Huntington's Disease Network of Australia

Listen to this recent episode of The Morning Edition podcast. In this interview, Prof Julie Stout shares her insights on the latest gene therapy developments out of the UK. youtube.com/watch?v=W8BpIG…

Hear what Prof Julie Stout has to say about the new gene therapy breakthrough for Huntington's disease and what it may mean for those living with HD in Australia. abc.net.au/news/2025-09-2…

This study explores how health information collected in clinical registries could be safely linked with other health data. The research team wants to hear community views on privacy, trust, and how health data should or should not be used.

StoutLab staff and students joining Huntington's Victoria to help raise awareness for HD. We would love to hear what you have been doing during HD awareness month. #gobluemay22 #HDNA #HDAwarenessMonth #hdawareness

HD Gratitude Day 2025. Greetings from the StoutLab. #hdgratitudeday #HDNA #HuntingtonsDisease

Are you diagnosed with HD, positive for the HD gene, or at risk of HD? If this is you, we are looking for 𝗬𝗢𝗨𝗥 opinion about our national HD Prevalence Study. Submit your response via this link or by via QR code in video: monash.az1.qualtrics.com/jfe/form/SV_eQ… youtu.be/tIGrlxHUNjs

We support Rare Disease Day. To find out more visit rarediseaseday.org #Huntingtonsdisease #huntingtonsdiseaseawareness #RareDiseaseDay #raredisease #RareDiseaseDay2025

𝒞𝓇𝑒𝒶𝓉𝒾𝓃𝑔 𝐻📷𝓅𝑒 Watch this award-winning documentary on Dimitri Poffe's inspirational project "Explore for Huntington". #HD #huntingtonsdisease #huntingtonsdiseaseawareness youtube.com/watch?v=Mk7Xhe…

Wishing you all a safe and happy holiday season.

We learn from all trials, even those that are discontinued. Please read our open letter to the HD community regarding the latest press release from Sage Therapeutics. 👇 hdna.com.au/wp-content/upl…

This morning we participated in Huntington's Australia's Walk 4 Hope. Unable to attend the walks organised by HA during September and October, we participated in the "virtual" walk option available! #HDNA #HuntingtonsAustralia #HD #Huntingtonsdisease #Walk4Hope

Yesterday, a group from the StoutLab participated in Running for Nan's HD, joining the event virtually from Melbourne Victoria, in support of Huntington's Australia. #hdna #runningfornanshd #huntingtonsdisease #huntingtonsdiseaseawareness #huntingtonsaustralia

We are always grateful for those who participate in HD research. All research benefits a better understanding of HD and the HD community. This video by @HDYOFeed addresses common misconceptions of research participation and the many ways to get involved.

Working together for the Huntington’s disease community is important to us! Do you know the difference between HDNA and Huntington's Victoria? #HDNA #HuntingtonsDisease #HuntingtonsDiseaseAwareness #HuntingtonsDiseaseAustralia #MapHDRegistry

More good news for the Huntington's community! #HuntingtonsDisease #HDCommunity #HuntingtonResearch #hdna

Meet Amy Huynh. Amy is a PhD student in the StoutLab and is currently recruiting participants for his study, 𝗖𝗼𝗴𝗻𝗶𝘁𝗶𝗼𝗻 𝗮𝗻𝗱 𝗗𝗮𝗶𝗹𝘆 𝗙𝘂𝗻𝗰𝘁𝗶𝗼𝗻𝗶𝗻𝗴 𝗶𝗻 𝗛𝘂𝗻𝘁𝗶𝗻𝗴𝘁𝗼𝗻'𝘀 𝗗𝗶𝘀𝗲𝗮𝘀𝗲. Keen to know more? #HDNA #HuntingtonsDiseaseNetworkofAustralia

𝙂𝙤𝙤𝙙 𝙣𝙚𝙬𝙨! Wave Life Sciences has announced the positive results from SELECT-HD. Read their letter to the HD community below. #HuntingtonsDisease #HDCommunity #Huntington #HuntingtonResearch #WaveLifeSciences #HDNA wavelifesciences.com/wp-content/upl…

Working together for the Huntington’s disease community is important to us! Do you know the difference between HDNA and HA? The HDNA is working in the research and science space. Huntington’s Australia works in the community support and care space. #HDNA #HuntingtonsAustralia

Need some help signing up to the Map-HD Registry? A reminder that you can always contact us on 03 990 20081 or info@hdna.com.au with any questions. #HuntingtonsDisease #HDNA #HuntingtonsDiseaseNetworkofAustralia #MapHD #HDNARegistry youtube.com/watch?v=JxAMwh…

Have you considered registering on the Map-HD Registry? #HuntingtonsDisease #huntingtonsdiseaseawareness #huntingtonsawareness #RareDisease #HDNA #HuntingtonsDiseaseNetworkofAustralia youtube.com/watch?v=Be3xhg…