The Endometriosis Coalition

Happy Endometriosis Awareness month! Our goal this year is to spread accurate information about #endometriosis and stop the misinformation that causes harm to endo patients.

The entire community mourns her passing, and our prayers are with her loved ones. Jahmby's legacy will live on in the fight against endometriosis.  #EndoWarrior

Our hearts are shattered by the loss of @JahmbyKoikai, an extraordinary endometriosis advocate for all. She was a warrior in every sense of the word. Her passion, strength, & relentless dedication inspired us all and touched the lives of so many in our community and beyond.

@drbethrackow @littlewordsproj Thank you so much!

I will proudly wear this bracelet in solidarity with my #endometriosis patients. END ENDO! Perfect sentiment. Thanks to the special patient and mother who were buying for themselves, and got me one too ❤️ #endendo #gynsurgeon @theendoco @littlewordsproj

#Repost @megconnolly_ 🖤 ⁣ “#1in10 women have Endometriosis. I am 1 in 10. Approximately 9 years ago, I first heard the word “#Endometriosis” and quite literally fainted (twice) in the doctor’s office. The word encapsulating the chronic illness that explained my 10+ years..."

From the patient perspective, what does @JayRishe of @theendoco want to see investigated in regards to #endometriosis? Here more in this #SWHRtalksEndometriosis webinar clip! Watch the full conversation online this month: ow.ly/2Qhx50QE3na #EndometriosisAwarenessMonth

Happy #InternationalWomensDay to all of our amazing warriors 👏

Join us on 3/1 in NYC as we launch our official partnership with Little Words Project! Free to attend, but RSVP required here: littlewordsproject.com/pages/events

📱 Link to this article: verywellhealth.com/laparoscopy-en…

Our Associate Director Meghan Maloof Berdellans @megconnolly_ spoke with @Verywell Health sharing her 10-year-long journey from symptoms to diagnosis via laparoscopic excision surgery. The sooner we start treating this as a full body disease, the better off we will be.

📱 Link to this article: verywellhealth.com/laparoscopy-en…

Our Associate Director Meghan Maloof Berdellans @megconnolly_ spoke with @Verywell sharing her 10-year-long journey from symptoms to diagnosis via laparoscopic excision surgery. The sooner we start treating this as a full body disease, the better off we will be.

A great opportunity to see Below the Belt for free alongside NYU medical students & faculty. You'll also have the opportunity to ask questions in a post-screening panel discussion with NYU's Division Director of Minimally Invasive Gynecological Surgery Dr. Ted Lee & Shannon Cohn.

Jenneh Rishe, BSN, RN @JayRishe and founder of The Endometriosis Coalition Inc. @theendoco shares her #endometriosis story with us: Jenneh's symptoms first appeared at age 27. What started first as cyclical pain around her period soon became persistence and severe.

After years of countless doctor appointments, tests, and procedures, Jenneh received an #endometriosis diagnosis. @JayRishe @theendoco It takes a full health care team of experts to diagnosis and treat endometriosis, Jenneh adds. #SWHRtalksEndometriosis

Be your own best advocate, says Jenneh. @JayRishe @theendoco "We're told that our symptoms are normal, and they’re not. Excruciating pain is never normal. Excruciating pain that keeps you from functioning is never normal."

Jenneh @JayRishe founded The Endometriosis Coalition Inc. @theendoco to create an advocacy and support space for individuals with #endometriosis. #SWHRtalksEndometriosis Learn more and get involved: theendo.co

Because there is no cure for #endometriosis, it is critical that individuals are empowered throughout their journey with this chronic disease. Tune in to SWHR's #SWHRtalksEndometriosis webinar: ow.ly/7TS950Qolau @zilahdi @JayRishe @PonceHealthSU @HopkinsMedicine @theendoco

Happening next week! Join SWHR and @zilahdi @JayRishe @PonceHealthSU @HopkinsMedicine @theendoco for an #Endometriosis webinar about the persistent gaps in disease diagnosis and treatment: ow.ly/OwYk50Qol9q #SWHRtalksEndometriosis

#Endometriosis has an average diagnostic delay of up to 6.7 years in individuals. #SWHRtalksEndometriosis During the "Elevating Endometriosis" webinar learn more about closing these care gaps: ow.ly/7rNK50Qolkm @zilahdi @JayRishe @PonceHealthSU @HopkinsMedicine @theendoco