ENETS N&D Group

Happy CNS day to all our NET clinical nurse Specialists! You all do an incredibly amazing job #NationalCancerCNSDay @UKONSmember @ncukcharity

4 weeks until the 20th Annual ENETS conference starts! Hybrid conference taking place in Vienna 22-24 March. Still time to register and join in with the nurses symposium! Register via ENETs website.

100% of attendees who completed last year's "Living with NETs" program found the program to be either 'extremely valuable' or 'very valuable'. Registrations are now open Register today: ow.ly/W9kI50MXLnB #LetsTalkAboutNETs #NeuroendorineCancer #NeuroendocrineTumours

Lactose intolerance – the NET Effect - Read more on Ronny Allan - Living with #NeuroendocrineCancer buff.ly/3IMTppJ

#Pheo and #para most commonly affect people between the ages of 20 - 50. A lot of patients struggle with misdiagnosis for a long time. Download our brand new #NETInfo on genetic and sporadic #pheo #para in your language: bit.ly/3XHHrlt #LetsTalkAboutNETs #EndoTwitter

This Saturday is #WorldCancerDay. All cancer patients should have the right to be seen, heard, supported with access to the best level of care, irrespective of which body part their disease appears. Equity of funding and focus across all cancers is needed to #CloseTheCareGap

#WorldCancerDay2023 is coming up on 4th Feb. For around 7 years now, I've had a #WCD event site here at this link (click GOING to see the feed) #NeuroendocrineCancer facebook.com/events/1456623…

Pancreatic and small intestinal NETs are among the most common ones. We can help #gastroenterologists to be more aware and suspect the disease. Download #NETInfo with a snapshot of symptoms, tests & treatments in 10 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #GITwitter

Neuroendocrine cancer is still frequently misdiagnosed for more than 1 year. #GeneralPractitioners are the first who can suspect it. ✅Download #NETInfo on many types of NETs in your language: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #MedTwitter #MedEd #GITwitter #EndoTwitter

Exciting meeting tonight of the ENETs nurse and dietitian group as arrangements are finalised for our symposium 24/3/23 @ncukcharity @UKINETS @netfdn @NeuroEndoTalk @EndoOncology

ENETs annual conference 22nd-24th March Vienna with a short nurses symposium between 9.00 - 10.00am on Friday 24th. Join us! Or catch up via the ENETs website after the conference @UKINETS @NeuroEndoTalk @netfdn @ncukcharity

Pheochromocytoma and paraganglioma are rare slow-growing NETs arising from adrenal medulla and sympathetic or parasympathetic paraganglia. Up to 40% are the result of an inherited genetic mutation. ✅Download #NETInfo in your language: bit.ly/3UNm3cI #LetsTalkAboutNETs

@gastrolivuni @UKINETS @LivUniISMIB Neuroendocrine Cancer is now the 10th most prevalent cancer in England, after colorectal cancer - please vote! @ncukcharity

⚠️If you have #NeuroendocrineCancer and are at risk of #CarcinoidCrisis you can download our medical alert card here: neuroendocrine.org.au/wp-content/upl… 🔗Download the Carcinoid Crisis factsheet for NET Patients and Health Care Professionals: neuroendocrine.org.au/wp-content/upl… #LetsTalkAboutNETs

Dr Dina Pitsilludes (Sheffield UK) presents a clear and informative talk to UKINets on “Palliative and supportive care needs in patients with NENs.” @UKINETS @netfdn @ncukcharity @UKONSmember @EndoOncology

Very informative talk by Prof Rajesh Thaler (Oxford UK) on ‘Management of pancreatic NETs in patients with genetic syndromes’ as UKINETs annual conference starts @UKONSmember @ncukcharity @UKINETS @netfdn

Looking forward AAA UKI NETS Satellite Symposium, on ‘Improving Patient Outcomes by Optimising Referring Pathways’ later this afternoon. @UKINETS @UKONSmember @ncukcharity @netfdn

Our #NationalActionPlan is a strategy for better NETs education, treatment & support. Contact your local Member of Parliament and tell them why you believe they need to do more for NETs patients. 👉🏾We’ve created some templates to help get you started ow.ly/AjVY50LKpMb

Liver Transplantation for Neuroendocrine Liver Metastases Pilot Programme Satellite Symposium - Sunday 4th December

Proper nutrition has a significant impact on the well-being of neuroendocrine cancer patients. Watch @netitalyonlus video with guidelines on balanced diet: ➡️incalliance.org/importance-of-… #LetsTalkAboutNETs #tumorineuroendocrini