2026 is Feb 25! We’ll share highlights from the ASH Annual Meeting and research submissions. Members, we hope to see you there! Not a member? Apply here 👉 : ow.ly/QNGh50Ycmof #SickleCellDisease #ResearchCommunity #SCDC #ASHAnnualMeeting

📣 Peer Learning Exchange | Feb 17: Join us for 'From Commitment to Change: Effective Advocacy Through Coalitions' with Mario Ottiglio, MA. 🔗 Register: ow.ly/NCqs50YbVz2 #PeerLearningExchange #GlobalHealth #Advocacy #CoalitionBuilding #SickleCellDisease

Have an event? Let’s amplify it! Submit your workshops, summits, trainings, or other opportunities to the SCDC calendar and reach more of our community. We’ll help spread the word! 📧 Send details: coordinator@scdcoalition.org #SickleCellDisease #CommunityEvents #AmplifySCDC

Today is Maternal Health Awareness Day! ACOG's theme "Holding Ground on Maternal Health" highlights our commitment to preventing maternal deaths. Check out WHO's first global guideline for SCD pregnancy care: ow.ly/7pi350XYhf8 #MaternalHealth #SCD