Anne Stephenson

Looking forward to this evenings chat #tocf

@drstanbrook @sykestats @respandsleepjc #rsjc No worries! I get it.

#rsjc my connecting is spotty. Going to sign off now. Will enjoy the rest of my cottage time! Bye all!

@drstanbrook @sykestats @respandsleepjc #rsjc OK Dr stanbrook now you are making me laugh!!

@drstanbrook @sykestats @respandsleepjc #rsjc My recollection is no but Jenna may have more to say on this.

@lbudd3 @drstanbrook @sykestats @respandsleepjc #rsjc ...to impact survival as need people to be at risk of death (ie adults)

@lbudd3 @drstanbrook @sykestats @respandsleepjc #rsjc interesting thought! We disnt have that data. I suspect similar. And wud take yrs ...

@drstanbrook @sykestats @respandsleepjc #rsjc Historically was to minimize burden on clinics and get robust data. Since 2011 we get mult one

@hashimkhan85 @drstanbrook @sykestats @respandsleepjc #rsjc ....were adjusted for

@hashimkhan85 @drstanbrook @sykestats @respandsleepjc #rsjc Table 1 outline the key variables and differneces betw countries. Imp ones ...

@drstanbrook @sykestats @respandsleepjc #rsjc And US had implemented earlier than CAN !

@drstanbrook @sykestats @respandsleepjc #rsjc Altho NBS may impact survival not enough time to explain these results

@drstanbrook @sykestats @respandsleepjc #rsjc for the unadjusted analysis we included all deaths. No censoring. Still survival gap

@drstanbrook @sykestats @respandsleepjc #rsjc we did censor when we adjusted for clinical measures. BUT in the unadjusted analysis...

@drstanbrook @sykestats @AnnalsofIM @respandsleepjc #rsjc The sensitivity analyses were ours.

@drstanbrook @sykestats @respandsleepjc #rsjc I dont think we can conclude that at this point. But this has raised significant questions

@respandsleepjc #rsjc thanks for reminder! I am responding but forgot the #rsjc thingy!!! Ahhh

@thelungdr @ElizabethTulli1 @liannesinger @SKeshavjee #rsjc it may impact it. The US CFF is looking into the access to transplant now.

@drstanbrook @respandsleepjc The estimates of CF patient who attend CF centres is relatively high but a bit less than in canada.

@lbudd3 @drstanbrook @respandsleepjc #rsjc great question. We dont know.