ME/CFS Research Network

📢Attention researchers! Data from @CornellMECFS's study on dysregulation of immune and metabolic pathways in #MECFS is available now on #mapMECFS. #MECFSnet. Apply for access today: ow.ly/5ILm50YpUL8

Learn why Dr. Maureen Hanson @CornellMCFS is committed to #MECFS research. Her dedication goes data and publications. It's about advancing research to discover treatments to help improve the lives of all #PwME. #NotJustFatigue #MECFSnet ▶️ow.ly/rOEQ50YhNHm

New paper! Congrats to our MECFSnet partners @CornellMECFS. Findings: Persistent immune & metabolic dysregulation in recovery, linked to PEM. Learn more: neuroimmune.cornell.edu/news/uncoverin… 👉Paper: pubmed.ncbi.nlm.nih.gov/41237904/

✨BIG news from #mapMECFS! Check out what we've been up to. ✔️A refreshed, user-friendly website ✔️ Improved navigation ✔️Secure login via NIH RAS using Login.gov or ID.me 👉mapmecfs.org

Learn why Dr. W. Ian Lipkin @CfSforMECFS and #MECFSnet partner, is committed to #MECFS research. His passion goes beyond the science. It's about improving quality of life for people living with ME/CFS. #NotJustFatigue #PwME ▶️ow.ly/bqbR50Y5aMt

🎉It's a new year and we're excited to share what we've been up to. Check out our new video series highlighting #MECFS research across #MECFSnet. ow.ly/8zj850XSEWt

ICYMI! New study from #MECFSnet partners @ICanCME finds a stress-responsive metabolic hormone, may offer a promising avenue to distinguish subtypes in people with #ME and/or FM. Learn more: pubmed.ncbi.nlm.nih.gov/40868993/

✨2025 #IACFSME Conference highlight: #MECFSnet colleague Quinn Barnette showcased #searchMECFS in a poster presentation. This interactive tool gives researchers a new way to explore + request more than 8,000 biospecimens. Researchers, apply today: ow.ly/Rnjp50XurIC

💞November is National Family Caregivers Month, a time to honor those who give so much of themselves to support loved ones. To every caregiver supporting someone with #MECFS, you are the quiet heroes behind every act of care.

📢Mark your calendars! for the @ICanCMEResearch Canadian Collaborative Conference on Myalgic Encephalomyelitis - Nothing About Us Without Us; November 4-6, 1-5pm ET. This 3 day event is free to register and virtual to attend. Register today: ow.ly/XjSF50XlgbF

📢Attention researchers! Data from @CornellMECFS's study on circulating cell-free RNA signatures in #MECFS is available now on #mapMECFS. #MECFS #MECFSnet Apply for access today: ow.ly/fMj450XjRVv

🎉Exciting news! The newly modernized #searchMECFS tool is live! The redesigned tool offers an enhanced user experience and helps investigators easily find #MECFS biospecimens for use in their research. Explore now: ow.ly/gHjO50XhNXK

🎉The wait is over! The #IACFSME2025 Virtual Conference kicks off today! Researchers, clinicians, and advocates from around the world are coming together to advance understanding of #MECFS and accelerate research and progress towards better diagnosis, treatment, and care.

🌍✨Today we honor the resilience of those living with #MECFS and the importance of mental well-being for everyone. Let's continue to show compassion, share support, and check-in with one another.

✨It's here! The latest #MECFSnet Newsletter is live. Find out what we've been up to. #MECFS #PwME #ResearchCollaboration 👉ow.ly/wjNl50Xa28o

✨Exciting news! New research highlights AI tool that detects #MECFS with 90% accuracy. Congrats to our legacy partners at @jacksonlab! nature.com/articles/s4159…

🗓️ Happening today, in one hour! Don't forget to register! ow.ly/G4L550WFrO5

Heard the news? DecodeME #MECFS Study released initial genetic results! Discover what it means for ME/CFS. Summary of findings: ow.ly/n7Hz50WFrwL Preprint publication: ow.ly/MS1W50WFrwN FAQs: ow.ly/gjqa50WFrwM