Data for the Common Good (home of the PCDC)

We'd love if you followed us on Bluesky: bsky.app/profile/d4cg.b…

This #NationalEpilepsyMonth, join us 11/19 at 12pm CT to hear from epilepsy and EEG experts about their research and how an international epilepsy data commons will help advance treatment and cures for monogenic epilepsies. RSVP at sam.am/EpilepsyWebinar

In 2019, St. Baldrick’s awarded foundational funding to help realize the vision of a comprehensive data commons. Today, the @PedsDataCommons at @UChicago has created an international sharing platform that enhances data access for studying various pediatric cancers.

New publications, a growing team, and officially announcing our data commons for pediatric monogenic epilepsies. Read all about it in our latest newsletter: sam.am/D4CGNewsJul2024

Our newest publication illuminates a path to unlocking high-quality #EHR treatment data for #neuroblastoma research using REDCap CDIS. ascopubs.org/doi/10.1200/CC…

Our recently published letter shares our experience navigating the challenges of #GDPR to successfully execute international #datasharing agreements for the Pediatric Cancer Data Commons. thelancet.com/journals/lanon…

#GrandRounds Recap from Friday! @SamVolchenboum, MD, PhD, shared how informatics and harnessing #bigdata can save you time by connecting you with the right people faster! Thank you ITM @illinoistech for hosting! #HealthResearch #CTSAProgram

A new publication from Kirk Wyatt and @SamVolchenboum on how #BigData and #AI can advance #PediatricOncology, current progress and challenges, and how to separate hype from realistic expectations. sciencedirect.com/science/articl…

Looking for a fun way to end your week? Don't miss #ITMGrandRounds this Friday with @SamVolchenboum, MD, PhD, at ITM-@illinoistech ! Can't make it in person? No worries - you can attend virtually! chicagoitm.org/events/itm-gra… #CTSAProgram #NIH @UChicagoMed

Lots of exciting updates & a preview of our spring conference schedule in our latest newsletter! Check it out if you missed it: sam.am/D4CGNewsApr2024

We are incredibly honored that the Pediatric Cancer Data Commons has been named a Champion of Open Science by the @WHOSTP! An open and collaborative approach is the foundation of the PCDC and all of our work at D4CG. whitehouse.gov/ostp/news-upda…

We are honored to have our director @SamVolchenboum attending the @WHOSTP White House Rare Disease Forum this evening. D4CG is grateful for the opportunity to be part of this important national conversation.

Our Semantic Engineer Jooho Lee is participating this week in an @NCBI codeathon to design and build innovative solutions that promote fairness, transparency, and accountability in AI/ML algorithms and models. Work will be presented this Friday: nlm.nih.gov/ncbi/workshops…

Standards-powered tools & innovative methods for trials admin. & deployment can transform the clinical trials landscape. This #JCOOP editorial shares a vision for automated #ClinicalTrial matching in #PediatricOncology ➡️ brnw.ch/21wHmAt @SamVolchenboum @PedsDataCommons

New commentary from Kirk Wyatt and @SamVolchenboum: Targeted Enrollment in Pediatric Oncology Trials: A Vision for Just-in-Time Matching ascopubs.org/doi/10.1200/OP…

Excited to see our progress with @KovlerDiabetes building the PREDICT #MonogenicDiabetes data commons and consortium profiled! givetomedicine.uchicago.edu/2024/02/gray-f…

#ICCD2024: A global call to raise awareness and take action against childhood cancer. Join @IntChildCancer and @worldsiop by sharing your experience at iccd.care/participate. #EqualAccessToCare #ChildhoodCancerAwareness

Data for the Common Good is seeking experienced Senior Project Managers to manage two exciting, rapidly growing projects. Join our team and make a difference in research to improve health and lives! commons.cri.uchicago.edu/careers