NICU Parent Network

Save the date for the first webinar of the fall! #fcc #nicu #nicunurse #nicuparent

Our summer newsletter is out! Please share with your teams! #fcc #nicu #nicunurse #nicuparent

The 2025 @iCANResearch Summit was our best one yet! Click below to read about how our organization gives kids with rare diseases & medical complications a platform to share their voices in clinical trail design and more. #ICAN2025 #clinicalresearch jenniferdegl.com/ican2025/

Save the date for the first webinar of the fall! #fcc #nicu #nicunurse #nicuparent

New Podcast Episode from @ParentsNicu! In this powerful episode, Dr. Melinda Elliott reveals how skin-to-skin care, informed nutrition choices, & parental involvement can directly impact outcomes for NICU infants. empoweringnicuparents.com/episode71/

House Resolution 236 urges Congress to recognize the rights of NICU babies to receive family-centered, developmentally appropriate care. 📨 Send a letter to your representative now: 👉 infanthealth.org/support-h-res-… #FamiliesFirst #NICUBabysBillOfRights #HR236 #ActForNICUBabies

Parents in the NICU face isolation, confusion, and heartbreak—on top of caring for a critically ill baby. House Resolution 236 outlines basic protections every NICU baby & family deserves. Use your voice. Send a letter today: infanthealth.org/support-h-res-… #NicuBabysBillOfRights

Next #FCC webinar is this week! Don't miss it! And a reminder that we have webinars every other month. You can also check out previous webinars on our youtube! youtube.com/channel/UCe8wo…

Looking for trusted info on neonatal care? On Neopedia, you’ll find: ✔️ Expert-reviewed recommendations ✔️ Practical tips & explanations ✔️ Parent-to-parent advice ✔️ Downloadable resources Visit neopedia.org 👈 #Neopedia #PreemieSupport #ParentSupport #NewbornHealth

Common feelings in the aftermath of HIE are complex and deep. #NeoTwitter #NeuroTwitter #PerinatalMentalHealth #NICU #PTSD #Anxiety #Depression

⏳ 1 week to go! Neopedia is for parents and caregivers of preterm or sick babies & HCPs looking for reliable, easy-to-understand neonatal care info. 📅 Launch: 21 May 2025 🔗 Sign up: neopedia.org #Neopedia #PreemieSupport #ComingSoon @gfcni_newborn

🚀 The countdown is on! 4 weeks until Neopedia launches – a multilingual platform with reliable, easy-to-understand information on neonatal care, prematurity & post-discharge development. 📅 May 21, 2025 🔗 Sign up: neopedia.org #Neopedia #ParentSupport #NICU

Today’s the final day to grab the early registration discount! Join us July 22–23 to amplify NICU parent voices and advocate for real change. 🎟️ $50 – NICU Parents & NPN Members 🎟️ $100 – Non-Members Register here ➡️ nicuparentnetwork.org/hill-day/ #NpnHillDay #NICUAdvocacy

The @NECsociety, Cincinnati Children’s, & UNC Children’s are proud to open registration for the NEC Symposium in Chicago, September 7 – 10, 2025. The NEC Symposium is the world’s largest conference focused on necrotizing enterocolitis (NEC). NECsociety.org/NECsymposium #preventNEC

EARLY REGISTRATION DISCOUNT - EXTENDED through Friday, 4/18! Join us on Capitol Hill July 22-23 as NICU Parent Leaders and advocates from across the country come together to amplify the voices of NICU families ➡️bit.ly/NPNHillDay #NPNHillDay #advocacy #NicuBabysBillOfRights

Adult preemie Giorgia Giuliana Garola (@VivereOnlus1) remembers the power of kangaroo care with her mom. Her advice to parents: “Be as close as possible to your child. You are so important for them.” 💜 Neopedia launches May 2025🌟 #Neopedia bit.ly/neopedia

Thank you, @RepMcGarvey & @RepHouchin, for standing with NICU families and advocates by supporting the NICU Parent Network’s NICU Baby’s Bill of Rights! #NICUBabysBillofRights #NICUAdvocacy

@RepMcGarvey @RepHouchin Thank you, @RepMcGarvey, for standing with NICU families and advocates by supporting the NICU Parent Network’s NICU Baby’s Bill of Rights! Every NICU baby & family must receive the care and support they deserve. #NICUBabysBillofRights #NICUAdvocacy

My twins spent 99 days in the NICU — some of the most difficult days of our lives. We learned that information is vital when you're fighting for your babies — every parent should have that. That's why @RepHouchin and I introduced the NICU Baby Bill of Rights.

NPN applauds the introduction of the NICU Baby’s Bill of Rights (H. Res 236)! THANK YOU @RepHouchin & @RepMcGarvey for championing this resolution, ensuring parents have a voice in NICU care & decision-making. prn.to/4hHf8xg #NICUBabysBillofRights #FamilyCenteredCare