DECODE project

🎤We’re thrilled to announce our final keynote for #RCSLTConf2025: Prof Jois Stansfield 🌟Celebrating 80 Years of RCSLT: A Journey Through Our Profession’s History Prof Jois Stansfield explores milestones from 1945 to today #RCSLTat80 Buy your tickets👉rcslt.org/events/rcslt-c…

💡Icon of the Week: Airway Diseases On World COPD Day, we’re highlighting that people with a learning disability are more likely to experience airway diseases, including COPD. Early diagnosis and support matter. 🔗 decode-project.org/research/wp-co… #WorldCOPDDay #COPD #IconOfTheWeek

📢 Makaton Members! 🎄Join our next MakaChat LIVE! For Christmas & Festive Songs! 🎄 Get ready for a magical sing & sign evening where you can build skills & connect with our community 🎶 Register here: bit.ly/466J4jH #WeTalkMakaton #UseItDontLoseIt #MakatonCommunity

Introducing DECODE’s Icon of the Week!💡 Did you know 9 in 10 people with a learning disability have 2+ long-term health conditions - compared with 3 in 10 in the general population?💬Let’s raise awareness! 🔗View here lnkd.in/eaWi75Ku #IconOfTheWeek #HealthInequalities

We’re now on LinkedIn!🎉 Follow us for updates on our work to make health research more inclusive for people with learning disabilities - including news, resources, and events from the team at @lborouniversity 👉linkedin.com/company/decode… #DECODEProject #LearningDisabilities

Closing the day with words from Dr Satheesh Gangadharan 💬 “Most people see involving people with learning disabilities in research as a problem – but we have turned that around.” A powerful way to end today’s event. #InclusiveResearch #LearningDisability #PPI @lborouniversity

Loughborough’s DECODE project works with people with learning disabilities and their carers to understand what does & doesn’t work in healthcare – and involve them in designing solutions. @BBCEMT visited campus to hear from those involved 👇 tinyurl.com/y4454jp3 (see 11:07)

That’s a wrap on our conference: “Meaningfully involving people with learning disabilities in research”💜 Huge thanks to our speakers, PPI members & everyone who joined us today. Your insights and lived experiences are what make DECODE possible.🙏 #InclusiveResearch

Our final session is an open panel with today’s speakers🎤 The room is full of great questions & reflections - an inspiring way to wrap up the day and hear insights from the audience and speakers. #InclusiveResearch #LearningDisability #PPI @lborouniversity

Neil from @UniofNottingham on the ethics of inclusive research🧩 A great talk highlighting why it’s vital to involve people with learning disabilities at every stage of research - ensuring their voices and input are truly central. #InclusiveResearch #Ethics #LearningDisability

A brilliant end to Amy, Sarah & Heidi’s talk 👏 They shared a practical PPI toolkit for involving people with learning disabilities in health research. Such an important resource for making research more inclusive. #PPI #InclusiveResearch #LearningDisability

Great to hear from PPI co-leads Amy & Sarah & PPI member Heidi📢 They spoke about the challenges & opportunities in PPI health research, highlighting the importance of breaking down information, using pictures & making research truly inclusive. #PPI #InclusiveResearch

Brilliant to see @alidrewett presenting the 7 Design Rules✨They highlight good practice for research with people with learning disabilities. Co-created with our PPI team, the rules are fully inclusive & designed to be easily understood. #InclusiveResearch #AccessibleComms #PPI

The wonderful @AnnieBannister sharing her story as part of DECODE’s Family Carers Group💜 As a mum of 2 sons with learning disabilities, she is a crucial part of the DECODE team - her lived experience is invaluable in shaping research. Powerful to hear her perspective. #PPI

Ana, the graphic designer behind our infographics🎨, shared how visual style can reflect specific illnesses and why it must be tailored to the people it’s designed for. Her work revealed gaps in understanding & showed the importance of adapting processes. #InclusiveDesign

Ellie on the power of infographics in health research📊 Too often they’re cluttered & hard to understand. DECODE design infographics that carers & people with learning disabilities can use to better understand their health. #AccessibleComms #InclusiveResearch #LD #DECODE

Brilliant to hear from Nikki Harrison - paramedic🚑 & Makaton trainer, she spoke on the power of using Makaton - a communication programme combining speech, signs & symbols. Together, we developed a Makaton version of Maria’s Story to make it as inclusive as possible. #Makaton

@AnnieBannister We are so looking forward to hearing your speech later on! 🎤

A completely fascinating first half of the @DECODEproject2. Sadly for other delegates, part 2 includes me talking about heterogeneity (among other things) where I *will* look like a camel & sound like a donkey. But will hopefully entertain people!

In conversation with Orla Borsey (@lborouniversity alumni), the graphic designer behind Maria’s Story✨ It’s amazing to hear how she worked with the team - including our PPI members to develop graphics that are simple, clear & consistent. #InclusiveDesign #CoProduction